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Old 08-25-2012, 08:44 AM   #1
Cathya
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Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
Johns Hopkins Seminar

I have just signed up for an online seminar put on by Johns Hopkins called

"You've Finished Treatment - What's Next?"
.

I receive a regular email from Lillian Shockney with a link to their Artemis report which provides updates on breast cancer research. If you want to receive Artemis her email address is

shockli@jhmi.edu

Because of this connection, I just received an email inviting me to this online seminar. The description of the seminar is....

Johns Hopkins doctors tell you some of the things you need to know about the end of breast cancer treatment and throughout long-term survivorship. Topics will include follow-up guidelines, recommended screening and surveillance tests, survivorship care planning, tips for staying healthy, and returning back to your primary care provider. There will be time at the end of the discussion for participant questions and answers.

and the link to register is (I am from Canada and so just used New York as my state and 11111 as my Zip Code....sorry about that....lol).

http://bit.ly/BCSurvivorshipWebinar1

I hope this is helpful,

Cathy


__________________
Cathy

Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18


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Old 08-25-2012, 04:49 PM   #2
Pray
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Join Date: Apr 2011
Location: Michigan
Posts: 1,173
Re: Johns Hopkins Seminar

Thank you for the post Cathy. I just signed up for the seminar also!
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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