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Old 05-10-2014, 10:44 PM   #1
Paty
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Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
Re: Checking In

Glad to hear from you again Kim! Hope things get easier for you on the way ahead. God Bless you.
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Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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Old 05-11-2014, 12:57 AM   #2
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Re: Checking In

Hello Kim! Thank you for checking in. You went through a lot this past year. I am so sorry for the loss of your sister. The good news is that you are able to ride your horse again. It is so important. I am very happy that the combo is keeping you stable and I hope you will feel better and better. Michka
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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Old 05-11-2014, 11:10 AM   #3
Kim in CA
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Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
Re: Checking In

Thanks girls for your kind replies.

Even though the last year has been a hard (one I would not want to relive) I am even more determined to make everyday count.

Deciding to move was a huge decision for us, as we had spent years making our home ( a fixer upper) into a very comfortable and functional horse property. The only problem was we were too far away from our grandkids and we didn't like the weather. I told my hubby that however many years I had left on this earth, I didn't want to spend it being cold! After a couple years researching locations and properties online, we decided to take the leap. We listed our house and it sold the first week.

We bought another fixer upper on 30 acres, and have put a manufactured home on the opposite end of the property for our daughter and her family. Now we get to see the grandkids whenever we want, and we are working to make our little "family farm" a reality. The bonus is I get to share my horses with them, and the joys of country living, that they would not have otherwise known. The weather here is awesome and we can actually grow all kinds of vegetables that just never thrived where we lived before. This place is going to be a lot of work, but the benefits far outweigh the negatives, and so far I'm in heaven!

Kim
__________________
Diag. Feb 1997 4.5cm IDC <10%ER+, PR-. 5 out of 36 nodes +. Mastectomy followed by 3 rounds Adriamycin/Cytoxin.


5/1997 Hi Dose Chemo w/ Stem cell rescue. Spent 4 weeks in isolation ward. Then 6 weeks radiation.

9/2001 widespread mets to liver. 8 mos Taxotere/Herceptin brought me almost to NED. Stop Taxotere & add Femara .

11/2002 liver resection to remove spot that turned out to be necrosis. Officially NED!

7/2003 Tumor markers rising add Xeloda Disastrous reaction, 8 days hospital, but tumor markers came back to normal!

June -Dec 2004 UW Vaccine Trial.

7/2005 MRI single 11mm brain met
8/2005 Gamma Knife.

Brain MRI @3 months NED!

2006-2011 brain/body still NED

8/04/11 Taking Herceptin break, will monitor with tumor markers.

6/20/12 Tumor markers begin to rise. CA15-3 is 31.3 and Her2 Serum is at 17.1 Decide to repeat in one month.

7/23/12 CA15-3 now 49.3
Her2 Serum 26.8

8/6/12 Back on Herceptin
CA15-3 now 76
Her2 Serum now 49

11/7/12 Add weekly Taxotere for 4 cycles

2/2013 Stopped Taxotere added Perjeta. MRI shows approx. 50% reduction liver mets. CA15-3 still elevated @ 55. Will continue on just Herceptin & Perjeta.

November 2014 Continuing on Herceptin, Perjeta, and
Femara indefinitely. Guess I'm NED again, but watching those tumor markers carefully!

Dec. 2015 PET scan reveals mass in perirectal area of abdomen.biopsy confirms. Still Her2+, but no longer ER+. Bye bye Femara

Jan 2016 Begin Kadcyla

March 2016 PET scan shows tumor now barely visible, still NED everywhere else.
2016/2017 continue Kadcyla

November 2017 brain MRI reveals small focus of T2 hyperintensity with possible 4mm enhancing nodule. Short term follow up MRI suggested. Stay tuned...
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