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Old 10-09-2012, 06:26 AM   #1
KristinSchwick
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Cool Live interview on my local news

Friends,
I am so sorry if I didn't mention enough of the things you suggested about metastatic breast cancer.
The anchorwoman really lead me in a different direction, I think I came off sounding like mammograms are pointless. Not what I meant to say- only that for me and young women, mammos don't image our boobs well and cancer can grow ALOT in under a year.

Never got to say that we all fight just as hard as everyone else. Never meant to dismiss the suffering of all non-met bc survivors. Just needed to point out that mBC is a different beast. I was disappointed with my message- but at least it is over, I was so nervous.

http://www.kwwl.com/story/19767633/e...-breast-cancer
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[B]Kristin
Aug 2010: diagnosed stage 3b, 4 mo. after birth of son. 29 yrs old and breastfeeding, ER/PR-, Her-2+ started Neoadjuvant therapy: 4x FEC, 10x abraxane & Herceptin
Feb 2011: L mx with recon. Path. showed only DCIS but 4/10+ nodes.
March 2011: 6 wks rads.
Mother passed, lower back pain.
Late May 2011: Bone mets but organs clear; Tykerb, Xeloda, Xgeva. Stopped Herceptin. Implant infected: removed implant.
October 2011: Bone progression; Gemzar and Carboplatin & restarted Herceptin.
Jan 2012: Progression, re-classified as ER+; Tykerb, Herceptin, Zoladex & Femara. Anti-E is working!
May 2012: ovaries out, markers stable but elevated. Cont. Herceptin, Tykerb, Xgeva & Femara.
Dec 2012: aromasin
Jan 2013: faslodex, herceptin, tykerb
Jun: Kadcyla
Aug: Rads to hip, then Perjeta, Herceptin & Taxotere
Nov 2013: Perjeta, Herceptin, Halaven
Early 2014: Affinitor, Aromasin, Perjeta, Herceptin.
June 2014: Estradiol, Perjeta, Herceptin
Aug 14: Tamoxofin, H & P
http://kristin-notdying-blog.blogspot.com/
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Old 10-09-2012, 09:13 AM   #2
phil
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Re: Live interview on my local news

I thought you did great. You didnt look nervous, and made good points. most women your age don't get mammos right ? so you made good points for younger women , about knowing your own body, going / w your gut sense . your referrals to your blog, and her2support.org , etc. were great too !
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Old 10-09-2012, 09:38 AM   #3
sdstarfish
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Re: Live interview on my local news

Kristin, I am really proud of you. You did well. I think you sent a really important message about the way young women's breast tests are read (if they are even given, that is...). I am also very glad that you were able to make more people aware of metastatic breast cancer. We really need that.
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Old 10-09-2012, 09:55 AM   #4
KaiM
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Re: Live interview on my local news

Go Kristin! I thought you were great! People just don't understand what metastatic breast cancer is, so anything we can do to educate the general public is a great thing in my eyes! You are a brave warrior and advocate for doing this. I'm so tired of people asking me if my treatment is done now... I think it is the number one question I get asked. And I always say it will never be done, they just look at me like they don't understand. I loved the part about how people don't die from stage 1,2, or 3, it is stage 4, metastatic cancer that kills and not enough focus is put on that. Kudos to you Kristin!
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9/11 - dx 3 mnths after giving birth to my 2nd child. (not a clogged milk duct) ER/PR- HER2+++
10/11 - Initially staged at 2b after unilateral mastectomy
11/11 - CT scan 4 weeks later found spots on bones and liver (crap!) Stage 4
12/11 - starting TCH
5/12 - STABLE. stoping TCH after 6 months and continuing Herceptin with Tykerb and Xgeva
8/12 - STABLE, but I'm calling it NED because all they see is bone scaring!
11/12 - STABLE
2/13 - STABLE
6/13 - STABLE
9/13 - STABLE
12/13 - STABLE
3/14 - STABLE
6/14 - STABLE
9/14 - STABLE
12/14 - STABLE
...Continue Herceptin and daily Tykerb and scans every 4 months
1/16 - STABLE
11/18 - Five level spinal fusion from collapsing vertebrae due to spinal Mets/radiation
12/19 - STABLE
Mom to Audrey (12 yrs) and Hudson (8)

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Old 10-14-2012, 03:13 PM   #5
Mandamoo
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Re: Live interview on my local news

Good on you Kristin - you did a wonderful job - so nice to hear your voice.
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40 year old Mum to three gorgeous kids - son 5 and daughters 8 and 11
Wife to my wonderfully supportive husband of 17 years!
22 February 2011 - Diagnosed Early Breast Cancer IDBC Stage2b (ER/PR -ve, Her2+ve +++) - 38 years old
(L) skin sparing mastectomy with tissue expander, axilla clearance (2/14 affected) clear margins.
Fec*3, Taxotere and herceptin*2 - stopped due to secondary diagnosis

June 24 2011 Stage IV - Skin met, axilla node, multiple lung lesions

Bolero3 trial - Navelbine, Hereptin weekly, daily Everolimus/Placebo
February 2012 - July 2012 Tykerb and Xeloda - skin mets resolved, Lungs initially dramatically reduced but growing again
August 2012 (turn 40!) tykerb and herceptin (denied compassionate use of TDM1) while holidaying in Italy!
September 2012 - January 2013 TDM1 as part of the Th3resa trial - lymph nodes resolved, lungs slowly progressing.
January 2013 - herceptin, carboplatin and Perjeta (compassionate access)
April 2013 - Some progression in lungs and lymph nodes - Abraxane, Herceptin and Perjeta
July 2013 - mixed response - dramatic reduction of most lung disease, progression of smaller lung nodules and cervical and hilar nodes - ? Add avastin.
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Old 10-14-2012, 05:19 PM   #6
Mtngrl
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Re: Live interview on my local news

Kristin,

It was fantastic. It's nice to know how you look and how your voice sounds.

You didn't seem nervous. You did a great job.

Thanks for spreading the word.
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4/19/11 Diagnosed invasive ductal carcinoma in left breast; 2.3 cm tumor, 1 axillary lymph node, weakly ER+, HER2+++
4/29/11 CT scan shows suspicious lesions on liver and lungs
5/17/11 liver biopsy
5/24/11 liver met confirmed--Stage IV at diagnosis
5/27/11 Begin weekly Taxol & Herceptin for 3 months (standard of care at the time of my DX)
7/18/11 Switch to weekly Abraxane & Herceptin due to Taxol allergy
8/29/11 CT scan shows no new lesions & old lesions shrinking
9/27/11 Finish Abraxane. Start Herceptin every 3 weeks. Begin taking Arimidex
10/17/11--Brain MRI--No Brain mets
12/5/11 PET scan--Almost NED
5/15/12 PET scan shows progression-breast/chest/spine (one vertebra)
5/22/12 Stop taking Arimidex; stay on Herceptin
6/11/12 Started Tykerb and Herceptin on clinical trial (w/no chemo)
9/24/12 CT scan--No new mets. Everything stable.
3/11/13 CT Scan--two small new possible mets and odd looking area in left lung getting larger.
4/2/13--Biopsy of suspicious area in lower left lung. Mets to lung confirmed.
4/30/13 Begin Kadcyla/TDM-1
8/16/13 PET scan "mixed," with some areas of increased uptake, but also some definite improvement, so I'll stay on TDM-1/Kadcyla.
11/11/13 Finally get hormone receptor results from lung biopsy of 4/2/13. My cancer is no longer ER positive.
11/13/13 PET scan mixed results again. We're calling it "stable." Problems breathing on exertion.
2/18/14 PET scan shows a new lesion and newly active lymph node in chest, other progression. Bye bye TDM-1.
2/28/14 Begin Herceptin/Perjeta every 3 weeks.
6/8/14 PET "mixed," with no new lesions, and everything but lower lungs improving. My breathing is better.
8/18/14 PET "mixed" again. Upper lungs & one spine met stable, lower lungs less FDG avid, original tumor more avid, one lymph node in mediastinum more avid.
9/1/14 Begin taking Xeloda one week on, one week off. Will also stay on Herceptin and Perjeta every three weeks.
12/11/14 PET Scan--no new lesions, and everything looks better than it did.
3/20/15 PET Scan--no new lesions, but lower lung lesions larger and a bit more avid.
4/13/15 Increasing Xeloda dose to 10 days on, one week off.
7/1/15 Scan "mixed" again, but suggests continuing progression. Stop Xeloda. Substitute Abraxane every 3 weeks starting 7/13.
10/28/15 PET scan shows dramatic improvement everywhere. All lesions except lower lungs have resolved; lower lungs noticeably improved.
12/18/15 Last Abraxane. Continue on Herceptin and Perjeta alone beginning 1/8/16.
1/27/16 PET scan shows cancer is stable.
5/11/16 PET scan shows uptake in some areas that were resolved on the last two scans.
6/3/16 Begin Kadcyla and Tykerb combination
6/5 - 6/23 Horrible diarrhea from K&T together. Got pneumonia.
7/15/16 Begin Kadcyla only every 3 weeks.
9/6/16 Begin radiation therapy on right lung lesion that caused the pneumonia.
10/3/16 Last of 12 radiation treatments to right lung.
11/4/16 Huffing and puffing, low O2, high heart rate, on tiniest bit of exertion. Diagnosed as radiation pneumonitis. Treated with Prednisone.
11/11/16 PET scan shows significant improvement to radiated part of right lung BUT a bunch of new lung lesions, and the bone met is getting worse.
11/22/16 Begin Eribulin and Herceptin. H every 3 weeks. E two weeks on, one week off.
3/6/17 Scan shows progression in lungs. Bone met a little better.
3/23/17 Lung biopsy. Tumor sampled is ER-, PR+ (5%), HER2+++. Getting Herceptin and Perjeta as a maintenance treatment.
5/31/17 Port placement
6/1/17 Start Navelbine & Tykerb
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Old 10-14-2012, 08:18 PM   #7
Cure4Cat
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Re: Live interview on my local news

Kristin,

I thought you did a great job. I too was dismissed by several Doctors because I was breastfeeding my son. I kept being told I had a blocked milk duct and that I just wasn't trying hard enough to breastfeed. When I was finally diagnosed (6 months after I first went to my Doctor), I went back to all the Doctors to let them know, in hopes that if another young Mom comes in that they will take it more seriously. The only reason that they finally sent me to a breast specialist was because I stopped breastfeeding and the lump was still there. I had to stop as very little milk was coming out of the cancer side, due to cancer blocking the way. I had no family history and had just turned 31 years old. My son was 7 months at diagnosis and he is now almost 3 years old. I don't post often, but you and your family are in my thoughts.

Cat
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Chemo Sept-Dec 2010
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Surgery Jan 2011
25 Rads March 2011
Herceptin started during chemo and continued every 3 weeks for 1 year
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Looking for a vaccine trial
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Old 10-15-2012, 12:19 AM   #8
vonny
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Re: Live interview on my local news

Kristin, I think you were great! You gave an extremely important message about breast cancer in young woman. My daughter was diagnosed with metastatic breast cancer this year at the age of 21! More people need to know that this can happen and indeed does happen even to young woman.
I’m with KaIM, I also loved the part about how people don't die from stage 1, 2, or 3, it is stage 4, metastatic cancer that kills and not enough emphasis is put on that.
Thank you xxx
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