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Old 09-18-2014, 02:13 PM   #1
Jane's Husband Stephen
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Finished Chemo - More Questions

Jane finished her last chemo this past Tuesday 9/16/14. Back in July we went to visit a surgical oncologist and a reconstruction oncologist. The plan was to perform nipple sparing double mastectomy with expanders placed IF her MRI on 10/1 is clean. With the expanders in place she was told that she could decide down the road whether she wants implants or she wants to do one of the flap surgeries.

In the meantime we found out her insurance will pay for two more opinions so she visited another surgeon today. He did a mammogram today and it showed residual(?) cancer on her left side. So, he said that she is not a candidate for nipple sparing on that side. He also said that he would do a mastectomy on her left side now, and when it was time for reconstruction he would do the right side mastectomy. He also said that they would not use expanders and that she needs to have the skin flap reconstruction and not implants.

Does anyone have any thoughts or advice? She actually has 2 appts tomorrow with yet another surgeon and reconstructionist.

Thanks for listening!!
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Old 09-18-2014, 07:46 PM   #2
Lisalou
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Posts: 184
Re: Finished Chemo - More Questions

Hi Stephen
Good luck with the additional opinions. More information is usually helpful, and then you and you wife can decide what makes the most sense to you.
I did BMX skin and nipple sparing adjuvant. I had TEs and subsequent implants. My understanding is that 2 factors primarily come into play for skin and nipple sparing, 1) have small breasts, too much skin is a problem for the reconstruction, and 2) location of the tumor needs to be distant from the nipple.
Wishing you the best with the information you get and your subsequent decisions.
Lisa
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[SIGPIC]Lisa
Routine mammogram 12/20/2013
Call back with repeat films on12/31/2013 Ultrasound with core needle biopsy same day
Dx 1/2/2014 IDC ER/PR+
1/10/14 HER2 +
2/14/14 BRCA results negative
2/17/2014 skin & nipple sparing BMX with reconstruction Tissue expanders placed
IDC Stage 2A left breast. 9mm tumor no other CA 1/4 nodes positive
ER + PR + Her2 +(by FISH)
Right breast no cancer, sclerosing adenosis
3/13/14 Round 1 AC minimal side effects
3/27/14 Round 2 AC
4/10/14 Round 3 a little more nausea
4/24/14 round 4 hurray! Done with phase 1!
5/8/14 THP ( taxol weekly x12, Herceptin & perjeta every 3 weeks x 4)
7/24/14 done with chemo
Continue of Herceptin every 3 wks x 1 yr
5/14 start Tamoxifen x 5 years
8/18/14 removal of TEs silicone implants placed
9/14/14 Cellulitis Right Breast, suspect infected implant. Managed with Oral antibiotics, avoided surgery to remove implant. Whew!
12/17/14 nip & tuck revision of Left breast

We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face. The danger lies in refusing to face the fear, not in daring to come to grips with it. We must do that which we think we cannot do. -Eleanor Roosevelt
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Old 09-21-2014, 08:30 PM   #3
BonnieR
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Re: Finished Chemo - More Questions

Stephen, we are always here to listen. It's what we do best! Even though I can't offer specific help I will say that the more opinions you get, the more information will be added to your arsenal. The right solution will surface. Stay open. Ask questions. Write stuff down
And keep the faith
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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