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Old 06-29-2012, 04:17 PM   #1
7andcounting
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Posts: 107
Is anyone seeing a pattern here???

It sure seems to me that I am reading more and more hopeful posts of ladies seeing tumor shrinkage or becoming NED. I HOPE this is the future for us. I think it sure could be .........if only the drug companies would make TDM-1, and Pertuz. avaliable to all of us.

I am thrilled for those who are getting these drugs; there are many of us that are not able to, and we are relying on the drug companies to HURRY!!! We'd like to get these drugs too, so we too can see some good results!!

Here's to lots more hopeful news in the future! So, so happy for all that are getting hopeful news right now!

The future looks exciting!
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Old 06-29-2012, 05:49 PM   #2
KaiM
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Re: Is anyone seeing a pattern here???

Exciting indeed!!! May this pattern continue for a very long time!
__________________
9/11 - dx 3 mnths after giving birth to my 2nd child. (not a clogged milk duct) ER/PR- HER2+++
10/11 - Initially staged at 2b after unilateral mastectomy
11/11 - CT scan 4 weeks later found spots on bones and liver (crap!) Stage 4
12/11 - starting TCH
5/12 - STABLE. stoping TCH after 6 months and continuing Herceptin with Tykerb and Xgeva
8/12 - STABLE, but I'm calling it NED because all they see is bone scaring!
11/12 - STABLE
2/13 - STABLE
6/13 - STABLE
9/13 - STABLE
12/13 - STABLE
3/14 - STABLE
6/14 - STABLE
9/14 - STABLE
12/14 - STABLE
...Continue Herceptin and daily Tykerb and scans every 4 months
1/16 - STABLE
11/18 - Five level spinal fusion from collapsing vertebrae due to spinal Mets/radiation
12/19 - STABLE
Mom to Audrey (12 yrs) and Hudson (8)

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Old 06-29-2012, 06:18 PM   #3
KsGal
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Re: Is anyone seeing a pattern here???

Agreed. I feel more convinced every time I log in here lately that I, too, can be a long-term survivor. Can't wait for these drugs to be available to everyone. All these good news posts are certainly a cause for celebration. As was said in another thread, a victory for one of us is a victory for all of us.
__________________
Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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Old 06-30-2012, 10:48 AM   #4
'lizbeth
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Re: Is anyone seeing a pattern here???

Yes, I'm starting to see more options, and more good news. The agonizing part is to get there we've got to join clinical trials and its a crap shoot to get the latest treatments.

I'm so happy that pertuzumaub is approved for metastic treatment.

But the approval for TDM1 and other treatments that lead us to NED are years out, and only after progression and suffering through toxic chemotherapies.

The logic seems to escape me, but I'm disappointed there aren't more trials for primary breast cancer.

I've seen how many chemotherapies the Stage IV ladies have suffered with.

I can't wait until more targeted treatments are used with primary treatment, and even before - so no one has to go through what the stage IV survivors suffer with.
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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Old 06-30-2012, 06:58 PM   #5
karen z
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Re: Is anyone seeing a pattern here???

Yes, there is much good news and results going beyond what we saw even a short time ago. There is much to celebrate and still much to fight for.
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