HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Reply
 
Thread Tools Display Modes
Old 06-05-2019, 10:01 PM   #1
Ruth
Senior Member
 
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
Long term survivor checking in!

Just logging in to give some hope out there that I clocked 16 years today as a stage 3 survivor. My daughter was nursing when we found the cancer & this past week we got her a car! I wanted to survive to make it to the point where she would remember me. I wouldn’t be just some smell that she knew but couldn’t quite place. I wanted to make it a point where I could tell her so many things about my life and she remembered my voice telling her. I’ve done that now for my baby 16 year old girl. Now I want to make it until she’s in college 🙏.
Keep fighting; reading; advocating for yourselves & ALWAYS dream big.
Thank you Herceptin. Thank you Dr Slamon & all the women before me. Thank you to all who supported me & encouraged me. Thank you to life. Love it ladies and gents. Live life to the fullest that you can.
Hugs 🤗
Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~

Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
Ruth is offline   Reply With Quote
Old 06-06-2019, 06:07 AM   #2
DianaMK
Senior Member
 
Join Date: Mar 2011
Posts: 64
Re: Long term survivor checking in!

Thank you for sharing! Wishing you many more years to share with your family. I am a 9 year stage 4 who has gotten the greatest blessings, my two granddaughters (5 and 3). May God continue to bless you, too.
__________________
12/2006 right lumpectomy - HER2-Stage 1
A/C x 4
Radiation
Herceptin - one year
6/2010 - Stage 4 - lung and skin mets
Lung resection
TCH x 6
12/2010 - right mastectomy
On Herceptin
Scans every six months
11/2013 - stable continue to watch spot on lung
Continue on Herceptin
6/2016 - 6 years Stage 4 - stable - continue Herceptin
DianaMK is offline   Reply With Quote
Old 06-06-2019, 01:48 PM   #3
Laurel
Senior Member
 
Laurel's Avatar
 
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 1,956
Re: Long term survivor checking in!

Thank you, Ruth for the inspiring words. Congratulations on your sweet 16!
__________________

Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

11 Years NED
I think I just might hang around awhile....

Laurel is offline   Reply With Quote
Old 06-06-2019, 08:42 PM   #4
Bunty
Senior Member
 
Join Date: Jul 2011
Location: Sydney, Australia
Posts: 458
Re: Long term survivor checking in!

Wonderful words Ruth, and may there be many more years ahead for your dreams to be fulfilled.

I'll be 19 years in December since first diagnosed, and 12 years in October since Stage IV diagnosis. I give thanks every day, particularly to my wonderful and dedicated medical team. I've been seeing the same oncologist since the original diagnosis.

Best wishes, Marie
Bunty is offline   Reply With Quote
Old 06-07-2019, 01:40 PM   #5
caya
Senior Member
 
caya's Avatar
 
Join Date: Jan 2007
Location: Thornhill, Ontario Canada
Posts: 2,301
Re: Long term survivor checking in!

Thanks for checking in Ruth! I think it's important for the newly diagnosed to see posts like this from long term survivors.


I'll be 13 years out from diagnosis this October.


all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
12 Years NED!!
caya is offline   Reply With Quote
Old 06-07-2019, 02:11 PM   #6
tricia keegan
Senior Member
 
tricia keegan's Avatar
 
Join Date: Nov 2005
Location: Ireland
Posts: 3,412
Re: Long term survivor checking in!

Wow Ruth, congratulations!! I'm hoping for fourteen years in two weeks and just awaiting results of my Mammo. Delighted to still be here and grateful as you are for Herceptin, wishing you many more years of health and happiness.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
tricia keegan is offline   Reply With Quote
Old 06-10-2019, 08:18 AM   #7
Donna H
Senior Member
 
Join Date: May 2014
Posts: 240
Re: Long term survivor checking in!

Love these posts! I am five years since diagnosis so it is really encouraging to hear of long term health, wellness and living life from y'all!! Thank you and congratulations.
Donna H is offline   Reply With Quote
Old 06-12-2019, 05:33 PM   #8
jaykay
Senior Member
 
Join Date: Oct 2012
Posts: 621
Re: Long term survivor checking in!

Such great news from all the long term survivors! I’m almost 7 years out from my second diagnosis and I echo Donna’s thoughts.
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
jaykay is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 09:26 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2019, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007
free webpage hit counter