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Old 05-12-2014, 04:38 PM   #1
DragonMom
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Lymphadema?

Hi girls- as anyone else experienced lymph-edema in their mastectomy scar area and under the arm 1 year or more after their surgery/treatment.

History: Light lymph-edema in arm and underarm after surgery. The lymph-edema disappeared for about 6 months now seems to have come back with vengeance, lymph node knots and swelling in arm/underarm chest pressure for the last 2 weeks.

Hoping wait it out and treat "as usually" sleeve and flex-e-touch suit..... not really fazing it keeping in control maybe but not making it go away.

Any suggestions or been there's

Thanks
kelly
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Diagnosis: Nov 4, 2011
IDC 5+cm tumor Left Breast
Stage: IIB/III (3 SN+, 3 LN+)
Her2+++
Mastectomy Nov 22, 2011
Dec 15 2011 Begin FEC x 4
Mar 8,2012 1st of 12 weekly Taxol/Herceptin
Rad's 36 zaps July 1st-August 16, 2013
Herceptin April 8 2012-March 1st 2013
Not recommended for Reconstruction April 24, 2103
Found 6 Tumors in Ovary and Uterus
=Hysterectomy March 8, 2013


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Old 05-12-2014, 06:45 PM   #2
sassy
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Re: Lymphadema?

Hey Kelly,

So sorry you are having this issue. Just to be sure, have you been to the doc to check this out since the flare up? I did not have lymphadema, but did develop a strange infection at mast site that went all the way around to my back and landed me in the hospital for almost a week a YEAR after surgery. Just want to be sure you have had this checked out and there is no sign of infection.

Hope for relief soon, keep us posted.
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Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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Old 05-13-2014, 12:19 AM   #3
sarah
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Re: Lymphadema?

Hello Kelly,
Rhonda's right, see your doctor. Ask for a series of lymphatic physical therapy sessions - should help. I was bitten by something and 15 years after surgery my hand and arm swelled up so do always be careful about pricking it or getting bitten - immediately disinfect anything. The physical therapy should work and learning some exercises.
good luck
sarah
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Old 05-15-2014, 05:00 PM   #4
tricia keegan
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Re: Lymphadema?

Kelly this didn't happen to me but would agree to have this checked out with a PT!
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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