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Old 01-22-2012, 05:30 PM   #21
Laurel
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Re: Dying of other cancer...

Jackie,

I am so sorry for your loss. I love the photo of all your teammates. Which lovely young lady are you?
__________________

Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

11 Years NED
I think I just might hang around awhile....

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Old 01-23-2012, 01:10 AM   #22
Jackie07
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Re: Dying of other cancer...

To Laurel and Paula: 'Top left'(the usual 'Point-guard' positon in both pictures.

To Paula: I had requested for genetic testing after seeing many of our members on this Board have had the tests done. My oncologist reluctantly agreed (I'd had two surgeries each for both brain tumors and breast cancer already, plus Mother had been treated for Non-Hodgkins Lymphoma in 1998) to my request for genetic testing in early 2009. The result was a 'BRCA1-Variant of unknown significance' and the genetic counselor in the hospital told me that my risks was higher than normal, but not to worry too much. It all changed when I learned about 2nd Brother's colon cancer (my family overseas had kept the news from me for several months) later that year. I put the 4 cancers together and located a cluster called HNPCC (Hereditory Non-polyposis Colon Cancer.) Recalling 2nd Brother had mentioned that his colon cancer was unusually 'big', I made an appointment with a gynecologist and eventually was referred to a gynecological surgeon.

There was a twist during the process: my surgery was postponed because a special 'ring' used in the procedure http://www.pelvichealthsolutions.com...y-laparoscopic had been recalled. There were only 3 good ones (of a different brand) left before the hospital could get more supplies. Hoping to be one of the three patients to get it, I called my family doctor and was given a lecture that I shouldn't have had such 'anxiety' over a prophylactic procedure. He wanted me to get a 2nd opinion! So I called my oncologist and he agreed that I should proceed with it... So I had the procedure done almost exactly a month from the orginally scheduled date.
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Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundless(granules?) nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 01-27-2012 at 04:33 PM..
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Old 01-23-2012, 06:37 PM   #23
Paula O
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Re: Dying of other cancer...

Thanks for sharing the picture(you all were such lovely young ladies and it was fun to see a photo of you). I also appreciated hearing of your experience, Jackie.

Paula
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Old 01-23-2012, 07:43 PM   #24
Laurel
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Re: Dying of other cancer...

Jackie, I was a forward. Not much of a ball handler, me.
__________________

Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

11 Years NED
I think I just might hang around awhile....

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Old 01-24-2012, 01:08 AM   #25
Jackie07
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Re: Dying of other cancer...

Lucy was also a forward - one of the best. The rules were changed during her senior year (separating the 'professional' teams - most of them were attached to technical schools - from other college teams) and she led our school team to win the championship in the new division.

Below is the link to a song I shared with her church friends and my teammates after her passing:

http://video.search.yahoo.com/video/...with+lyrics%29
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundless(granules?) nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 01-27-2012 at 04:48 PM..
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Old 01-24-2012, 07:20 PM   #26
chemteach
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Re: Dying of other cancer...

Jackie, I am so sorry. What a wonderful teacher she must have been. She was your good friend, and because of that, we all feel a loss too. Thoughts and prayers are with you always. Janet
__________________
7/25/2011 Diagnosed DCIS and IDC on left from biopsy.
8/9/2011 Bilateral mastectomy
7mm clear margins Stage 1b, grade 3, 0/4 SLN ER- PR+ Her-2/neu +
9/19/2011 Started TCH every 3 weeks, TC for six cycles, Herceptin for 1 year

May all of your dreams bloom like daisies in the sun....
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Old 01-25-2012, 04:46 AM   #27
Paula O
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Re: Dying of other cancer...

That's a beautiful song of comforting truth, Jackie.

((Hugs))),

Paula
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Old 01-25-2012, 11:48 PM   #28
Adriana Mangus
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Re: Dying of other cancer...

Jackie,

First of all my condolences for your loss.

I totally agree with you. Although I tested negative for the BRCA 1 and 2, I have to be vigilant for other type of cancers.

On my father's side all of my uncles, ----his brothers either died of stomach or colon cancer. My father passed away from a stroke at the age of 79 and was healthy almost to the end of his life until the stroke took him almost immediately.

I am seeing the obgyn and internist for ovarian/cervical and colon cancer . The obgyn keeps telling me that I will "never" develop ovarian cancer. I wish I had seeing her before 1994, perhaps she already knew (you know crystal ball), I had breast cancer before I even discovered myself. SHe's a nut!! She eventually signs the referral for the transvaginal ultra sound but each time I have to fight her. Oh well.

The internist does not mind seeing me, I have a strong patient-doctor relationship with my primary doctor and since she's the one referring me, I have never had a problem with the internist. He just writes the little paper and I get schedule for the colonoscopy.

We are the ones responsible for our health, and WE must remember that no one cares about you, but yourself.

Take care,

Love,

Adriana
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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Old 01-29-2012, 03:26 AM   #29
Jackie07
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Location: "Love never fails."
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Re: Dying of other cancer...

Another cancer incident of my college basketball team...

The Captain a year behind me e-mailed us pictures of Houtzu's funeral. Included was a picture of her and another teammate who had also attended the farewell service. This teammate, a college instructor in the midst of working on her advancement dissertation, is also a breast cancer survivor (surgery in 2006). Her mother passed away two years ago from stomach cancer.

So far, out of the 12 members of the 1982 team, we've had 4 cancer incidents - all gynecological cancers. All three members with breast cancer (one also had ovarian cancer, and I've had life-long brain tumors) are alive and well (8 1/2 years with recurrence - me, 4 1/2 years, 5 1/2 years respectively.) All four of us have family members/relatives who have been diagnosed with cancer (lung, NHL, Colon, and Stomach) - makes me wonder about the HNPCC connection: http://ghr.nlm.nih.gov/condition/lyn...H0001895/drome

This is pretty close to the statistics of cancer incident in Taiwan http://www.asiatoday.com/pressreleas...er-rise-taiwan except that we've all just passed the half century mark (instead of the cut-off age - 74 - used in the statistics) None of us has the risk factor of alcohol use, betel nut consumption [major cause of oral cancer in Taiwan] or obesity. Hopefully we've matched the statistic and no more teammates will be diagnosed with cancer in the future.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundless(granules?) nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 02-01-2012 at 12:01 PM..
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Old 01-31-2012, 01:13 PM   #30
schoolteacher
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Re: Dying of other cancer...

Jackie,

I am so sorry about your friend.

Amelia
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Old 02-05-2012, 08:57 AM   #31
NEDenise
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Re: Dying of other cancer...

Jackie,
I'm so sorry for your loss. Thank you for sharing Lucy's story with us. What a lovely way to honor your friend and your friendship.
Denise
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1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. Cavett Robert
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Old 02-09-2012, 06:35 AM   #32
meo
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Re: Dying of other cancer...

Dear Jackie,

So sorry to hear you lost your dear friend. Thank you for sharing her memory with us. The pictures are lovely and I hope they give you some comfort when you look at them and remember.
Sending hugs,
Mary
__________________
dx 7/2011
open incisional biopsy w/o clear margins
IDC IIa Her2+++ ER-PR- Ki-67 72%
changed doctors
9/2011 Rt breast mast w/expander
Sentinel node neg
scans clear
10/2011 port in
10/2011 began TCH
2/2012 last TC. Herceptin through 10/2012
severe osteopenia
7/2012 prophylatic left mast, node clear
11/2012 anemic
12/2012 began MDAnderson clinical trial
1/2013 implants in, port out!
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