HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 12-20-2008, 11:16 AM   #1
Joannie
Senior Member
 
Join Date: Oct 2005
Location: Beavercreek, Ohio
Posts: 67
Just in complete shock........

Hi All:
I feel like I just need to post to get this off my chest. My husband was admitted to the hospital this week for diverticulitis. He is all good and well now. When I drove the car up to pick him up at the hospital, he overhead a man telling someone that his wife's doctor had just passed away and he said her name was Dr. Lee. Dr. Lee is my onc. My husband got in the car and said "I can't believe what I just heard." He immediately called her office and they confirmed that she passed away on Dec 10. I was in complete shock and could barely drive my car home. I googled her name when I got home and sure enough, I found her obituary. She passed away after a "long" battle with breast cancer! When I went in for my 6 month check up in Aug. I noticed that she appeared to have a wig on. It felt odd to say anything and she didn't offer any information. My previous visit was in Feb and at that time she said she had just returned from being out for quite some time. She had a hysterectomy and had complications with infection. She said she had lost 30 lbs and had been hospitalized for 2 weeks.

After I saw her in the wig, I guess I just justified to myself that she could have lost her hair for other reasons other than chemo. How could I have not tuned in to what she had going on. I am much more perceptive than that and I am so angry at myself for not saying something to her.

I confided in her so many times and you feel like your onc. knows your most personal feelings and fears. She helped to save my life and the very thing she saved my life from, took hers.

I am in just complete shock and I can't seem to stop crying. She was 54 years old. She dedicated her entire life to helping people with cancer. She gave those hope that thought there was no hope at all. I am certain that she sacraficed many things to help those in need. It was her calling and her passion.

I wish I would have known. I wish I could have helped.
Joannie
__________________
Joannie

Diagnosed April 2003
3.3 cm tumor left breast
HER2 positive 3++
ER/PR negative
Masectomy April 2003
4 Rounds of AC - dose dense
4 Rounds of Taxol - dose dense
Removed right breast prophalactically
Full reconstruction with implants/nipples
No Late Herceptin Received
Started Tykerb TEACH Trial in May 2007
Completed Tykerb TEACH Trial in May 2008
5 year NED August 27, 2008!!!
Joannie is offline   Reply With Quote
Old 12-20-2008, 11:40 AM   #2
Rich66
Senior Member
 
Rich66's Avatar
 
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
Although I have been angered by folks working in oncology, I occassionally consider the weight they carry day after day. In your onc's case, it must have been exponentially more intense. You certainly had a partner in the fight. I can't imagine...
__________________

Mom's treatment history (link)
Rich66 is offline   Reply With Quote
Old 12-20-2008, 11:47 AM   #3
Mary Jo
Senior Member
 
Mary Jo's Avatar
 
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
Dear Joanie,

That is a tough one. Wow! What a shocker, is right? You know, she probably didn't want those she cared for to know because her "passion" as you say was to help others and bring hope to them. If she would have brought up her own breast cancer it would have become a constant conversation as to how she was doing and she probably didn't want that.

Those kind of "souls" are very unselfish and their reason for being is to help others. God Bless her. Now she is experiencing total joy and peace in Heaven and those of you that knew her can thank God she was a part of your life.

Sooooooo many taken so young on account of this disease...not just breast cancer....but cancer in general. We'll probably never know why on this side of Heaven.....but those of us who trust and know our Lord can trust His word......."For we know that in ALL things God works for the good of those who love Him....." Romans 8:28...........I know that probably sounds cliche' or trite under the circumstances (even to me it does) - however, believing and trusting my Lord I KNOW IT'S TRUE. I've personally experienced it.

Sending you love, hugs and understanding as to what you are going through. Losing those we care about is NEVER an easy thing.

Praying God's peace to surround you Joanie,

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
Mary Jo is offline   Reply With Quote
Old 12-20-2008, 11:55 AM   #4
BonnieR
Senior Member
 
BonnieR's Avatar
 
Join Date: Jun 2007
Posts: 2,210
God bless you Joannie. I can feel your sorrow. Please don't be so hard on yourself. Things happen the way they are supposed to. I don't think your perception let you down at all. You said it felt odd to say anything to her and she only offered the information that "she had been out for some time". It sounds as though she set the pace and you followed her lead. This was the way she chose to handle it. Probably it would have been more difficult for her to not keep things "business as usual". I bet you were an inspiration to her during your recovery. You just didn't know it.

Keep the faith, Bonnie
__________________
Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
BonnieR is offline   Reply With Quote
Old 12-20-2008, 07:10 PM   #5
Soccermom
Senior Member
 
Soccermom's Avatar
 
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
Joannie,
please dont beat yourself up.
Your Doc sounds like she was the consumate professional and didnt want her patients to worry..
As Bonnie said, you might have been an inspiration to her and I'll bet her love of caring for her patients is what kept her going,
With gentle hugs to you,Marcia
Soccermom is offline   Reply With Quote
Old 12-21-2008, 12:45 AM   #6
Jean
Senior Member
 
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
Joannie,
I felt and understood your emotion. Dr. Lee sounds like a wonderful professional. I would think since she was fighting the disease herself, she would not share that with her patients. More than likely she may have felt it would only disturb you to know and might even hinder your own health.

I am sorry this has happened and hopefully you will begin to feel better.

Kindest Regards,
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
Jean is offline   Reply With Quote
Old 12-21-2008, 07:00 AM   #7
Sheila
Senior Member
 
Sheila's Avatar
 
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Joannie
She obviously kept this from her patients...she was more concerned about them...it is still so sad when someone is taken so soon. May you find another oncologist as caring as her.
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
Sheila is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 09:13 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter