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10-23-2008, 07:42 AM
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#1
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Senior Member
Join Date: Nov 2007
Location: Stony Mountain, Manitoba, Canada
Posts: 47
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Hello from Bellydancer....
Hello all
Just wanted to send out positive thoughts to each and every one of you. With Our Thanksgiving just past and Your's coming up I wanted to wish everyone a Wonderful season. I will be in Fargo on your Thanksgiving.....giving thanks for the great deals....I hope to find.
I am at a weird place now as I don't know what to consider myself. I am finished Tx now, have stopped the Heart Meds and been released from the care of the Cardiologist. I just see my ONC every 3 months for my blood work. I guess I am a survivor now???? I pray that this was the only time I get to walk this journey. As I was told by my Cardio that I will Never be albe to take Epirubicin, Doxirubicin or Herceptin....EVER again. I had suffered Cardio damage due to the meds and therefore only got 4 doses of Herceptin. I have recently learned that it is as effective as the 14 doses or so they think. With being ER-/PR- HER2+++ I am still a bit nervous about recurrence. When does it get less worrisome? I guess everytime the blood comes back clear that is something to celebrate....right?
I saw my Plastic Surgeon to get the final looksee about the "headlight" adjustment and learned that here in Canada there isn't a time limit to have everything completed. I am now in the process of riding the "extra" me. I'm down 10 lbs so far and will look at each 10 lbs as a step closer to my surgery. I need to have the abdominal scar revised and was delighted to discover that they would be able to remove excess skin at the same time. My silver lining....a tighter bod and perky girls.
I was just wondering how other's at this stage of the game are doing? I am not back to work yet, kinda enjoying being at home for now. I fear returning to quickly and then burning out and not being able to get disability insurance again. One of the smartest decisions I've ever made was to buy private disability insurance. PLT!!!
Cheers!
__________________
Michelle Dick
" Adversity Reveals your strength"
Dx August 15th/07
Invasive Ductal Carcinoma
ER/PR- negative, HER2- positive
Stage 11 with tumor size 3.5cm, .7cm satelite node
Sx Oct 2nd/07
Skin sparing mastectomy of left breast
immediate reconstruction DIEP flap
Nodes 0/3 Sentinal Node Biopsy
Chemo started Nov, 3 rounds FEC and 3 rounds Taxotere and Herceptin every three weeks
Radiation 28 Tx ended on June 13/08
Herceptin was stopped due to falling MUGA score (went from 62 down to 42)
Cardiologist Appt June 24th
Ramipril 2x/d to protect heart and hopefully increase LVEF
Officially NED
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10-23-2008, 01:28 PM
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#2
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Hey Michelle
Every day you fight this dreaded disease you are a survivor in my book!!!!! So glad to hear from you, I missed ya. Keeping you safely in my heart. Take it easy and do not rush back to anything besides regaining your normalcy! Love you>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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10-23-2008, 06:16 PM
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#3
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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you are a survivor! glad you shared your story. it's nice to get to know who we're writing to.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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10-24-2008, 12:24 AM
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#4
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Bellydancer...so good to hear from you! Did you get the stage 2 of your reconstruction? And how do you like your look?!
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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