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Old 12-06-2009, 05:17 AM   #1
dawn
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Does the anxious feeling ever leave

I just cant shake this anxious feeling. Its like you're waiting for the other shoe to drop. Only for my children I wouldn't go out of the house, I want to curl up and not do anything. I tell myself to shake it off and continue on. I pretty healthly with no pain, I have a small met on my breast bone but its incapicatating me. Wondering what the future has in store. Even though without cancer you don't know. But I cant get by, will this feeling pass with time as I learn to deal with it. Should I be taking medication to help me. Im so scared all the time. I just want to sit and cry and yell why me. Please help.

Dawn
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Dawn

Mar 2006Stage IIIA, Her2/Neu 3+++, Er & Pr positive, 8 of 18 pos 03/14/06: Mastectomy 04/19/06 started Chemo adriamycin, chlophosphamide, taxotere 25 rads
Nov 1, 06: 3 years Tamoxifen, Herceptin (1yr)
Jan 2009 Femara mets to bone aromasin and aredia
June2009: Full Histerectomy
2/22/2010 6 spots in liver 2 mm-10 mm: switched to xeloda and Herceptin will continue with Aredia J
Scan February 2011 new onc, switch to abraxane
April 2011 NED clear organs, 3 spots on bone scar tissue.
Scans August 2mm spot on liver and lungs. now on to tykerb/xeloda
Dec 2011 scans nothing on lungs, liver down to 1 2 mm spot. j
une 2012 another spot on liver on to cisplatin/gemzar.


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Old 12-06-2009, 05:31 AM   #2
Mary Anne in TX
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Re: Does the anxious feeling ever leave

Good Morning Dawn!
I'm not sure the "shoe drop" ever really leaves, but it gets easier with each year! Because I'm raising my granddaughter by myself, I so understand you wanting to be there for your kids. So normal. I'm even coming along in that area, knowing that whatever life deals her, my part in it is right now...I'm trusting the next teacher, whether 2 years or 20, will be just the right one for her then. But it's taken me lots of sleepless nights and worrying hours to get there. And I slip off the "trusting stool" often. I just get right back on. God keeps on opening doors!
Getting back into life is different after a cancer diagnosis, I think, but it's not only possible, but can be even better in so many ways. I choose more wisely, I buy more wisely, and I spend my time more wisely. I love more sincerely and walk away when necessary.
You will get better! Get out the door even when you have to push yourself. It's the bestest medicine! People help us create our life and the more you "rub elbows" with them, the faster you will heal from the fears. When you need to curl up and reflect do it, but jump right back out the door when done.
You can do this new life. It's different and often difficult, but I find it also filled with joys and blessings.
ma
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Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
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Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 12-06-2009, 06:17 AM   #3
Pam P
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Re: Does the anxious feeling ever leave

Mary Anne - what a beautiful response, lovely, thoughtful, and so true.

Dawn - I can't say anything more heartfelt than what MA wrote - only to add "Amen" to what she said.

For me that anxious feeling definitely has gotten easier. In the beginnning it was all consuming - like you describe for yourself. Do whatever you need to do as hard as it is to break through it. Talk to a counselor, friends,support group, whoever can help you voice the fears and to help put some of the anxiety into perspective. Talk to the dr about anti-depressents to help. Get out of bed, get out the door, stay engaged with what brings you happiness and life today. Then TRUST. You have a plan, a trt to manage this met, you are in good health, and have good care. As the months go by the anxiety may still be there, but consumes less of your day and energy. As the years go by you realize you are living with cancer, as a cancer survivor and life is good. One day at a time, one step at a time... What you are feeling is normal. Accept the feelings, let them out and let them go. Meditation helps me.... find what's helpful for you. Then allow yourself to relax and accept calm and joy and life happening right now. Now I'm rambling... just keep hugging the kids, enjoying each day, and living life.
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6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
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6/03 herceptin, aredia & faslodex
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3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
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2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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Old 12-06-2009, 06:48 AM   #4
Sheila
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Re: Does the anxious feeling ever leave

Dawn
Yes, the anxious feeling is not so overwhelming now, but as you can see in our posts, it still revisits us at scan time, or when something unusual happens.

After the initial shock of diagnosis, i have always tried to stay focused on the positive....not the why me, but why not me? I have learned to use this disease as a second chance, I know whats important....and I take advantage of each day....when i was told i was stage IV, back in 2003, I thought I was near the end....well, guess what, here in 2009, I am still fighting, still on treatment, but still alive. People tell me often that I look so healthy....my reply to them is, if it wasnt for the damn cancer, I would be healthy.

If you arent already in a local support group, seek one out....others here and in aa support group can help you get through the anxiousness.....try to start living again, and focus on your children, and all your blessings...there are days when i forget about cancer...and its wonderful!
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 12-06-2009, 10:05 AM   #5
caya
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Re: Does the anxious feeling ever leave

Dawn,

I echo what eveyone has said. Although I am not stage IV, I still worry, it's always in the back of my mind.

If you feel you might need anti-anxiety meds, don't be shy about speaking to your onc. or GP about this. Many of us are taking some form of this medication, it's been a great help to me.

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 12-06-2009, 10:54 AM   #6
Adriana Mangus
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Re: Does the anxious feeling ever leave

Dear Dawn;

Please make an appointment right away with your personal physician.

I see that you are up in the middle of the night worrying about this disease, you need to stop. You need your sleep, more than ever it's crucial for you to sleep and let the hormones do the job they do when we sleep...keeps us young and healthy.

Please, do it for your children.

I have been on Paxil-- it's an antidepressant, it works for most people with middle/major depression. It's a non-habit forming med, so it you want to discontinue taking it you can without any major problems. (Always check with your doctor, though.)

I know how you feel, I was 38 first time I was dx with this stupid disease, am now 54. I never thought I will see my daughter graduate from High School.

She has not only completed her H.S. education, but now she's in the process of developing her Master Degree program and curriculum and will begin classes early February 2010.

There are so many drugs nowadays, although there is no cure, these drugs are keeping us alive.

Dawn; if you want to talk to me, please let me know. Please email me and I will send you my phone#. I no longer work, time it's what I now have.

Love,

Adriana
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1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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Old 12-06-2009, 10:55 AM   #7
karen z
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Re: Does the anxious feeling ever leave

Dawn,
I am not the best person to ask in that I tend to "run" anxious anyway. Having had cancer certainly has added to my anxiety. The advice that Mary Anne and others gave was wonderful. And I agree with Caya completely. Do not be shy about asking for something to help with your anxiety. If you have a good internist, you might start there (or find one) as that individual should be responsible for "tracking" any and all meds you are taking and coordinating things with your oncologist and other doctors. Talking in a support group or with a counselor who deals specifically with cancer can also be very helpful (in addition to MA's advice to "get out there").
Best,
Karen
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Old 12-06-2009, 07:19 PM   #8
Paty
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Re: Does the anxious feeling ever leave

Dear Dawn,

Needless to repeat all the wise words that our 'sisters' have just mentionned. I usually go through similar times and are very scarry of the return of 'the enemy'. I would advise that if you are feeling very anxious, get an appointment with your physician. I took medication for a while and it did help a lot, I am ready to go for new treatments as my depression and anxiety are back again. I am sure your doctor will be able to help you with the problem. Love,

Paty
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Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
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Old 12-06-2009, 11:08 PM   #9
Jackie07
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Re: Does the anxious feeling ever leave

Dawn,

Glad you have shared your feelings with us. I hope you are feeling better after reading all the encouraging postings. "Life is not fair but God is good." You have many loving family members around you. I hope you will enjoy the holiday gatherings with them. Treasure the 'here' and 'now' and trust that things will work out. You've been a fighter, keep on fighting the good fight!

And yes, please make an appointment with your family doctor or another health professional right away.
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Old 12-08-2009, 05:06 AM   #10
dawn
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Re: Does the anxious feeling ever leave

Thankyou everyone. I've started taking lorezepan for the anxiety and it has made my life 100% more bearable. The weekend has been fastastic with my kids. We did skating, treelighting, a party friday night, Mass Saturday Night, had our first snow storm sunday and our first snow day yesterday, so it was sliding, snow balls and fun with the kids. I can only thank you so much for getting me out to enjoy those times.

Thank you, thank you, thank you
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Mar 2006Stage IIIA, Her2/Neu 3+++, Er & Pr positive, 8 of 18 pos 03/14/06: Mastectomy 04/19/06 started Chemo adriamycin, chlophosphamide, taxotere 25 rads
Nov 1, 06: 3 years Tamoxifen, Herceptin (1yr)
Jan 2009 Femara mets to bone aromasin and aredia
June2009: Full Histerectomy
2/22/2010 6 spots in liver 2 mm-10 mm: switched to xeloda and Herceptin will continue with Aredia J
Scan February 2011 new onc, switch to abraxane
April 2011 NED clear organs, 3 spots on bone scar tissue.
Scans August 2mm spot on liver and lungs. now on to tykerb/xeloda
Dec 2011 scans nothing on lungs, liver down to 1 2 mm spot. j
une 2012 another spot on liver on to cisplatin/gemzar.


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Old 12-08-2009, 06:52 AM   #11
caya
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Re: Does the anxious feeling ever leave

Hi Dawn,

Glad you checked in to give us an update.
Sounds like you're back in the swing of things!!

Wishing you and your family a Merry Christmas,
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 12-09-2009, 01:22 PM   #12
CourtneyL
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Re: Does the anxious feeling ever leave

Dawn, I am glad to read that you found something that is working for you. Good old Ativan has been my magic pill on more than a few occasions when I felt like I just couldn't handle my life. The anxiety never entirely goes away but it does subside a great deal and it does become easier to deal with. Its getting use to the "new normal" that takes awhile. Our old lives as we knew them are gone forever. But in their place, an opportunity has arisen. An opportunity to really know, in a way that most people don't, that our time here is limited and we must do what we can to make the time as enjoyable as possible.

My prayer for you is that you will beat down your met and have a long and happy dance with NED - enjoying life to the fullest!

Happy Holidays!!
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.

Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial

Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED

Send me a PM if you'd like to follow my journey on Caringbridge.
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Old 12-09-2009, 07:01 PM   #13
dawn
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Re: Does the anxious feeling ever leave

Thank you so much courtney.

Happy Holidays to you also.


Dawn
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Dawn

Mar 2006Stage IIIA, Her2/Neu 3+++, Er & Pr positive, 8 of 18 pos 03/14/06: Mastectomy 04/19/06 started Chemo adriamycin, chlophosphamide, taxotere 25 rads
Nov 1, 06: 3 years Tamoxifen, Herceptin (1yr)
Jan 2009 Femara mets to bone aromasin and aredia
June2009: Full Histerectomy
2/22/2010 6 spots in liver 2 mm-10 mm: switched to xeloda and Herceptin will continue with Aredia J
Scan February 2011 new onc, switch to abraxane
April 2011 NED clear organs, 3 spots on bone scar tissue.
Scans August 2mm spot on liver and lungs. now on to tykerb/xeloda
Dec 2011 scans nothing on lungs, liver down to 1 2 mm spot. j
une 2012 another spot on liver on to cisplatin/gemzar.


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Old 12-18-2009, 01:29 PM   #14
juanita
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Re: Does the anxious feeling ever leave

so glad that you found something that works for you. my magic pill has been zoloft. haven't been able to go off of it yet and when i've tried my family is begging me to go back to it.
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st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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Old 12-18-2009, 11:35 PM   #15
Wendywins
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Re: Does the anxious feeling ever leave

Dawn,
The anxious feeling does leave but the greater awareness of how beautiful the nature that surrounds us , the sweetness of the moments with loved ones, and the delight in the opportunity to experience it all stays with us and is the "gift" that surviving a cancer diagnosis leaves with us.
Its been nearly 8 years since my diagnosis of a "very aggressive cancer" in 2002. After 3 operations, 2 kinds of chemo, radiation and after effects that were painful, I am happy with life. As someone who does not expect any life after death, its jolly good to be alive.

dx 2/02 Her2neu+++, Er-/Pr- (Stage 2); 1pos. lymph node
3/02 lumpectomy; no clean margins
04/02 lumpectomy; no clean margins
Adriamycin/Cytoxin ; 4 infusions
7/02 mastectomy +removal of lymph nodes (levels 1 +2)
Taxol : 4 infusions
several infections requiring rd the clock antibiotic injections..
25 days radiation
Taxol nerve damage to feet..etc.
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Old 12-19-2009, 12:09 AM   #16
mcgle
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Re: Does the anxious feeling ever leave

And I thought I was the only irreligious one on this site ...

Mcgle (UK)
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