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Old 07-10-2009, 07:30 PM   #1
Faith in Him
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Thank You Caregivers

I just feel moved to thank all of the caregivers. I am so blessed and touched to read your posts of how you bravely battle along side your love ones. I know you have the hardest job in the world. As much as I am scared about my own death, I get extremely scared when I think of the possiblity of losing one of my loved ones.

I am forunate enough to have a husband who is much like all of you, fighting in the trenches with me. I appreciate all of you for who you are and what you do.

Praying for you and your love one.

Tonya
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 07-10-2009, 08:09 PM   #2
Believe51
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Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Tonya, my husband has mentioned many times before that he is glad he is the sick spouse and not the caregiver. Of course he never wants to leave me and has guilt about having me become a widow so young. Really, I do not know what I am going to do without him by my side. This journey has made me a stronger, more determined person and this comes from loving someone that deeply. Our marriage keeps getting better and it is very hard to know it will be over some day soon. It is the hardest thing I ever had to face and I am just sick of it all. I am actually afraid that I won't know how to move on alone. This journey has totally aged me, emotionally and physically. Imagine how tired he is if I am this beat up myself (shutter)!!

I thank you Lovey, I thank you for appreciating all that we do, out of love, out of devotion, out of our vows to you. Please know that your love to us has allowed us to be the people of which you speak. Know that our love for you shall go on for an eternity, whether we conquer bc or not. We love you all right back. You are our spouses, our lovers, but most of all....our very best friends and the most courageous people we know. Thank you for this post, I really needed this tonight. I am so sad watching this happen to my baby. Sending love to you tonight.>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 07-11-2009, 12:12 AM   #3
Jackie07
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I wrote a long one detailing how hubby has been taking care of me the last 21 years, especially during my two brain surgeries and two breast cancer treatment.

It was a real nice post - but it didn't get posted because it was 'timed out'. Oh well, it's the thoughts that count. He doesn't read these postings anyway...

Just received a package from 2nd Sister's Sister-in-law in New Jersey...

Seems there was a similar thread posted before. Guess I'll just say it again: "Thank you, caregivers. 'God cannot send his angels to everybody, so He created caregivers...'"
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 07-11-2009 at 12:22 AM..
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Old 07-13-2009, 01:27 PM   #4
Colleens_Husband
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Jackie:

I'm not sure it is as important for your husband to read the post as it is for you to write the post. I bet he knows how you feel anyways.

If you need to write a long post, type it in Word or Wordpad, then cut and paste it into the reply box. It can save you a lot of grief due to the timeout thing.

Lee
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This happened to Colleen:

Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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Old 07-13-2009, 02:28 PM   #5
Jackie07
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Well, Lee, you know how 'guys' love to hear 'praises' from their significant others - though probably not in the public forum.

After 21 years going through 'thick and thin', hubby sometimes still wondered why I had married him.

He (and many men) doesn't quite understand that most (if not all) women marry for 'love'.

Of course when the pressure gets high, there will be complaints. A lot of time he felt like he's had enough. I used to just give my late Mother-in-law a phone call, and she would reassure me (by giving me most recent examples) that I am the most important person in his life.

But it is tough to be living with a wife whose brain has been assaulted 4 times by various means. It doesn't help that my Mother-in-law had passed away in January after many years' suffering from Alzheimer's and my 'grouchy' Father-in-law is needing him for company.

I am sure all the caregivers can empathize with the feelings. So, again: "Thank you, Caregivers."
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 07-13-2009 at 02:33 PM..
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