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Old 11-05-2019, 09:49 PM   #1
kitty9
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Join Date: Nov 2009
Location: Melbourne,Australia
Posts: 7
15 years later

Now 15 years NED after stage 3, grade 3, 19 + nodes !
I hope this info is useful to those in the early stages of their journey.
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Diagnosed Oct 2004

Stage 3,Grade 3 Er-,Pr-,Her2 +++
19/21 positive nodes and some axillary spread

Rt Lumpectomy and axilla clearance

AC 4+ T4
6 weeks radiotherapy breast and axilla and clavicular nodes

2 years herceptin (36 doses) 3 weekly
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Old 11-06-2019, 08:49 AM   #2
Laurel
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Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 1,975
Re: 15 years later

Dear "Kitty9,"

I am sorry I do not know or recall your actual name, but I do want to thank you for posting. Your story is an inspiration to those who are entering their own cancer journey. I remember the fear and uncertainty. Here you are 15 years after a Stage 3, 19 positive nodes diagnosis! Wow! In this season of Thanksgiving (November is Thanksgiving in the US) I am thankful for your survival and to all the many health professionals who fought to make a Her2 diagnosis no longer a death sentence. Thanks be to God for Dr. Slamon and Herceptin! May you enjoy many, many more cancerversaries! All the very best!

Laurel
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Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

11 Years NED
I think I just might hang around awhile....

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Old 11-19-2019, 04:12 PM   #3
tricia keegan
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Join Date: Nov 2005
Location: Ireland
Posts: 3,439
Re: 15 years later

Kitty 9, you're about a half year ahead of me so I'm delighted to wish you continued good health and remission. So sorry I can't recall your name either but love your cat avatar which looks very like my asian Jack!
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 11-21-2019, 12:11 PM   #4
jra40
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Join Date: Mar 2011
Location: Pittsburgh, PA.
Posts: 260
Re: 15 years later

Congratulations - you are a true warrior and inspiration!
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11/17/10 - Diagnosed with 4.5cm tumor in right breast, IDC, Stage 2, Nuclear grade 2, ER+ PR+ HER2+
12/13/10 - Lymph node biopsy - negative
12/28/10 - Started neo-adjuvant treatment along with clinical trial with 4 rounds of AC chemo every 3 weeks
3/15/11 - Began weekly Taxol/Herceptin infusions along with 750mg of Tykerb taken by mouth daily
6/28/11 - Finished last cycle of Taxol
7/27/11 - Breast MRI shows tumor has dissolved, remarkable reaction to chemo
8/31/11 - Lumpectomy, Sentinel Node biopsy. Node negative, clear margins, 7mm of cancer left over from chemo.
10/05/11 - Started radiation, 5 days a week for 7 weeks.
11/8/11 - Finished radiation
3/21/12 - Last Herceptin!
3/26/12 - Port removed!
Tamoxifen for 5 years
8/4/15 - Hysterectomy & bilateral salpingo-oophorectomy. Due to large fibroids. No cancer!
8/8/15 - Started Arimidex
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Old 11-26-2019, 03:51 PM   #5
Donna H
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Join Date: May 2014
Posts: 250
Re: 15 years later

Thanks for the update. Have a wonderful Thanksgiving!!
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