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Old 08-19-2010, 03:59 AM   #1
pibikay
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Exclamation Help with terminology

Hi All
I see a quite a few posts with terms like MUGA scans CA 123 etc. This terminology is different from what is in use here.Can Joe or some one else give a small note of the various terms commonly used. It will enable me to follow the posts better
Thanks
Pibikay
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huband of Hema
Metstatic Breast Cancer Stage 4
Left breast cauliflower 25x20cm
ossousmetstatis in vertbrae secondaries L4=L5secondary
nodules in both liver lobes secondary
Diagnosed 10th March 2010
ER/PR-ve
Her 2 neu +++
Taxotrne Zylotec started 16th March
Herceptin added 5th April.9th Herceptin over on 20th Sep '10.Started on Tykerb and Xeloda on 22nd Oct2010TYKERB 4 TAB A DAY XELODA 4 TAB A DAY ONE WEEK ON ONE WEEK OFFZoletrust infusion every 4 months.Lesion in Brain 3D CRT Radiation started on 1st Feb'12 for 20 days ,5 days a week for 4 weeks.Devloped a small lump in breast.Xeloda stopped from 11th April '12.On Taxol.After 3 cycles of Taxol Taxol stopped.Back to Xeloda regime from 3rd July
Herceptin started again on 27th Dec 2012.Xeloda stopped Navelbin added on 7th February 2013.Now on Tykerb Herceptin and Navelbin
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Old 08-20-2010, 11:02 AM   #2
ElaineM
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Wink Re: Help with terminology

A MUGA test is a nuclear medicine test to check heart function. Another heart test called an eccocardiogram (ultra sound of the heart) can also be used. CA or CEA tests are blood tumor marker tests that sometimes help doctors determine the total amount of cancer in the body. CA and CEA test results can also be influenced by inflammation and benign conditions such as cysts and benign tumors.
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Old 08-22-2010, 04:35 PM   #3
Jackie07
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Re: Help with terminology

PBK,

This is a Website where you can search any terms you come across: http://www.cancer.net/portal/site/patient

From our Her2support Board,

Click on 'Home' on the top bar, then

'Resources' on the Welcome page;

'People living with cancer';

CancerNet

As you can see, there are many other Web links available for cancer research. My personal favorite is the Medline Plus:

http://medlineplus.gov/
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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Old 09-21-2010, 08:47 PM   #4
Jackie07
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Re: Help with terminology

Anyone looking for a dictionary on Her2 BC...
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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Old 09-21-2010, 09:51 PM   #5
joletta
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Re: Help with terminology

Jackie,
First off best of luck w/your husb. Things will work out the way that is meant to be. It is rough for me & my husb.My mom has died from breast cancer i have no dad 1 aunt living in state who helps evertime w/ appointments. So we cant get babysitters last went out together in mar 2010. i dont work as I left my job to take care of my second newborn and my husband is a police officer who works 7 days p/week 12 hour shifts sometimes no weekend or anything off to spend together...life can get lonely, but when this is done and im being positve it will be..I am blessed w/ knowing what has become the true important thing in life. One day @ a time and we will cross that bridge when we get there. Its rough having minimal family and a husb always working...and then "expanders for a chest w/no hair or nails..however once again all materalistic.

And I do have a question.. finishing chemo aug 19 do you know of any foods or vitamins to help for preventative measures w/ her 2+++ breast cancer er pr- .

i do exercise 4mile 3x per week on treadmill 2mile run @ 5.7-6.3 and 4.0 walk 2miles 5%incline. weight 2x weekly 30-45 min spin or bootcamp 2-3x per month to throw something in diffrent..I weigh 115 @ 5'4 I would consider myself to eat a lot as the gym will make you more hungry

best of luck ...im new here so send me a private message if you feel the need to theraputic vent..we wont be normal in any tragidy if there were no downs..
sending you courage and love
Joletta
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dx- march 2010 age 35 stage 3a 4 of 9 pos. nodes
idc 2.2 ininvasive 7cm of dcis er/pr- her2+
april 15 2010 bilateral masectomy w/ tissue expanders
may 4 2010 port import
may 6 2010 clean ct scan & bone scan
may 11 2010 start 4 A/C (finish aug 3 2010)
aug 17 2010 start weekly herceptine & taxol 12xs (end date of oct 19 2010)
nov-dec 2010 30 radation
(plan permanent implants for feb or mar 2011)
continue on herceptine till aug 2011

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Old 09-22-2010, 09:59 AM   #6
Jackie07
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Re: Help with terminology

http://www.cancer.net/portal/site/patient


http://medlineplus.gov/
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Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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Old 01-25-2011, 03:33 PM   #7
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Re: Help with terminology

Please explain, what are CLEAR MARGINS and NO VASCULAR INVASION in your signatures and why is it important?
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Old 01-25-2011, 05:57 PM   #8
Jackie07
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Re: Help with terminology

http://www.breastcancer.org/symptoms/diagnosis/margins.jsp

The term 'clear margins' is not listed on the link. However, surgeons use the expression all the time. I think it is a perception from the surgeon's point of view - 'the margin is clear, there's nothing [no cancer cells] there'. It also sounds less confusing than a 'negative' margin.

Surgery is usually done 'piecemeal' - tumor tisue is scraped off little by little so the tissues can be checked by the lab to see if cancer cells are present. When the slides of the tissue stop showing the presence of cancer for, say, several millimeters, the surgeon can feel confident that she/he has 'got' all the tumor.

My first surgery, a lumpectomy in 2003, had a 'clear margin' according to my surgeon. Yet 4 years later, we found the recurrence originated from the 'left-over' tumor. My 2nd surgery, a mastectomy in 2007, had a margin of 0.5 mm. A college friend of mine who's a cardiologist warned me about it being too 'narrow'. But my oncologist explained to me that further excision would have damaged my pectoral muscle and paralyzed my right shoulder/arm.

Vessel vascular invasion – the presence of cancer cells in the vessels within the cancer itself.

Once the cancer cells moves to the blood vessels, it gains the access to other parts of the body through the [blood] circulation system. In other words, there's a possibility that the cancer has 'spread'.

'No vascular invasion' means that there's no cancer cells detected in the vessels within the cancer [tumor] itself.

A theory called 'angiogenesis' was introduced many years ago and that's what the use of Avastin was based on. When cancer grows to a certain size, it starts to 'induce' the growth of new blood vessels so it can get 'supplies' to grow. Avastin is used to stop angiogenesis and has proven to be effective in several different types of cancer. However, clinical trials did not show benefit for breast cancer patients.
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Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 01-25-2011 at 06:20 PM..
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Old 02-22-2011, 09:12 AM   #9
Jackie07
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Re: Help with terminology

Bump up the above posting on 'margins'.
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Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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