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01-25-2010, 05:19 PM
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#81
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Senior Member
Join Date: Sep 2006
Location: Marengo, IL
Posts: 518
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Re: Irene From Tampa
Welcome home Irene. So many thoughts and prayers are with you, John and your family.
John, thank you for keeping us informed. What a beautiful lady you are Irene (your new photo). You are all loved.
Donna
__________________
Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
Last edited by DonnaD; 01-25-2010 at 05:22 PM..
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01-25-2010, 07:48 PM
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#82
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: Irene From Tampa
Glory be! She did not want to pass at the hospital and John knew that.
I am wondering if the treatments for Irene's brain might be helping with her awareness. Hoping that some of the stress is off the important areas and that will make her more sensitive to stimuli.
No one can really rest in the hospital anyway. Nothing like home sweet home.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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01-26-2010, 05:42 AM
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#83
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: Irene From Tampa
Dear John,
I'm so glad she's home, knowing that she is loved and cherished and able to smile.
You people are amazing!
Hugs
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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01-26-2010, 09:07 PM
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#84
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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Re: Irene From Tampa
Dear friends -
Irene passes away tonight around 10:30.
Peacefully and quietly - no pain - no anquish.
Think of her often...and smile.
Love to all - John
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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01-26-2010, 09:35 PM
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#85
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: Irene From Tampa
John, I'm so glad Irene made it home. There is no doubt in my mind that is why she held on a little longer. I have had Irene on my mine daily and although I knew this was coming it does not make it any easier. As I type the tears come. I've said it before & I'll say it again. Irene was a true inspriation to me & I will so miss her presents on this board. But I will forever hold her in my heart. John, my sincerest condolences to you and the family at such a difficult time.
Sending much love to you and your family. God bless you all.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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01-26-2010, 10:34 PM
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#86
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Re: Irene From Tampa
John,
God bless you and your family, she will be missed so deeply by all of us. My prayers go for you and your entire family. My heart is broken.
Paty
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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01-27-2010, 12:05 AM
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#87
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: Irene From Tampa
Dear John,
Thank you for letting us know. Hearing she was at peace and surrounded by love when she passed makes it easier for me to accept she is no longer on this planet, physically. Her spirit will be with us for as long as we live. She was an exceptional women with a great sense of humor. I hope you will be at peace with this too. My sincere condolences to you and all who loved her.
We will not forget.
Love
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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01-27-2010, 05:05 AM
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#88
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Senior Member
Join Date: Jun 2009
Location: Mississippi
Posts: 253
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Re: Irene From Tampa
Dear John,
I never met Irene in person but feel like I've known her a long time and will miss her terribly. Though I know she is in heaven where there is no cancer I still sit here crying. Praying that peace above all understanding may blanket and fill your heart and carry you forward.
Anja
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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01-27-2010, 07:31 AM
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#89
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: Irene From Tampa
John,
You and the family are in my thoughts and prayers.
Amelia
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01-27-2010, 02:01 PM
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#90
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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Re: Irene From Tampa
Dear friends, family & loved ones.....
I'll be brief as too many words can prove difficult.
Its been decided that services to honor Irene will be on Sunday, January 31st, 2010 @ Garden of Memories Funeral Home & Cemetery.
All the many who's lives Irene touched are welcomed - all of you.
Family is asked to arrive by noon for private time with Irene afterwhich all others are invited to join in remembering, celebrating and embracing her life.
Speakers will be welcomed and a chapel service will be done around 2. Afterwhich, a short ride will take Irene to her final resting place.
It was initially considered that a donation to The Breast Cancer Society (in lieu of flowers) would be appropriate. However, this is Irene's day and although they do good work - I ask that you fill the room with flowers.
Garden of Memories Funeral Home & Cemetery
4207 East Lake Avenue
Tampa, Florida 33610-8035
Phone: (813) 626-3161
Following graveside services, you are welcomed back to our home at: 14720 Bellamy Road, Tampa, Florida 33625 to relax,
be amongst friends and reminice.
All my love - John
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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01-27-2010, 03:42 PM
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#91
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: Irene From Tampa
Thanks, John, for the info for the service in Irene's honor.
They have gorgeous flowers all year around in Florida!
Irene was an active and valued member of this support group (over 550 posts) for five years.
I am sure she would be pleased to see donations to HER2support.org in her memory.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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01-27-2010, 05:37 PM
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#92
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Senior Member
Join Date: Nov 2009
Location: western ma
Posts: 280
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Re: Irene From Tampa
dear john - i have not been on this site long enough to have 'known' irene at all, but i have been following her story for some time now. i know in my heart that irene held on long enough to celebrate her birthday and to come home to be in the place she loved with the people she loved. it must have given her great peace. i lost my husband to cancer 3 yrs ago. he did not make it home from the hospital, but he did hang on long enough for me to make it there when they called me at 4:30 AM as he suffered a heart attack that actually took his life. i know he held on, just like irene, so that i could tell him i loved him and that he was the best thing that ever happened to me. i am SO glad that she got to be with all of you for her birthday and for her last day and that you got to have her close by. i have been very moved by your intense devotion and by irene's spirit. when she slipped from this earth, perhaps she really did fade away from the pure joy of being home and with you.
valerie
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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01-27-2010, 05:40 PM
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#93
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Re: Irene From Tampa
John, please accept our prayers and condolences.
__________________
For Nicola
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01-27-2010, 05:54 PM
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#94
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: Irene From Tampa
I am so sorry, John. I wish you comfort.
Barb A.
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01-27-2010, 10:41 PM
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#95
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Senior Member
Join Date: May 2009
Posts: 510
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Re: Irene From Tampa
I am so sorry for your loss, John. May you find strength to go on with your angel now in heaven. Your love for her has inspired me and your posts have made me cry. I can see your beautiful Irene in a heavenly garden full of flowers with a big light coming out of heart and shining in on you.
My prayers go out to you and your family in this difficult time.
__________________
ER+ (30%)/PR-/HER-2+, stage 3
Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin
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01-28-2010, 03:05 PM
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#96
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Re: Irene From Tampa
Irene was such a special person and member of this group. I so looked forward to her inspiring posts. I will truly miss her. John, please accept my condolences. You and your family remain in my thoughts.
Barbara H.
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01-28-2010, 07:00 PM
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#97
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Senior Member
Join Date: May 2006
Posts: 157
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Re: Irene From Tampa
John,
I am so sorry and sad to know about Irene's passing. I have been praying for her since she went to the hospital. She was a very special lady and an inspiration to all of us. I liked to read her posts very much. She will be missed.
Irene was blessed to have you in her life, and so were you.
I am praying for Irene, you and your family. My deepest sympathy.
Hugs,
KarlaV.
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01-28-2010, 09:39 PM
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#98
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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Re: Irene From Tampa
Fernandez-Puleo, Irene 64 or Tampa was taken by the Angels on January 26, 2010 following a long, courageous and inspiring battle with breast cancer. Irene passed away peacefully and tranquilly at her home, surrounded by her loving family, to begin a journey anew.
Many do aspire, but not all do touch as many hearts as Irene had during her lifetime.
A loving Mother, Nana and Partner, Irene was a beacon of hope, confidence and happiness throughout her life. Never more so than during her 14 year battle against breast cancer.
Born and raised in Tampa, she shared with those she loved and those fortunate to know her an inner strength and love of life that marks her passing…that leaves a void.
Daughter of Paul Puleo & Josephine (Tamargo) Puleo, Irene is survived by daughters Michelle Chaplin (Todd), Kimberly Karpodinis (Jim), Andrea Stachewicz (Shawn), nine beautiful grandchildren, Brother Paul Puleo Jr. and a large and loving extended family. For safe keeping, she carries the heart of long time Partner and Soul Mate John Parachini with her.
A visitation will take place on Sunday January 31st, 2010 from 12:30 to 2:00 PM at the Garden of Memories Funeral Home. Services to honor Irene and her life will begin at 2:00PM and internment will follow at the Myrtle Hill Memorial Park.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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01-28-2010, 10:24 PM
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#99
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Senior Member
Join Date: Jan 2009
Location: Colorado Springs, CO
Posts: 430
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Re: Irene From Tampa
John,
I have not been able to post until now. My heart has just been too heavy with grief. I only knew your lovely Irene "electronically" through this site. Yet that is what is so wonderful about this site . . . it enables all of us to reach across the expanse of this world and be touched by one another.
Irene was a woman who was special to me in the brief time I have been posting here. I was always amazed by her strength and her fortitude, and now I am touched by the way you have brought us into your life. There is one thing that speaks volumes about your beautiful wife, and that is in the phrase you wrote . . . " her 14 year battle against breast cancer. " I don't know that there are many that would be willing to fight for so long.
Please accept my condolences for your great loss. The loss is so great because the love was so deep. May you in time find the comfort that you deserve.
Sincerely, Alice
__________________
9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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02-06-2010, 09:02 AM
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#100
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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Re: Irene From Tampa
Irene was laid to rest on Sunday, January 31st 2009 following a nice service within which many spoke of her affect on there lives.
The "spirit" of the room buoyed my own.
The many and continual greetings...hugs...and good wishes kept my thoughts positive...and excepting for some darker moments (to be expected) I've been able to maintain an even keel about things.
One of the photos I took in Italy....the "reach out and snap a shot" of our two heads pressed together was cropped and placed beside her casket. Irene looks radiant. It was accompanied by the room full of flowers I'd hoped for and a myriad of photos and clippings that marked her life. That picture hangs on the wall of the family room now...so I sense her still with me.
At her gravesite, one of her healthcare providers whispered something to me...that Irenes doctor...Doctor George...had told her that Irene was his longest living patient.
Her continual fight for additional life...her struggle for additional time to love and learn while on this earth...had bought her that time...gained her that experience.
Now its up to you.
Its up to you to carry on your own fights...to carry Irene's flag...together with flags of the many cherished loved ones and friends who struggle still or you have lost...another 14 years...until a cure is found...until a suitable maintenance drug is discovered...or until you or your loved ones are no longer in jeopardy.
As with the spirit in my heart...
As with that picture on my wall...
Irene will be with you all as you carry forward.
All my very best...
All my love...care...appreciation...and best hopes go out to each of you.
John
2/6/10
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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