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04-05-2007, 08:13 PM
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#1
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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? Wondering WHY I was not given RADS..
Dear ladies (and gents)
I have been reading about so many (with similar tumor profiles)that received radiation after their masts. I am wondering (better late than never I suppose) WHY I didnt have rads? My largest tumor was located next to my chest wall and prior to masts my surgeon had said that he might have to remove the tissue beneath the skin and in front of the ribcage (fascia). In the end he did not ,but I was left with skin so thin that the slightest scratch causes to bleed.
I know he had no alternative...but am still wondering about what the criteria for recieving rads is/was? I am sure my Onc told me at the time,but as with all things pre chemo,its a bit of a blur.
Thanks for your responses!
Marcia
Last edited by Soccermom; 04-09-2007 at 05:20 PM..
Reason: correction
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04-06-2007, 06:05 AM
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#2
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Senior Member
Join Date: May 2006
Posts: 93
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It may have come down to the pathology report after surgery. If the surgeon was able to achieve clear margins (no bad cells at the edge of the tissue he removed) then he and the radiologist may have decided to skip radiation and go strictly with chemo. Did you get a copy of your path report?
__________________
Husband to Jill
Diagnosed 10/05, age 39
R Mast 11/05
Stage II N0
Her2+ er/pr+
Revision Mast due to positive margins 12/05
TCH Chemo started 1/06
Finished TC 4/06
Tamoxifen
Finished H 12/29/06
Currently NED
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04-06-2007, 09:04 AM
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#3
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Yes I did, and yes there were clear margins...but i had multi foci ., lymphovascular invasion and 1 (4mm) node positive for metastices.
Thanks for responding,CPA!
Warmly, Marcia
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04-06-2007, 09:19 AM
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#4
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Senior Member
Join Date: Dec 2006
Posts: 136
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Marcia -
My largest tumor was 3.8 cm and a smaller one was 9 mm. I had microinvasion in one node. I did not have radiation as well. They it was explained to me (even though I too may have not been in "clear mind" when this was all being decided) was that many oncologists recommend the radiation with multiple nodes such as 3 or more.
Also, my cancer was on the left and there are risks to the heart when irridiating that side so they weigh the pro's with con's when there is only 1 or 2 nodes involved.
My guess is with you, they were able to clean those margins more then anticipated.
I too have wondered once or twice if I should have had the rads but I also question if I should be on an AI instead of tamoxifan and if I should have had my AC every two weeks instead of 3! I am never going to be satisfied!!! But that is just me; we will always question!
Maybe bring that question up one more time to your oncologist when you see him/her just for your own piece of mind.
__________________
Debra
Diag. 11/05 at age 40 triple positive
3.8 cm tumor and 9 mm tumor
Stage IIb/SN positive(no other nodes)Grade 3
Bilat. mastect. 12/05 (Rt.prophylactic) followed with AC/taxol/Herceptin/tamoxifen then switched to arimidex after hysterectomy in 12/06. August 07 switched to Aromasin due to severe jt. pain from Arimidex. Nov. 2011 No more meds and NED!
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04-06-2007, 10:09 AM
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#5
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Senior Member
Join Date: Mar 2007
Location: Italy
Posts: 32
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The same for me! I had a 4 cm tumors and 1 node with micromets, but the border was clear. The tumor was on the right. They did not give me rads.
__________________
September 2005: Diagnosed of breast cancer at age of 35
October 2006: port a cath
4 chemos (epirubicin + taxotere) before surgery
February 2006: mastectomy + 10 nodes
4 cm tumor, 1 node micromets , ER-PR-, Her2 3+
June 2006: started Herceptin
July 2006: stopped Herceptin for high heart toxicity
January 2007: reconstruction
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04-06-2007, 10:14 AM
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#6
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Good question...
Marcia,
Please update all of us as this is a very good question.
Wishing you the best.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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04-10-2007, 08:27 PM
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#7
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Thanks all...I have my bone scan and CTs on April 25th and will see my Onc on May 1st. I will put thi soine my list of questions.
Hugs,Marcia
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04-10-2007, 09:05 PM
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#8
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Senior Member
Join Date: Jan 2007
Location: Media (Wawa to be exact), PA
Posts: 104
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Radiation information
Marcia,
This link may help give y ou some answers or at best give you the right questions to ask your ONC. It is a site that I have personally found very helpful and is sponsered by my own radiologist from Main Line Health in Philadelphia.
The entire booklet for both pathology reports and treaments can be downloaded free. http://www.breastcancer.org/treatment.html.
Hope this helps, and dont forget... I'll be happy to send you some soft pretzels and Tastykakes!
Keep the faith
Melinda
__________________
DX BC 12/06
tumor .9
Lumpectomy 1/8
Mammosite radiation completed 2/10
Stage1/Grade 1
clear Margins /Nodes Neg
ER+
IHC +2 Fish +
ONCO 23
Started TCH on 3/2 for 6 rounds of TC once every three weels and a year of Herceptin every 3 weeks -
Finished everything and now on Aromasin
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04-14-2007, 02:41 PM
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#9
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Ooooo, THANKS, Melinda!YUMMMMM
Hugs,Marcia
Last edited by Soccermom; 04-14-2007 at 02:41 PM..
Reason: misspelled
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04-14-2007, 05:45 PM
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#10
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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I had a 4.5 cm tumor in my right breast. Mastectomy - margins were clear and nothing else found in breast. ONE microscopic cell in 1st sent. node and 2nd node was clear. The reason I had rads is because at the time of surgery, when both sent. nodes were checked my husband was told the nodes were clear. When pathology report came back they said they found just ONE microscopic cell in my 1st node (amamzingly and thankfully it was found) - My surgeon and I agreed that I was not going to let them go back in and remove more. We were both confident that we wouldn't find anymore and quite honestly, I simply didn't want more nodes removed. So even though I went through chemo, all were in agreement that the additional benefit of rads to that area, breast area, back/shoulder and middle of chest area was something I needed to do to cover all my bases.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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04-15-2007, 08:10 AM
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#11
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Senior Member
Join Date: Sep 2005
Location: NYC
Posts: 250
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I think it is pretty standard to forgo rads if there are fewer than two positive lymph nodes.
Funny, I am in a state of regret that I had radiation. I just developed lymphedema, which I'm sure the rads contributed to...with 15 positive nodes, they really zapped me. These treatments are not risk-free, so you may want to count yourself lucky that you were able to safely avoid them.
Jen
__________________
dx 4/05 @ 34 y.o.
Stage IIIC, ER+ (90%)/PR+ (95%)/HER2+ (IHC 3+)
lumpectomy-- 2.5 cm 15+/37 nodes
(IVF in between surgery and chemo)
tx dd A/C, followed by dd Taxol & Herceptin
30 rads (or was it 35?)
Finished Herceptin on 7/24/06
Tamox
livingcured.blogspot.com
"Keep your face to the sunshine and you cannot see the shadow." -- Helen Keller
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