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Old 10-16-2007, 04:56 AM   #1
Christine MH-UK
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Join Date: Sep 2005
Posts: 414
Diagnosed high-risk four years ago and no recurrence

I thought that my story might encourage some people who are newly diagnosed.

Four years ago today I was diagnosed with a high-risk breast cancer: er-, pr-, her2+, eight out of 19 nodes after pre-surgery chemo. Oh, and I had been diagnosed six months after having had a baby, which is also a very bad thing in terms of survival. The member of the surgical team tasked with giving me my results was optimistic until he realised that I had already had chemo (FEC which is good, but failed for me). When my husband asked my prognosis, the surgeon evaded the question and I didn't want to know anyway, since I knew the odds were dire. The only optimistic thing one nurse could think to say to me was that breast cancers as aggressive as mine always came back fast, so I would know sooner rather than later whether the treatment had worked! She mentioned that I might live to see my one-year old start school if I got on the herceptin trial, only to announce soon after that that trial was closed. Children start school at 4 in Britain, so I was devastated. Trying to keep optimistic, I once pointed out to my oncologist that at least I had a grade two cancer, only to have him respond back that my cancer was a grade two but it acted like a grade 3.

Fortunately after I had surgery my oncologist gave me taxotere, which was unusual in Britain at the time. I also started saving my money to go anywhere where there was an approved anti-her2 vaccine (which I optimistically thought would come out very soon), but it meant at least when the Hera results came out I had the funds to start late herceptin.

Four years on, I am still around despite the odds, with no sign that the cancer has come back. Because I had to go back into treatment late and became very tired on herceptin, I am just now getting everything back into order, but am doing well.

Of course, when I started my treatment back in October 2003 so much less was known about how to treat this type of cancer. I am amazed by the progress that has happened in the last four years. I hope that you have found this story encouraging.
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Old 02-25-2008, 06:07 AM   #2
Join Date: Dec 2007
Location: Columbia,SC
Posts: 16
Awesome!!! Thanks for sharing--it does give great hope!!
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Old 02-27-2008, 04:54 PM   #3
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Join Date: Feb 2008
Location: Spring Hill, Florida
Posts: 2
Thank you

Thank you for your encouraging story. I was diagnosed 10/18/2007. Am very fortunate that I can have the Herceptin therapy. Will receive this therapy for a year. Also on clinical trials for chemotherapy because my cancer is aggression as mentioned. Clinical trials in 2nd phase. Although I'm 54, I still feel I'm in my 30s. Working fulltime through all this. I live in the States, Florida.
Ellen Hall
Ellen Hall
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Old 03-01-2008, 09:30 AM   #4
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Join Date: Jan 2008
Posts: 305
It is great to see someone with such a poor prognosis beat the odds. It gives encouragement to people like me who are still in treatment. I can't tell you how sick I am of the words "high risk".
May 2007 - Stage 3A, 12 positive nodes, her2 positive
July 2008 - Stage 4 - Liver Mets

Help my city grow:

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Old 04-08-2008, 10:28 AM   #5
lkc Gumby
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Join Date: Feb 2006
Posts: 434
Christine , Thnaks for posting this!
Eileen & Goops, Next month I will be " out " 3 years from a BADDDDD dx.
12 pos nodes, lymph & Vascualr invasion, er/pr neg HER positive,
blah, blah, blah blah.....
I am fine!!! and you will be too.
Have faith and surround yourself with positive people. Be kind to yourslef. Treatment is hard, but you will get through it!!
God Bless!

Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
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Old 04-19-2008, 06:18 PM   #6
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Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
Wow, YES I did fine this thread encouraging!!! LOVE reading threads like this one!!

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction

6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
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