 |
|
12-17-2009, 04:59 AM
|
#1
|
|
Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
|
Have you heard from Joy recently?
If you've heard from Joy or Jennifer lately, would you let us know how Joy is, please? ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
|
|
|
|
12-17-2009, 05:01 AM
|
#2
|
|
Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
|
Re: Have you heard from Joy recently?
Sure wishes we would hear from one of them. Always in my heart....
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
|
|
|
|
|
12-17-2009, 06:34 AM
|
#3
|
|
Guest
|
Re: Have you heard from Joy recently?
This is Jennifer, joys sister. Joy is now in hospice care at home. Treatment was not working, her bilirubin has Ben steadily climbing. Last Friday it was 6.8 other liver functions high as well. She weighs about 85-90 lbs now. Yesterday is the most she slept almost all day. Sorry I haven't posted much her steady decline has been so hard on our parents, her kids and me I've just been trying to hold it together and work too. All your love and support is always been greatly appriciated. I'll keep you all posted. All my love, Jennifer
|
|
|
|
|
12-17-2009, 06:59 AM
|
#4
|
|
Senior Member
Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
|
Re: Have you heard from Joy recently?
Jennifer,
I am so sorry to hear Joy is declining. It sounds like she has many around who love her. What a blessing for her. I am praying for Joy and her family.
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!
1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."
|
|
|
|
|
12-17-2009, 07:25 AM
|
#5
|
|
Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
|
Re: Have you heard from Joy recently?
Jennifer,
Thanks for letting us know how Joy is doing. All of you will be in my prayers.
Amelia
|
|
|
|
|
12-17-2009, 09:02 AM
|
#6
|
|
Senior Member
Join Date: Oct 2005
Posts: 823
|
Re: Have you heard from Joy recently?
Oh Jennifer my heart goes out to you, Joy's kid's and your parents during this difficut time. I will continue to pray for Joy.
What amazing woman Joy is.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
|
|
|
|
|
12-17-2009, 09:20 AM
|
#7
|
|
Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
|
Re: Have you heard from Joy recently?
Jennifer,
I am so sorry to hear this news. My prayers continue for Joy and all of you.
hugs,
shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
|
|
|
|
|
12-17-2009, 09:45 AM
|
#8
|
|
Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
|
Re: Have you heard from Joy recently?
I am so sorry Jennifer. Joy is such a wonderful, sweet person. I am praying for all of you.
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
|
|
|
|
|
12-17-2009, 10:40 AM
|
#9
|
|
Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
|
Re: Have you heard from Joy recently?
So sorry to hear Joy is not doing well. I'm sure it is very difficult for all the family, especially at this time of year.
I am sending big hugs and prayers.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
|
|
|
|
|
12-17-2009, 12:04 PM
|
#10
|
|
Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
|
Re: Have you heard from Joy recently?
Jennifer, your burden is heavy, but your heart is so very big and your family is fortunate to have you. Joy has been able to inspire us so many times with her ability to love so deeply and hope so high! I could just feel that sparkle so many times when her spirits would soar. I'm so sad to hear the news that she is in hospice care, but so grateful that she is surrounded by the love you all give her.
Please give her a hug and kiss for us and let her know that our caring for her continues to grow and our love and prayers are daily sent her way!
Praying for and loving you all, ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
|
|
|
|
|
12-17-2009, 12:33 PM
|
#11
|
|
Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
|
Re: Have you heard from Joy recently?
So very sad to hear about Joy. So wonderful that
she is surrounded by loved ones. I will pray for her
everyday and her family also.
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
|
|
|
|
|
12-17-2009, 12:46 PM
|
#12
|
|
Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
|
Re: Have you heard from Joy recently?
Could she try a low-dose metronomic approach with Xeloda(capecitabine)? Has been shown to work even when previously failed at typical dose. Best taken in evening. Could be combined with cyclophosphamide which seems best in morning.
Also:
Nat Immun. 1998;16(1):27-33.
Biotherapy with the pineal immunomodulating hormone melatonin versus melatonin plus aloe vera in untreatable advanced solid neoplasms.
Lissoni P, Giani L, Zerbini S, Trabattoni P, Rovelli F.
Division of Radiation Oncology, San Gerardo Hospital, Monza, Milan, Italy.
The possibility of natural cancer therapy has been recently suggested by advances in the knowledge of tumor immunobiology. Either cytokines such as IL-2, or neurohormones, such as the pineal indole melatonin (MLT), may activate anticancer immunity. In addition, immunomodulating substances have also been isolated from plants, particularly from Aloe vera. Preliminary clinical studies had already shown that MLT may induce some benefits in untreatable metastatic solid tumor patients, whereas, for the time being, no clinical trial has been performed with aloe products. We have carried out a clinical study to evaluate whether the concomitant administration of aloe may enhance the therapeutic results of MLT in patients with advanced solid tumors for whom no effective standard anticancer therapies are available. The study included 50 patients suffering from lung cancer, gastrointestinal tract tumors, breast cancer or brain glioblastoma, who were treated with MLT alone (20 mg/day orally in the dark period) or MLT plus A. vera tincture (1 ml twice/day). A partial response (PR) was achieved in 2/24 patients treated with MLT plus aloe and in none of the patients treated with MLT alone. Stable disease (SD) was achieved in 12/24 and in 7/26 patients treated with MLT plus aloe or MLT alone, respectively. Therefore, the percentage of nonprogressing patients (PR + SD) was significantly higher in the group treated with MLT plus aloe than in the MLT gorup (14/24 vs. 7/26, p < 0.05). The percent 1-year survival was significantly higher in patients treated with MLT plus aloe (9/24 vs. 4/26, p < 0.05). Both treatments were well tolerated. This preliminary study would suggest that natural cancer therapy with MLT plus A. vera extracts may produce some therapeutic benefits, at least in terms of stabilization of disease and survival, in patients with advanced solid tumors, for whom no other standard effective therapy is available. |
|
|
|
|
12-17-2009, 01:59 PM
|
#13
|
|
Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
|
Re: Have you heard from Joy recently?
So very sorry to read this Jennifer. With all you are going through, thank you so much for taking the time to let us know. Joy, truly was a "JOY" to each of us on this board. Always an ecouraging word...always upbeat and loving.
May God's Peace surround you all at this time.
Love and hugs,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
|
|
|
|
|
12-17-2009, 05:29 PM
|
#14
|
|
Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
|
Re: Have you heard from Joy recently?
Hi Jennifer,
Please tell Joy how much I enjoyed her postings over the years. She has such a sense for living and enjoying a full life in spite of her difficulties. My heart breaks for her and for her family. I wish a miracle would come her way.
Thank you again for posting, Jennifer. Joy and her extended family are always in my thoughts.
Thinking of you, too.
Barbara H.
|
|
|
|
|
12-17-2009, 07:10 PM
|
#15
|
|
Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
|
Re: Have you heard from Joy recently?
Jennifer,
It is heart breaking to hear this news. Joy is very special to so many of us. Your Mother named her well.
I keep you and your family in my prayers for strength, please know Joy and the family are thought of and loved deeply.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
Last edited by Jean; 12-17-2009 at 07:18 PM..
|
|
|
|
|
12-17-2009, 07:11 PM
|
#16
|
|
Senior Member
Join Date: Feb 2006
Location: Vancouver Canada
Posts: 72
|
Re: Have you heard from Joy recently?
It breaks my heart to hear this news and I am so sad. Joy is such a lovely, giving person - you can feel it coming through when you read her posts. I'm sure she would be a fun and wonderful friend. OMG this is so sad, this is not fair, she has so much to live for and was so full of life ...she deserves way better. Jennifer, I am so sorry, for Joy, for her children, for you and your family. Words are failing me...she is very special to her Her2 family. I wish you all peace, comfort and love.
__________________
Dx Nov.04 - Stage 1, Grade 3, widespread high grade DCIS, Paget's disease of nipple, 8mm tumor invasive DC (ductal carcinoma), ER/PR-, HER2+++
Nov.04 - left mast., clear margins, 6 of 6 nodes clear
Feb.05 - began EC chemo, 4 rounds (every 3 weeks)
Aug.05 - began Herceptin every 3 weeks for 1 year
Aug.06 - ended treatment
NED
|
|
|
|
|
12-17-2009, 07:19 PM
|
#17
|
|
Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
|
Re: Have you heard from Joy recently?
Thank you Jennifer for posting. It is sad news indeed. Joy is...well...she is JOY. xo Suzan
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
|
|
|
|
|
12-17-2009, 07:52 PM
|
#18
|
|
Senior Member
Join Date: Feb 2006
Posts: 437
|
Re: Have you heard from Joy recently?
Thank you for letting us know.... I am sorry to hear this. her children, and her parents are in my prayers
__________________
Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
|
|
|
|
|
12-17-2009, 08:52 PM
|
#19
|
|
Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
|
Re: Have you heard from Joy recently?
I am so sorry to hear about Joy's decline. You are all in my thoughts and prayers. My heart goes out to you all.
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
|
|
|
|
|
12-17-2009, 09:07 PM
|
#20
|
|
Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
|
Re: Have you heard from Joy recently?
Dear Jennifer,
Thank you for sharing this sad news. My heart and prayers are with you and your family.
Hugs and Prayers,
Lexi
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 12:08 PM.
|
Linear Mode
