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04-30-2010, 05:26 AM
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#21
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: 5 yrs. have past..
Thank you all for your kind well wishes. It never stops amazing me how the collective thoughts and feelings of our special group are so powerful. What a force!
Amelia - I remember your first post...you are one big Brave Lady!
Barb - You are our Poster Lady 26 yrs! Now your sister will start packing up the years also!
Paty, Caya -You will most certainly have the joy soon!
Tricia, Mary JO, Mcgle, - Welcome soon to the Elite 5yr Club as Steph calls it! We are cheering you over the line...
Steph - You are our big sister and I thank you.
Bill- Ahhhh Bill - you know what you mean to me.
Becky - We are in this together forever! What the heck would I do without you? Love ya back sis ta....
MJO - Your warm smile keeps everyone happy.
Lizm100 - You are on your way and we are here waiting to cheer you in.
Yorkiegirl - I think we now need to start the Terrific Ten Club...
Jackie07 -Laurel, Kris, Ikc - You have made many days special for me with your thoughtful and heartfelt posts.
Joe - Thank you for the article I loved it and I sent it to a friend who is now stage IV and fighting hard. You always seem to know what we need and when we need it. Love you.
Well if I forgot anyone please forgive...know that I love you all...and I mean it from my heart, I carry each of you with me.
Hugs,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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04-30-2010, 04:28 PM
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#22
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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Re: 5 yrs. have past..
Adding my late congratulations to you. You were an
inspiration to me since I was one year behind you and
read all your posts. Keep up the good work and I will
follow.
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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04-30-2010, 06:34 PM
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#23
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Member
Join Date: Feb 2010
Location: South Jersey
Posts: 22
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Re: 5 yrs. have past..
Happy five-year anniversary, Jean!!! You are certainly an inspiration to us newbies on the Board. Your caring, sage postings are always a bright spot when I visit. Enjoy your happy time!
__________________
Routine mammo 1/8/10
Ultrasound 1/22/10
Biopsy 2/2/10 - IDC, 2 cm, ER+, PR+, HER2 3+, Grade 3 (8/9)
Liver MRI (for other reason) on 2/12/10 clear - no mets
PET scan 3/5/10 - arm pit lymph nodes "lit up", no other areas of concern other than breast tumor
Lumpectomy 3/10 - tumor and all lymph nodes on left side removed
Pathology report results 3/19 show only 2 of 23 nodes removed were malignant, tumor margins were positive - additional surgery required
Second surgery 3/31/10
Pathology results 4/13/10- all margins clear
Stage 2a bc
Started TCH 4/30/10- finished 8/12/10 (2 more weeks of Herceptin to go)
9/2/10 - started Herceptin every three weeks
PET scan 9/18-10 - all well except shadowy area in lung
Started radiation 9/7/10 - finished 10/21/10
Aromasin started 11/1/10 (hate it!)
PET scan 12/13 area in lung is smaller - probably just inflamation
Aromasin stopped 1/14/11 due to side effects
Currently on AI holiday
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04-30-2010, 06:36 PM
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#24
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Senior Member
Join Date: Oct 2006
Location: Southern California
Posts: 900
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Re: 5 yrs. have past..
Five down and many, many more to go. Congratulations Jean!
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault
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05-02-2010, 06:35 PM
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#25
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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Re: 5 yrs. have past..
Congratulations!!!!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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05-03-2010, 12:07 AM
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#26
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Re: 5 yrs. have past..
Jean, congratulations and I absolutely mean it with sincerest love and gratitude.
Maryanne
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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05-03-2010, 12:12 PM
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#27
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Re: 5 yrs. have past..
Congratulations, Jean!! 5 years!!! I, too, am nearing my 5 year mark and we have communicated through the years of various issues...Keep it up, Girl!!! Five years is a long time!!! XO Suzan
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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05-04-2010, 10:49 AM
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#28
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: 5 yrs. have past..
Suzan,
Thank you - and soon you also will be a member of the five yr. club...
Harrie - Sending you years of love back to you.
To our new members....never lose hope!
My thanks to all my sisters!
With Love to all,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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05-04-2010, 11:51 AM
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#29
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Senior Member
Join Date: Jun 2007
Posts: 216
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Re: 5 yrs. have past..
Many, many congratulations , Jean.
Sorry its so very late to congratulate you.
I intend to join the 5 year club early next year.
Janie
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05-04-2010, 11:54 AM
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#30
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: 5 yrs. have past..
thank you for the support...
Look forward to your 5yr milestone...
best wishes
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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05-05-2010, 03:47 PM
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#31
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Senior Member
Join Date: Apr 2008
Posts: 1,477
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Re: 5 yrs. have past..
Dear Jean,
Many congratulations to you and thank you for your lovely post. You were the first person to send me a private message and you have helped me so much and given me such wonderful advice on so many occasions. Your approach to life at this point- not sweating the small or large stuff- is some of the best advice you could give us. I keep trying Jean and am slowly getting better- you have been an inspiration to me. Thank you for all you have done for me and everyone else on the site.
Love,
Karen
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05-05-2010, 06:55 PM
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#32
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Re: 5 yrs. have past..
Congratulations!
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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05-05-2010, 10:11 PM
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#33
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Re: 5 yrs. have past..
Woohooooieee Jean! Many congratulations!!!!
Marcia
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05-06-2010, 06:47 AM
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#34
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Senior Member
Join Date: Jan 2009
Location: Colorado Springs, CO
Posts: 430
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Re: 5 yrs. have past..
Jean,
Congratulations!! This is such fantastic news. I loved your story about the women in the scarf. I have taken a break from the forum, all the sad news was getting too much for me. I count you as one of my friends, hope that we can meet in person some day!!
Four more years to go before I join the 5 year club, but I WILL get there!
Alice
__________________
9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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05-06-2010, 08:13 AM
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#35
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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Re: 5 yrs. have past..
Congratulations, Jean! Your post was so inspiring! I was so touched by your story of the lady with the scarf and the compassion you felt for her because you understood. I am also sending my love and best wishes for many more years of "dancing with NED". No one else quite understands the elation and humility we feel after dreading the semiannual PET or CT scan as it approaches, and then being told we've "passed" for another year! I am so happy for you! Hugs, Tricia
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05-09-2010, 03:18 PM
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#36
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: 5 yrs. have past..
Hi Jean,
I just wanted to say congratulations on your five yr milestone. Wooo hooo! (I am up and doing the happy dance.)  I am so glad you decided to share this with us. It is so important for the newly dx to run across posts like yours. It offers so much hope and that is so important when first starting out on this journey.
You are a true inspriation on this board, and I'd like to peronally thank you for sticking around and continuing to offer advice, support and help to those that need it. Your such a blessing in so many ways. So here's to you and NED remaining a happy couple till the end of time. 
Much love coming your way.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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05-10-2010, 08:45 AM
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#37
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Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
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Re: 5 yrs. have past..
Congratulations Jean! Thanks for sharing your good news! We are all starved for good news - always. Wishing you a long and healthy life.
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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05-10-2010, 06:49 PM
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#38
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Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
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Re: 5 yrs. have past..
Jean,
I am so happy for you! I'm half-way there at 2 1/2 years.
Yippee! WooHoo! Someday I'll be just like you!
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes
Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"
Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla
Reconstruction: TRAM flap, partial loss, Revision
The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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05-13-2010, 06:14 AM
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#39
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Re: 5 yrs. have past..
Jean
So sorry I am a month late on congratulating you on your 5 years...what a great milestone, and well deserved.
You have been so much help to me and others on this journey...may you be blessed with another 50 milestones to add to your collection.
Celebrate again for me!!!!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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