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Old 10-25-2005, 04:34 AM   #1
janewalker
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Location: Normandy France
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Can anybody help please!
I shall try to be brief and not ramble for long....... I am recently diagnosed with breast Cancer. HER2 (3+) no node involvement, Er positive also. 3.5 lump removed. Currently having FEC100 x 3 then Taxotere x 3 followed by 6 weeks RT. Pre menopausal.

I am living in France although English and not quite understanding the french language as much as I would like. I understand that the governing body in France has given permission for Herceptin to be used in Adjuvant treatment for early breast cancer but my oncologist says no, she want to wait till it comes back and then use it then. I really want to be sure of my facts before I attempt to challenge her.

Can anybody help!
Thank you.
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Old 10-25-2005, 08:37 AM   #2
uma
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Dear Janewalker,
For same thing, my onc took the following path:
(1) I Did Lumpectomy
(2) FISH tested the removed lump and found Her2/Neu +, and a few nodes were affected too
(3) No ER+
(4) I Did Adriamycin & Cytoxin/Taxol/Radiation.
(5) Then completed weekly Adjuvant Herceptin for 52 weeks
(6) This has worked out very well
(7) Latest tumor marker and other tests have proved perfectly Ok.
(8) All my hair is back and better than what it was
(9) I would advice you to follow the above pattern, but take second opinon for ER+
(10) Thinking of going for E75 Vaccine

I request and welcome comments/advice from all the others in the group

Uma
Last edited by uma; 10-25-2005 at 09:28 AM.. Reason: Typo
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Old 10-25-2005, 08:52 AM   #3
Sheila
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Location: Morris, IL
Posts: 3,507
Jayne
Why wait to see if it comes back when you may prevent that by taking the Herceptin.....I would push for itl....I wish I was able to get it before I recurred! I wonder if things would be different, & I would be Stage 1 & not Stage IV.

Welcome to our site...you will find many helpful people here who have already walked the journey.
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 10-25-2005, 09:13 AM   #4
anne
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Ditto,

This is old fashioned thinking from your onc. You can quote the latest trials involving Herceptin (B-31, HERA) that do show a 50% risk reduction in recurrence for early Herceptin. Your onc. should brush up on the latest info and try to be a little more forward thinking. Be firm. Being node neg. you are somewhat at a lesser risk of recurrence but it still can't hurt.

XOXO
Anne
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Old 10-25-2005, 09:19 AM   #5
janewalker
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thank all
Thanks to you all for replying - what a wonderfully supportive site! You have made me more determined to tackle my oncologist on this. Many thanks.
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