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01-21-2016, 05:19 PM
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#1
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Senior Member
Join Date: Mar 2014
Location: UK
Posts: 563
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Zometa and dental treatment.
Has anyone had problems with dental treatment and bisphosphonates?
2 Dentists (One a friend) say OK to have treatment over next few weeks as only just going on Zometa.
My Nurse really uncomfortable and didn't want to give me 1st Zometa today because I need dental treatment. I repeated that dentist very confident that this was OK. Gave in and agreed to ask if dentist can see me earlier. Had a tooth removed last week because of this urgency and dentist not keen to do root treatment in tooth next to it for a week or so.
Zometa to be given at next cycle of treatment in 3 weeks or week before if dental treatment completed.
I don't think I can win either way. If I cancel treatment and teeth become a problem later I'll have had numerous IV's of Zometa and have to stop it. Even stopping it it's still in body. So surely this would be worse.
If I don't get it bone met a problem.
Dentist so confident and reassuring at my first visit that I was very comfortable with her.
Now not sure what to do!
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01-21-2016, 06:22 PM
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#2
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Senior Member
Join Date: Oct 2012
Posts: 645
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Re: Zometa and dental treatment.
I had been on biophasphates for 15 years, including reclast ( same chemical as zometa but a lesser concentration ). I never had any dental procedure issues, which included 3 implants.
The risk of dental issues while on biophasphates is the exception versus the rule. Problems with teeth can effect your overall health and you need the zometa for your bones.
Best,
Janis
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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01-21-2016, 06:32 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Re: Zometa and dental treatment.
My dentist would not do any invasive work on me, including extractions and implants.
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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01-22-2016, 03:02 AM
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#4
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Senior Member
Join Date: Mar 2014
Location: UK
Posts: 563
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Re: Zometa and dental treatment.
Thanks Janis & Suzan
There seems to be conflicting info on this.
Think my Nurse was being over cautious yesterday. It's very unlike her & I think that is why I went with her opinion. Nurse was reacting as if I would immediately have bone necrosis and then worrying that I would have a femur fracture without the zometa. Which was a bit worrying. Ironically one of the problems with zometa is that it can cause femur fractures - exactly what you are trying to avoid.
I'm sure all these things are the exception to the rule or no-one would risk them.
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01-24-2016, 04:58 AM
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#5
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Re: Zometa and dental treatment.
You said it, Juls!!! with all the conflicting information it is hard to know what to do. For me, I needed extensive tooth "reconstruction" and ended up getting them all crowned...seems like, for me, if there ever was a side-effect to be had, I had it!!! In the matter of my mouth, at least I felt like it was my choice. It does seem ironic that all the treatments I had, and continue to have, for severe osteoporosis (starting in 1990) have "Increased risk of fracture" as one of the most blatant side-effects!!
__________________
Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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01-24-2016, 06:21 AM
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#6
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Senior Member
Join Date: Mar 2014
Location: UK
Posts: 563
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Re: Zometa and dental treatment.
Hi Suzan
You mention having teeth crowned. I will probably need the tooth crowned after it is root treated. Goodness knows how my Nurse will react to that! She seemed more concerned with root treatment than an extraction - Would have thought extraction worse (from bone point of view).
The articles I've read re bisphosphates all say that after about a year bone strengthening plateaus - neither weakening or strengthening. They likened the effect to a dry or wet twig & which would break first.
I have to take bisphos. ( for bone mets) but just wish they could decide which professional knows best.
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01-24-2016, 12:58 PM
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#7
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Zometa and dental treatment.
I've had infusions of Aclasta for four years but my teeth are getting worse and one actually crumbled, a close friend is suffering with Osteonecrosis of the jaw which prompted me to ask my Onc if I could drop it now, just awaiting results of a Dexa scan which she'll review and decide then. I really prefer not to take these meds any more and my Dentist was very cautious in treating me while I still take these and actually left a tiny piece of my extracted tooth in my gum rather than dig any deeper to get it out.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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01-24-2016, 02:33 PM
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#8
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Senior Member
Join Date: Mar 2014
Location: UK
Posts: 563
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Re: Zometa and dental treatment.
The more I read & hear, the less I like.
It seems that the very thing they are giving to stop problems are causing them. I have 2 bone mets & I know there are other benefits that I need but I have to consider the side effects as well.
My dentist did tell me that if I had a problem in the future there are treatments that can be done including capping off teeth & not extracting. Didn't ask for details - for obvious reasons!
As Janis says "exception to the rule", so why are they concentrating on the worse case scenario. Not exactly reassuring.
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02-04-2016, 11:15 AM
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#9
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Senior Member
Join Date: Mar 2014
Location: UK
Posts: 563
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Re: Zometa and dental treatment.
At the dentist yesterday for treatment (didn't need root treatment this time as tooth suitable for filling). So today I call my Onc Nurse to update & arrange going for zometa asap, as she requested at my last appt. After all the angst she tells me not to come up - just leave it to next week when at hospital for Herceptin. All of a sudden, no urgency!
There seems to be some confusion over bisphosphonate treatments & dental treatment here.
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02-04-2016, 01:00 PM
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#10
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Zometa and dental treatment.
Juls, my Dexa scan was good enough that the Onc's nurse e mailed me to say she's happy for me to stop having the Aclasta which I'm glad of, I finished Arimidex two years ago so prefer not to have it if possible.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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02-04-2016, 03:10 PM
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#11
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Senior Member
Join Date: Mar 2014
Location: UK
Posts: 563
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Re: Zometa and dental treatment.
Hi Tricia
Good to hear about your dexa scan.
Did you get joint stiffness etc when on Aclasta?
Have been told that Zometa can cause pain and stiffness so not looking forward to that. Will get 1st IV of it next week.
I was on Letrozole until end of Dec & stiffness caused by that has just gone. Not really wanting stiff joints etc again!
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02-04-2016, 05:57 PM
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#12
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Senior Member
Join Date: May 2013
Posts: 570
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Re: Zometa and dental treatment.
I'm not certain of the absolute importance of Zometa timing. I've had my q3w Zometa held twice now and no one seems all that concerned about it. Holding it a week, shouldn't be cause for concern. I think they told me once I had been on it for a while, I would switch to quarterly infusions instead of q3w.
__________________
Tracy Arcari
___________________________________________
11/12 BSE ignored the lump for SIX months.
5/1/13 IDC ER/PR- HER2/neu+++
5/14/13 Mastectomy and SN biopsy
5/20/13 IDC Stage IIb Grade 3 Nodes 1/4 also IDC and DCIS multi focal in remaining dissected tissue.
5/30/13 MUGA and CT thorax, abdomen & pelvis, establish baseline.
6/4/13 Installed my little purple power port.
6/14/13 Chemo started TCH
6/14/13 Informed of suspicious ares on scans scheduled PET.
7/1/13 PET Scan NED!
9/27/13 FINAL CHEMO taken! ----well, maybe not.
10/15/13 Three little tattoos.
10/24/13 Radiation begins and fourth tattoo placed.
11/27/13 Perfectly radiant! Radiation completed the day before Thanksgiving and so, so much to be thankful for this year and every day hereafter.
1/2/14 Happy New Year, you have a Goiter? Muga down to 59%.
1/17/14 Hashimoto's Dz Dx'd. Now maybe I'll feel BETTER!
5/2/14 Herceptin completed! New kitten!
8/19/14 Prophylactic mastectomy (right) and PORT OUT! I'm DONE and now I really am a SURVIVOR.
2/15 Started not feeling so swell. Memory lapses and GI issues with nausea and blurry vision.
4/30/15 U/S cystic gallbladder, cyst on right ovary and mass in my uterus. GYN consult scheduled---and cancelled. I'm not ready.
5/4/15 Brain MRI clear (big sigh of relief)
7/30/15 Back Pain
8/31/15 Radiograph: compression fracture L2
9/10/15 Bone Scan positive
9/21/15 CT scan conclusive for tumor
10/1/15 CT guided biopsy & Brain to Pelvis MRI reveal additional lesions on spine C6, T10, T11 and L2 is collapsing.
10/8/15 Abbreviated pathology: new tumor(s) poorly differentiated carcinoma consistent with known breast primary.
ER-/PR+ (40%) HER2/neu+++ Ki-67 4% Pancytokeratin AE1/3 Strong Positivity in all malignant cells.
10/13/15 Abnormal Dexa: moderate risk of fracture to both femoral head/neck R&L. Significant risk to lumbar spine.
10/14/15 Radiation consult back to the cooker.
10/20/15 MUGA 50% down from 54% after a year off Herceptin (???)
10/21/15 Kyphoplasty L2
10/22/15 Re-start Chemo: Perjeta, Herceptin & Taxotere
10/26/15 PET Scan confirms C6, T10-11, L2, new lesion noted at L4 but no visceral involvement---Happy dance!!!
10//29/15 Xgeva
10/29/15 Radiation Simulation--three new tattoos to add to my collection. Just call me Dotty.
10/30/15 CA27-29 63 U/mol (<38 U/mol)
11/3/15 First Trip to see Dr. E. Mayer at DFCI
11/4/15 Surgical consult to re-install my little purple power port.
11/9/15 Radiation treatment one of five.
11/10/15 Installed my little purple power port and not a moment too soon, took them four tries to get an IV started today.
Yes, we really are going down this road again.
12/5/15 CT for suspected pulmonary embolism demonstrates increase in T10-11 mets.
12/8/15 Bone Scan uptake at T10-11 (not seen 9/17/15) & Right 8th Rib (not evident on PET 10/26/15)
12/10/15 Consult Re: PROGRESSION. Halt THP due today. Schedule PET and order TDM1 for next week. PLAN B.
12/14/15 PET scan: NO PROGRESSION! THP is working, metabolic activity minimal. Merry Christmas to me! Sticking with PLAN A, it's working.
1/7/16 Start Taxol weekly instead of Taxotere (has been too taxing and not rebounding between txs.) Zometa instead of Xgeva.
3/28/16 CT shows new sclerotic lesions on T12, L3, L5, L6, right ilium and head of right femur. No uptake on Bone Scan (progression????)
3/31/16 Discontinue Taxol start Arimidex, still getting H&P.
6/2/16 Discontinue Arimidex and start Exemestane.
6/18/16 PET is NEAD!!
7/1/16 Discontinue Exemestane and restart Armidex (SEs)
8/29/16 CT/Bone Scan Stable (still uptake at T10-11)
10/3/16 BSO pathology negative
10/10/16 MRI: Brain clear!
10/14/16 Switched care to Harold Alfond Center for Cancer Care
11/24/16 Xgeva, New MO preference to Zometa
12/12/16 CT/Bone scan Mostly stable significant uptake at L2 plan to PET
1/12/17 PET shows NEAD celebrate with a new puppy!
3/29/17 CT & BS = NEAD
7/31/17 Aetna denies access to H&P <gearing up for a fight>
8/4/17 CT& BS= STABLE
8/9/17 No treatment, Aetna still denying H&P
8/14/17 Aetna appeal approved H&P through February 2018!
2/5/18 CT & BS = STABLE
/ /
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02-05-2016, 05:29 AM
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#13
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Senior Member
Join Date: Mar 2014
Location: UK
Posts: 563
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Re: Zometa and dental treatment.
Hi Traci
Think your right about zometa timing. I am now 5 weeks later.
Also think this was more to do with Nurse than me. I realise now dentist and I have been trying to reassure her! (My Dentist called Nurse. Apparently didn't go well.)
I have also been told that they might reduce Zometa to 3 or 6 monthly . Hope so!
Just wish they could get rules clear here about this treatment. Seem to go straight to worst case scenario.
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02-07-2016, 02:57 PM
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#14
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Zometa and dental treatment.
Juls, I was told only the first one would be tough and that proved to be case, the following treatments were fine and I just felt a bit flu like for a couple of days, good luck!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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02-07-2016, 03:19 PM
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#15
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Senior Member
Join Date: Mar 2014
Location: UK
Posts: 563
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Re: Zometa and dental treatment.
Thanks Tricia
Good to know.
Juls
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02-11-2016, 05:03 PM
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#16
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Senior Member
Join Date: Mar 2014
Location: UK
Posts: 563
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Re: Zometa and dental treatment.
First Zometa today. Questioned again about dental treatment.
Now got flu like symptoms to look forward too!
Happy days!!
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02-11-2016, 05:55 PM
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#17
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Senior Member
Join Date: May 2013
Posts: 570
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Re: Zometa and dental treatment.
I have had to skip my last two Zometa, my CA, PHOS & MG have all been low and I can't get them back up with sensible Rx supplementation. Make sure you ask about supplementing if you are not already. You may not have an SEs, I got out of my first two treatments with no SEs, I may have been lucky but you might be too. 
__________________
Tracy Arcari
___________________________________________
11/12 BSE ignored the lump for SIX months.
5/1/13 IDC ER/PR- HER2/neu+++
5/14/13 Mastectomy and SN biopsy
5/20/13 IDC Stage IIb Grade 3 Nodes 1/4 also IDC and DCIS multi focal in remaining dissected tissue.
5/30/13 MUGA and CT thorax, abdomen & pelvis, establish baseline.
6/4/13 Installed my little purple power port.
6/14/13 Chemo started TCH
6/14/13 Informed of suspicious ares on scans scheduled PET.
7/1/13 PET Scan NED!
9/27/13 FINAL CHEMO taken! ----well, maybe not.
10/15/13 Three little tattoos.
10/24/13 Radiation begins and fourth tattoo placed.
11/27/13 Perfectly radiant! Radiation completed the day before Thanksgiving and so, so much to be thankful for this year and every day hereafter.
1/2/14 Happy New Year, you have a Goiter? Muga down to 59%.
1/17/14 Hashimoto's Dz Dx'd. Now maybe I'll feel BETTER!
5/2/14 Herceptin completed! New kitten!
8/19/14 Prophylactic mastectomy (right) and PORT OUT! I'm DONE and now I really am a SURVIVOR.
2/15 Started not feeling so swell. Memory lapses and GI issues with nausea and blurry vision.
4/30/15 U/S cystic gallbladder, cyst on right ovary and mass in my uterus. GYN consult scheduled---and cancelled. I'm not ready.
5/4/15 Brain MRI clear (big sigh of relief)
7/30/15 Back Pain
8/31/15 Radiograph: compression fracture L2
9/10/15 Bone Scan positive
9/21/15 CT scan conclusive for tumor
10/1/15 CT guided biopsy & Brain to Pelvis MRI reveal additional lesions on spine C6, T10, T11 and L2 is collapsing.
10/8/15 Abbreviated pathology: new tumor(s) poorly differentiated carcinoma consistent with known breast primary.
ER-/PR+ (40%) HER2/neu+++ Ki-67 4% Pancytokeratin AE1/3 Strong Positivity in all malignant cells.
10/13/15 Abnormal Dexa: moderate risk of fracture to both femoral head/neck R&L. Significant risk to lumbar spine.
10/14/15 Radiation consult back to the cooker.
10/20/15 MUGA 50% down from 54% after a year off Herceptin (???)
10/21/15 Kyphoplasty L2
10/22/15 Re-start Chemo: Perjeta, Herceptin & Taxotere
10/26/15 PET Scan confirms C6, T10-11, L2, new lesion noted at L4 but no visceral involvement---Happy dance!!!
10//29/15 Xgeva
10/29/15 Radiation Simulation--three new tattoos to add to my collection. Just call me Dotty.
10/30/15 CA27-29 63 U/mol (<38 U/mol)
11/3/15 First Trip to see Dr. E. Mayer at DFCI
11/4/15 Surgical consult to re-install my little purple power port.
11/9/15 Radiation treatment one of five.
11/10/15 Installed my little purple power port and not a moment too soon, took them four tries to get an IV started today.
Yes, we really are going down this road again.
12/5/15 CT for suspected pulmonary embolism demonstrates increase in T10-11 mets.
12/8/15 Bone Scan uptake at T10-11 (not seen 9/17/15) & Right 8th Rib (not evident on PET 10/26/15)
12/10/15 Consult Re: PROGRESSION. Halt THP due today. Schedule PET and order TDM1 for next week. PLAN B.
12/14/15 PET scan: NO PROGRESSION! THP is working, metabolic activity minimal. Merry Christmas to me! Sticking with PLAN A, it's working.
1/7/16 Start Taxol weekly instead of Taxotere (has been too taxing and not rebounding between txs.) Zometa instead of Xgeva.
3/28/16 CT shows new sclerotic lesions on T12, L3, L5, L6, right ilium and head of right femur. No uptake on Bone Scan (progression????)
3/31/16 Discontinue Taxol start Arimidex, still getting H&P.
6/2/16 Discontinue Arimidex and start Exemestane.
6/18/16 PET is NEAD!!
7/1/16 Discontinue Exemestane and restart Armidex (SEs)
8/29/16 CT/Bone Scan Stable (still uptake at T10-11)
10/3/16 BSO pathology negative
10/10/16 MRI: Brain clear!
10/14/16 Switched care to Harold Alfond Center for Cancer Care
11/24/16 Xgeva, New MO preference to Zometa
12/12/16 CT/Bone scan Mostly stable significant uptake at L2 plan to PET
1/12/17 PET shows NEAD celebrate with a new puppy!
3/29/17 CT & BS = NEAD
7/31/17 Aetna denies access to H&P <gearing up for a fight>
8/4/17 CT& BS= STABLE
8/9/17 No treatment, Aetna still denying H&P
8/14/17 Aetna appeal approved H&P through February 2018!
2/5/18 CT & BS = STABLE
//
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02-12-2016, 05:36 AM
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#18
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Senior Member
Join Date: Mar 2014
Location: UK
Posts: 563
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Re: Zometa and dental treatment.
Hi Tracy
Can they give higher dose Ca,Mg & Phos by IV? Think that's what happens here if you go too low.
Came home with enough calcium and Vit D for months yesterday!
I had read that when on Zometa you need to watch Calcium level so mentioned to the Nurse. Her reply was we give you Calcium and Vit D when on Zometa. I also mentioned that if calcium already low (which I am) another bisphosphonate might be better. Made no difference - I was getting Zometa regardless.
The tablets given are not particularly high dosage- calcium 1200 and Vit D 800. I have been taking 1000 I.U. a day of Vit D since August & my level is good at 72, so might just continue with my own capsules.
Hoping I'm lucky like you re side effects
Juls
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02-12-2016, 06:19 AM
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#19
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Senior Member
Join Date: May 2013
Posts: 570
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Re: Zometa and dental treatment.
No one has mentioned giving my IV CA, PHOS & MG, I will ask if the levels on oral supplements are still too low to treat. I need this Zometa and they took me off XGEVA because they thought I was having side effects but SEs continued after being off for 6 weeks. Once they took me off Taxotere, I did better. I wonder if I could go back to XGEVA?
I read that if you have any GI issues at all, you should also take K2 to help conversion in the gut but I can't remember if that id D3 conversion or something else.
I am currently on CA 400 (x3), Slo Mag (x2), NaK-Phos (x1) D3 5000 (x1) and K2 (x1) but it's not enough.
My fingers are crossed for NO SEs for you!!!
__________________
Tracy Arcari
___________________________________________
11/12 BSE ignored the lump for SIX months.
5/1/13 IDC ER/PR- HER2/neu+++
5/14/13 Mastectomy and SN biopsy
5/20/13 IDC Stage IIb Grade 3 Nodes 1/4 also IDC and DCIS multi focal in remaining dissected tissue.
5/30/13 MUGA and CT thorax, abdomen & pelvis, establish baseline.
6/4/13 Installed my little purple power port.
6/14/13 Chemo started TCH
6/14/13 Informed of suspicious ares on scans scheduled PET.
7/1/13 PET Scan NED!
9/27/13 FINAL CHEMO taken! ----well, maybe not.
10/15/13 Three little tattoos.
10/24/13 Radiation begins and fourth tattoo placed.
11/27/13 Perfectly radiant! Radiation completed the day before Thanksgiving and so, so much to be thankful for this year and every day hereafter.
1/2/14 Happy New Year, you have a Goiter? Muga down to 59%.
1/17/14 Hashimoto's Dz Dx'd. Now maybe I'll feel BETTER!
5/2/14 Herceptin completed! New kitten!
8/19/14 Prophylactic mastectomy (right) and PORT OUT! I'm DONE and now I really am a SURVIVOR.
2/15 Started not feeling so swell. Memory lapses and GI issues with nausea and blurry vision.
4/30/15 U/S cystic gallbladder, cyst on right ovary and mass in my uterus. GYN consult scheduled---and cancelled. I'm not ready.
5/4/15 Brain MRI clear (big sigh of relief)
7/30/15 Back Pain
8/31/15 Radiograph: compression fracture L2
9/10/15 Bone Scan positive
9/21/15 CT scan conclusive for tumor
10/1/15 CT guided biopsy & Brain to Pelvis MRI reveal additional lesions on spine C6, T10, T11 and L2 is collapsing.
10/8/15 Abbreviated pathology: new tumor(s) poorly differentiated carcinoma consistent with known breast primary.
ER-/PR+ (40%) HER2/neu+++ Ki-67 4% Pancytokeratin AE1/3 Strong Positivity in all malignant cells.
10/13/15 Abnormal Dexa: moderate risk of fracture to both femoral head/neck R&L. Significant risk to lumbar spine.
10/14/15 Radiation consult back to the cooker.
10/20/15 MUGA 50% down from 54% after a year off Herceptin (???)
10/21/15 Kyphoplasty L2
10/22/15 Re-start Chemo: Perjeta, Herceptin & Taxotere
10/26/15 PET Scan confirms C6, T10-11, L2, new lesion noted at L4 but no visceral involvement---Happy dance!!!
10//29/15 Xgeva
10/29/15 Radiation Simulation--three new tattoos to add to my collection. Just call me Dotty.
10/30/15 CA27-29 63 U/mol (<38 U/mol)
11/3/15 First Trip to see Dr. E. Mayer at DFCI
11/4/15 Surgical consult to re-install my little purple power port.
11/9/15 Radiation treatment one of five.
11/10/15 Installed my little purple power port and not a moment too soon, took them four tries to get an IV started today.
Yes, we really are going down this road again.
12/5/15 CT for suspected pulmonary embolism demonstrates increase in T10-11 mets.
12/8/15 Bone Scan uptake at T10-11 (not seen 9/17/15) & Right 8th Rib (not evident on PET 10/26/15)
12/10/15 Consult Re: PROGRESSION. Halt THP due today. Schedule PET and order TDM1 for next week. PLAN B.
12/14/15 PET scan: NO PROGRESSION! THP is working, metabolic activity minimal. Merry Christmas to me! Sticking with PLAN A, it's working.
1/7/16 Start Taxol weekly instead of Taxotere (has been too taxing and not rebounding between txs.) Zometa instead of Xgeva.
3/28/16 CT shows new sclerotic lesions on T12, L3, L5, L6, right ilium and head of right femur. No uptake on Bone Scan (progression????)
3/31/16 Discontinue Taxol start Arimidex, still getting H&P.
6/2/16 Discontinue Arimidex and start Exemestane.
6/18/16 PET is NEAD!!
7/1/16 Discontinue Exemestane and restart Armidex (SEs)
8/29/16 CT/Bone Scan Stable (still uptake at T10-11)
10/3/16 BSO pathology negative
10/10/16 MRI: Brain clear!
10/14/16 Switched care to Harold Alfond Center for Cancer Care
11/24/16 Xgeva, New MO preference to Zometa
12/12/16 CT/Bone scan Mostly stable significant uptake at L2 plan to PET
1/12/17 PET shows NEAD celebrate with a new puppy!
3/29/17 CT & BS = NEAD
7/31/17 Aetna denies access to H&P <gearing up for a fight>
8/4/17 CT& BS= STABLE
8/9/17 No treatment, Aetna still denying H&P
8/14/17 Aetna appeal approved H&P through February 2018!
2/5/18 CT & BS = STABLE
//
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02-12-2016, 11:21 AM
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#20
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Senior Member
Join Date: Mar 2014
Location: UK
Posts: 563
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Re: Zometa and dental treatment.
I asked for Xgeva but was told I'm too young (I'm 57), no kidney problems and too expensive. Guess which reason I think was the main one!! Then I mentioned Ibrandonate - knocked back on that as well because my Nurse said difficult to take & not much better than Zometa. Only side effects mentioned have been flu like symptoms for a few days after 1st infusion & maybe bony pain (?) just before next infusion. Will have to watch out for gut issues. Magnesium and phosphate have not been mentioned. Guess I'm going to have to do more research!
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