| Herceptin / Tykerb Share your experiences or ask questions about Herceptin or Tykerb |
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09-05-2008, 08:08 PM
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#1
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Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
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Good News On My Muga
I just had my first MUGA scan since I had my baseline one done in May. My first MUGA score was 55 which to me seemed low and worried me so naturally I was concerned what this first scan would be after having Herceptin for 4 months. Well I was thrilled to get my report that it was 61.9. I was told that either my first one was just low or off a bit. Either way my Onc Dr says, I'm doing fine on Herceptin and tolerating it well. This news was such a relief for me and answered prayer. Now I can focus on my radiation which began last week and not worry about my heart function with Herceptin. Just wanted to share with you all my joy!
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!
I am calling this my pink journey
Follow my journey into the pink at my blog here
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09-06-2008, 08:16 AM
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#2
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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Several of my mugas were higher than the last. Good news though!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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09-06-2008, 10:37 AM
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#3
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Great news! Is there any secret you can share? Did you exercise more? I wonder if getting rid of the cancer has anything to do with it.
I am very nervous about recurrence since my MUGA has been decreasing below the acceptable level and I don't know what the doctor can do if my cancer recurs again.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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09-06-2008, 11:06 AM
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#4
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Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
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Jackie,
I have no secrets really to share. I have been trying to eat right and exercise a bit but nothing really special. I do think stress may have made my baseline score low or maybe the cancer being gone has helped too. Prayer could be a factor too. Best wishes to you on your next MUGA.
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!
I am calling this my pink journey
Follow my journey into the pink at my blog here
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09-07-2008, 10:02 AM
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#5
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Senior Member
Join Date: Apr 2008
Location: NY
Posts: 240
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Great Muga score - you must feel relieved! My first muga was 67, but after switching onc's, I'm clueless - because the new onc uses echocardiograms (just had one last week). The technician said everything was fine - but I'll see what the onc says. I FEEL fine so I'm not really worried. And prayer really DOES help me tons too!
__________________
xxoo
Kathy
2/5/08 - dx age 53, post-menopausal;
IDC Stage 1, Grade 1
ER+ 90% /PR+ 90% /Her2++++, BRAC1 & 2 neg
3/5/08 - mast with muscle-sparing free tram;
0/7 nodes clear; Stage 1 lymphedema in right arm
3/11/08 - MRSA infection in abdomen causes large hernia
4/11/08 - Oncotype DX score 22 (intermediate)
4/12/08 - Muga score 67%
4/23/08 - Chemo, Navelbine and Herceptin every 2 weeks
8/20/08 - Last Navelbine infusion! Yay!
1/22/09 - First mammo since dx - unaffected breast CLEAR!
1/30/09 - Second Muga score 63%
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09-07-2008, 04:32 PM
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#6
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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the only thing i added was coq10 after seeing someone else on here talking about it.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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01-18-2009, 07:03 PM
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#7
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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helpful supplements
I have been doing some research on congestive heart failure which is what they are looking for with our mugas or echos. The injection fraction, your muga number, indicates how well your heart is pumping blood. Some naturalpathy therapies you can take to assist your heart are as follows:
CoQ10 100-300mg daily
L-Carnitine-- 1 to 3 gms daily
Taurine-- 2-3 gms daily
Vitamin C-- 1000mg daily
Vitamin E--800 IU daily
Alpha-lipoic acid -- 150mg daily
Fish Oil (super EPA) -- 700-1400mg EPA and 500-100mg of DHA
I purchase my supplements from:
www.SwansonVitamins.com
I hope this is helpful to anyone struggling with declining mugas/echos. I had ACTH and worry about the Adriamycin's effect on my heart which may not present as a problem for 15-20 yrs from now. Of course, to be here 15-20 yrs from now is a good thing! Naturally, with 7 more months of Herceptin I am concerned I may not be able to keep up my ejection fraction, so I just upped my CoQ10 to 200my daily and added the Taurine and Vitamin C to the above list which I have been taking. So far, so good!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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01-18-2009, 09:59 PM
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#8
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Senior Member
Join Date: May 2006
Posts: 3,142
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Good news on my muga scan
great news. congratulations !!
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