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Old 08-10-2010, 08:22 AM   #1
juanita
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Location: indianapolis, indiana
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Smile hi all

I still don't have internet at home. use it at the library and don't usually stay on long except to check my e-mail and was applying for jobs. my divorce was final the middle of june and my husband now has a new "love of his life" which is ironic cuz till it was final he kept telling me i was the one and only he'd have. but i am glad for him. i'm still not allowed to have dilly at my house alone, have to sit out at ex's with her. that kills me cuz that little girl was a mini-me from the day she was born. hopefully my daughter will grow up someday and realize the divorce wasn't about her and let me see dilly. i did find a job. started it 2 weeks ago. i only applied there because my boyfriend brought me the application and kept nagging me to get it filled out and turned in. and i was hired in as a team leader! i also get insurance starting in november. i work at the indpls airport in some of the shops there. the company i work for runs 8 of them there. hardest part was finding dress shoes that don't kill my feet. so if you are flying out of the indpls airport i might be there! happy birthday and congratulations to everyone who celebrated since the last time i was on.
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dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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Old 08-10-2010, 08:34 AM   #2
caya
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Location: Thornhill, Ontario Canada
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Re: hi all

Glad you checked in Juanita. I hope your new job brings a fresh start for you.

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!

Last edited by caya; 08-11-2010 at 07:07 PM..
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Old 08-10-2010, 03:33 PM   #3
schoolteacher
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Re: hi all

Glad to hear from you, Juanita.
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Old 08-10-2010, 04:52 PM   #4
StephN
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Location: Misty woods of WA State
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Re: hi all

Thanks for giving us the update, even though not all was great. (Sorry to hear about a rift that keeps Dilly away from you right now.)

Glad you are resettled and have a decent job, so you can hold your own. Be sure and soak those feet after a day on those hard old airport floors.

Thanks for the wishes, and the same back to you.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 08-10-2010, 06:38 PM   #5
PinkGirl
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Re: hi all

Thanks for checking in Juanita ... sorry about all the "stuff" going on
but it sounds like things are moving in the right direction for you. Don't
be a stranger!
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Old 08-10-2010, 08:01 PM   #6
ElaineM
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Wink Re: hi all

Thanks for the update. It sounds like you are moving forward very well. Take good care of yourself. Thanks for the good wishes.
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ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
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Old 08-10-2010, 08:23 PM   #7
sassy
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Re: hi all

Hey Juanita, glad some things are moving in the right direction and hoping all the others will follow soon.

Good to hear from you.

All good wishes....
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Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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