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Old 09-10-2014, 07:02 PM   #21
IrvineFriend
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Join Date: Jan 2013
Location: Irvine, CA (Southern CA)
Posts: 414
Re: Side effects question

I had joint pain from Herceptin. Was always still and sore after each treatment for the year. But the good thing is, when the chemo and mono therapy is over, so will the pain. Hope she finds some relief. By the way, they have to know how it's mixed as they do it there or the hospital pharmacy!
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Julie
Live in Orange County, CA

Diagnosed with DCIS Oct. 2012

Bilateral Dec. 19, 2012
IDC, ER/PR-, Her2+++, Grade 3
Stage IIIa
15.6 cm
4/14 nodes + macrometastases
First thing each morning, I try on my bathing suit. Then, nothing worse can happen the rest of the day.
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Old 11-20-2014, 05:21 PM   #22
rhondalea
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Location: Somerset, NJ
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Re: Side effects question

In case this comes up again, the "alcohol" is benzyl alcohol. It is the alcohol of the devil, IMO. It does horrible things to newborn babies (so they no longer use it), but medical science seems to think it's just fine for us big folks.

I blame the worsening of my cognitive deficits on benzyl alcohol, because I saw the progression every three weeks. I think it has something to do with the NMDA receptors, but that particular research is a little fuzzy in my head.

Horrible stuff, for some of us. If you can avoid it, do so.
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2/6/09 Core needle biopsy: negative; Mammos through 2010: no change
3/30/11 Pea-sized lump in left breast at site of prior biopsy; mammo negative, sonogram not so much
4/14/11 Core needle biopsy: negative for cancer
5/18/11 Excisional biopsy 1.2 cm tumor, LVI, positive margin; ER+60%,PR+20%,HER2/CEP17 5
6/15/11 BMX: Left DCIS & LH; Right ADH; SNB: 2/3 nodes: 1.4 cm and 1 mm; ALND L1&2: 0/10; Stage IIa, Grade 3
7/14/11 CT/Bone scans NED; MUGA 66%
7/19/11 Biweekly dd AC w/Neulasta; done 8/30/11
9/13/11 Transfusion (Hemoglobin 8.6); MUGA 64%
9/20/11 Start Taxol + Herceptin; Taxol done 12/6/2011; continue Herceptin until 9/4/2012
12/27/11 Radiation - 6 weeks; 2/27/2012 - DONE! Yayyyy!
2/29/12 Start Tamoxifen 20 mg/day; continue until 2/28/17
5/16/12 Start five-years Metformin trial
6/19/12 MUGA 61%
8/21/12 Brain MRI NED (head still hurts, brain still fogged)
9/4/12 Herceptin done!
9/6/12 Port out!
7/11/13 Aricept 5mg for cognitive impairment; increased to 10mg as of 8/23/13; back to 5mg 12/2013
5/2014 Add Namenda 7mg
9/2014 Stop Aricept and Namenda; Neuropsychological evaluation
10/24/14 Start cognitive rehabilitation therapy
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