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06-11-2008, 09:41 AM
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#1
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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To The Family and Friends Of Our Angel Lolly
I too read this post over and over before I could respond, completely devastating news to hear. I want to first thank Steph for informing of this news, especially because there is no gentle way to share such a thing. And Bo, your post made me cry as I read it, knowing how tough that was to do....I salute you.
Her support to us all reined supreme and her sweet demeanor helped to make my husband's journey easier to swallow. She was truely an amazing Warrior and we are surely blessed to have had the chance to love and support her.
I will keep you all in prayer all we delve forward into the future without these Angels by our sides. They have earned their wings and halos.
Lolly, I already miss hearing you and seeing your smiles. You will never be forgotten!>>Believe51 & Mighty Oak
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
Last edited by Believe51; 06-11-2008 at 01:39 PM..
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06-10-2008, 08:18 PM
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#2
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Senior Member
Join Date: Nov 2005
Posts: 943
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NO, I can hardly deal with this as Lolly was such an inspiration, kind spirit, fighter and loyal friend on her2. This is not what I wanted to hear tonight, sad news. I pray this her2 angel is at perfect peace, surrounded by heavenly love.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
Last edited by RobinP; 06-10-2008 at 08:27 PM..
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06-10-2008, 09:30 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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I'm shocked and can't beleive this. This is the saddest news. I can never forget her kind and innocent face. She will be missed for anyone who had a chance to know her.
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06-10-2008, 09:37 PM
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#4
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Senior Member
Join Date: May 2006
Posts: 3,142
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Lolly has earned her wings
Hi,
I am very, very sorry to hear about Lolly. My sympathy to her family and friends.
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06-10-2008, 11:30 PM
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#5
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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I Wish ...
...there had been a gentler way to let you all know about Lolly. Sorry. She meant so much to the success of this web site in its infant days. And was such a beacon of hope here.
When I found this site over 5 years ago (I am losing track!) Lolly greeted me with open arms. We meet here when she came to the University of Washington to participate in the vaccine trial. I first met her in person the day after my Gamma Knife procedure.
She was so upbeat and happy to try the vaccine.
One thing that helps explain her compassion and helpful nature is that she told me her grandfather was a doctor. She seemed to know a lot about how bodies work and not be afraid to find out more to understand as much as possible about her/our kind of cancer.
She lived with much grace and I know she did not want to hurt us with her dire situation.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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06-10-2008, 11:48 PM
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#6
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Senior Member
Join Date: Feb 2006
Location: Vancouver Canada
Posts: 72
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Thank you Stephanie
I am so shocked and sad. Just didn't think we'd be saying goodbye to Lolly, didn't see that one coming.... Omigosh. Lolly, our angel. Love and strength to her wonderful husband and family and to all of us....love to you Lolly, thank you for your many kind words to so many of us....may you find peace and kick a** in heaven!!
Love, Jade
xo
__________________
Dx Nov.04 - Stage 1, Grade 3, widespread high grade DCIS, Paget's disease of nipple, 8mm tumor invasive DC (ductal carcinoma), ER/PR-, HER2+++
Nov.04 - left mast., clear margins, 6 of 6 nodes clear
Feb.05 - began EC chemo, 4 rounds (every 3 weeks)
Aug.05 - began Herceptin every 3 weeks for 1 year
Aug.06 - ended treatment
NED
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06-11-2008, 06:14 AM
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#7
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Not another dear sister....
Dear sweet Lolly will be missed by all.
There are no words to describe my feelings.
To Bo,
Thank you for posting and sharing the loving care you and your family gave to your wonderful Mother. She was and will remain a special leader on our site.
She was such a comfort to all, always sharing information, using the site
for the intention it was designed...Your mother was always supportive, reassuring, a major contributor to our site. She demonstrated how to cope with this disease and come through this ordeal always ready to to get on with life, love and famiy. From your post it is clear she taught you well, as you read through your dear Mother's posts you will discover how much she was respected and loved. Please know your Mother's posts made everyone a little bit stronger!
With Love,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
Last edited by Jean; 06-11-2008 at 06:46 AM..
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06-11-2008, 07:09 AM
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#8
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Senior Member
Join Date: Jul 2006
Posts: 869
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Oh No, not again. Lolly will be deeply missed. Ceesun
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06-11-2008, 08:09 AM
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#9
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Senior Member
Join Date: Sep 2005
Location: Minneapolis, Minnesota
Posts: 127
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Much too sad to say anything now. . . . . .
She will be missed terribly.
Love to you Lolly. Be free
kim
__________________
dx 5-05 @42 years old
IDC stage IIA
ER+ (100%) ER+ (75%) HER2+
double mastectomy
4DD AC - 16 weekly Taxol
6 months Herceptin - stopped due to MUGA
35 chest wall rads
Tamoxifen
Lat flap with silicone implant reconstruction on left side due to radiation. "Normal" silicone on right. Finished all reconstruction 6-07!!!
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06-11-2008, 08:18 AM
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#10
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Senior Member
Join Date: Sep 2005
Location: OH
Posts: 385
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So very sad
for Lolly's family, and our family too. Lolly was so very selfless and giving, offering all she could to this board. I am stunned, and will miss her posts. May you find peace in the promise of everlasting life.
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06-11-2008, 08:49 AM
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#11
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Senior Member
Join Date: Jan 2008
Location: Oregon City
Posts: 856
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I send prayers out to Lolly and her family. She obviously meant a lot to the Her2 community and she will be missed.
Lee
__________________
This happened to Colleen:
Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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06-11-2008, 09:05 AM
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#12
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Senior Member
Join Date: Mar 2006
Posts: 1,843
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I am so sorry.
I will miss Lolly's cheerful positive helpful and sympathetic posts. I was always felt positive when I saw one of her posts and looked forward to reading it.
RB
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06-11-2008, 09:29 AM
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#13
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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No!NO!
Oh my God, I cannot believe it. I had no awareness that anything like this was happening. I CANNOT believe it. Thank you for the post Steph and I'm glad her husband called you. To her family I send so very much love and hope they know what Lolly means to all of us. I love you Lolly!
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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06-11-2008, 10:19 AM
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#14
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
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I am just in shock....this is something I just can't conceive. I don't even know what to write. Oh Lolly....
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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06-11-2008, 11:11 AM
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#15
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Senior Member
Join Date: Aug 2007
Location: Newport Beach, CA
Posts: 161
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Lolly was so special to this place
I am so saddened to hear about Lolly, as she was a constant source of strength and support on this site. Her observations were so real and tender at the same time.
Condolences to her family and friends. Yes, Steph, Lolly has earned her wings. She will be missed.
XO,
Vicki
__________________
Diagnosed 12/03 at age 53
1.5cm tumor, ER-PR-, Her2 3+(rt side)
Stage 1B, Three negative nodes from Sentinel Node Biopsy
Paget's of the nipple, Infiltrating Ductal Carcinoma and DCIS of the rt breast
Bloom-Richardson score 8/9, P53+ 60-70%, Ki-67+ 30-40%
Skin-sparing mastectomy with immediate lat-flap reconstruction and saline implants, 1/04
Chemo: FAC, five sessions every three weeks Feb.-May 04, then switched to HTC weekly for 12 weeks, June-Aug 04
Zometa every 6 months for osteopenia, started April 09
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06-11-2008, 07:11 PM
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#16
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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This is such awful news its almost unbearable. Lolly was such a special person that no words seem adequate. I'm at a loss for words. We will all miss Lolly; she touched so many of our lives here on the Her2 board.
I want to send me deepest condolences to Lolly's family and friends. I will keep you all in my thoughts and prayers.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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06-11-2008, 07:47 PM
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#17
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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This is so very sad that it just seems impossible. Lolly was such an amazingly kind, generous, and POSITIVE person. Her kindness always shown through in every post she wrote.
Steph, thank you for letting us know about dear Lolly. It was so like her not to complain much, probably not wanting to worry us.
And Bo, I'm teary reading your post as well. Thank you for sharing your personal thoughts with us. My heart is truly broken. Please accept my deepest and heartfelt sympathy for your loss.
Kim
__________________
Diag. Feb 1997 4.5cm IDC <10%ER+, PR-. 5 out of 36 nodes +. Mastectomy followed by 3 rounds Adriamycin/Cytoxin.
5/1997 Hi Dose Chemo w/ Stem cell rescue. Spent 4 weeks in isolation ward. Then 6 weeks radiation.
9/2001 widespread mets to liver. 8 mos Taxotere/Herceptin brought me almost to NED. Stop Taxotere & add Femara .
11/2002 liver resection to remove spot that turned out to be necrosis. Officially NED!
7/2003 Tumor markers rising add Xeloda Disastrous reaction, 8 days hospital, but tumor markers came back to normal!
June -Dec 2004 UW Vaccine Trial.
7/2005 MRI single 11mm brain met
8/2005 Gamma Knife.
Brain MRI @3 months NED!
2006-2011 brain/body still NED
8/04/11 Taking Herceptin break, will monitor with tumor markers.
6/20/12 Tumor markers begin to rise. CA15-3 is 31.3 and Her2 Serum is at 17.1 Decide to repeat in one month.
7/23/12 CA15-3 now 49.3
Her2 Serum 26.8
8/6/12 Back on Herceptin
CA15-3 now 76
Her2 Serum now 49
11/7/12 Add weekly Taxotere for 4 cycles
2/2013 Stopped Taxotere added Perjeta. MRI shows approx. 50% reduction liver mets. CA15-3 still elevated @ 55. Will continue on just Herceptin & Perjeta.
November 2014 Continuing on Herceptin, Perjeta, and
Femara indefinitely. Guess I'm NED again, but watching those tumor markers carefully!
Dec. 2015 PET scan reveals mass in perirectal area of abdomen.biopsy confirms. Still Her2+, but no longer ER+. Bye bye Femara
Jan 2016 Begin Kadcyla
March 2016 PET scan shows tumor now barely visible, still NED everywhere else.
2016/2017 continue Kadcyla
November 2017 brain MRI reveals small focus of T2 hyperintensity with possible 4mm enhancing nodule. Short term follow up MRI suggested. Stay tuned...
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06-14-2008, 01:48 PM
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#18
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Senior Member
Join Date: Sep 2006
Location: Savannah, Georgia
Posts: 301
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I am deeply saddened to hear about Lolly. She was a very courageous and loving spirit and she will be greatly missed by many many people. Her husband and family will remain in my prayers.
Love, Kelly
__________________
dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED
"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."
-Eleanor Roosevelt
Last edited by KellyA; 06-14-2008 at 01:59 PM..
Reason: spelling
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06-14-2008, 05:02 PM
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#19
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Senior Member
Join Date: Oct 2005
Location: Saratoga Springs New York
Posts: 136
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oh no
Frank, Bo and Anneliese, I am very shocked and sad to hear the bad news. Lolly has been the biggest inspiration to me for over 4 years. I always look for her posts and responses. She was always so positive and full of great information. She once told me that we were in it for the long haul. I think of those words all the time and I will continue to think of her and her words of wisdom. I also give my daughter a thumbs up and a kiss on the forehead which will be more reminders of Lolly. She was great person and will be missed alot. My thoughts and prayers go out to your entire family. I know you will stay strong and keep living life to the fullest. It is what Lolly would want you to do. I will miss her alot. Sally
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06-14-2008, 05:32 PM
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#20
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Senior Member
Join Date: May 2008
Posts: 118
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Lolly
I too have been gone for a week and am stunned at the news. My sympathys to the family, Jeanette
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