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07-15-2008, 12:06 PM
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#1
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Senior Member
Join Date: Oct 2005
Posts: 823
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Goops, Liver Biopsy
Hi Goops, just wondering how your biopsy went yesterday? Praying that all is fine.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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07-15-2008, 01:21 PM
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#2
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Goops I was thinking of you also although did'nt remember it was yesterday so thanks Yorkie girl. Hope it all went well with good and hopefully benign results!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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07-16-2008, 04:39 PM
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#3
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Senior Member
Join Date: Jan 2008
Posts: 305
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Thanks for asking - I will not have the official results until I see the doctor tomorrow. I am not very hopeful, I asked the radiologist how often these biopsies come back cancer free and he said it is very rare.
I was pretty sick last week and had hoped that it was what was causing the liver problems but my oncologist felt I just had the flu.
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07-17-2008, 12:15 AM
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#4
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Goops....thinking of you too...fingers crossed...
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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07-17-2008, 09:49 AM
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#5
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Goops,
I am sending good thoughts from Texas also. Please take good care of yourself.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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07-17-2008, 04:52 PM
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#6
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Senior Member
Join Date: Jan 2008
Posts: 305
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My biopsy came back bad - I have 1 fairly large tumor and then some tiny ones.
I was relieved that the doctor was not recommending chemo at this time - she thinks my best bet is a study of fulvestrant with or without Lapatinib. She explained that if I get the placebo and my disease starts to progress they will give me lapatinib then.
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07-17-2008, 05:09 PM
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#7
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Goops, I'm sorry to hear the bad news. Please know that you are in our thoughts and prayers. For what it's worth, Nicola was dx'ed with liver mets in Dec, 2005 and volunteered for a Taxol/Lapatinib study along with Herceptin. She did great, with steady tumour shrinkage for about 15 months. I'm not a doctor, and I know nothing of Fulvestrant, but in my opinion, honey, and I'm going to be frank and straight-up here, what your doctor has recommended does not sound like your "best bet". I'm sorry, I don't know if you've had herceptin or not, and I can't remember your earlier treatments, but in my layman's opinion, you need a second and third opinion. Please keep in touch. Hugs to you, Bill
__________________
For Nicola
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07-17-2008, 05:31 PM
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#8
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Hi Goops
I'm sorry you didn't get the results we were all hoping for.
The plan to deal with this doesn't sound right to me.
I wouldn't be waiting for progression before getting the
lapatinib. If that's the drug your onc thinks you need, then
you should be getting it, not a placebo.
This is just my opinion but I would look into this more.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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07-17-2008, 06:47 PM
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#9
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Dear goops,
Doggone it. I am hopeful that you will find the right combo to kick the mets to the curb. There are many knowledgable folks here that may be able to advise on tx plans.
Hugs and Prayers,
Lexi
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07-17-2008, 07:12 PM
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#10
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Senior Member
Join Date: Jan 2008
Posts: 305
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Thank you for the good wishes - and as for Herceptin I was just 3 treatments short of finishing - Herceptin obviously did not work for me so they are discontinuing it. I also already had Taxol.
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07-17-2008, 07:43 PM
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#11
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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goops,
I am very sorry about your recent results. Are they going to recheck your receptors again? Sometimes they switch and if they are ER/PR positive that could be to your advantage. Also, I agree with Bill that a second opinion is in order. Another thought is that Herceptin is still given along with another agent even if you have progressed on it.
I know so much is going right now. Please know that we are praying for you and for your medical team.
Hugs,
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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07-17-2008, 07:53 PM
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#12
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Senior Member
Join Date: Oct 2005
Posts: 823
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Goops I'm so sorry to hear of your results. You will remain in my prayers. I certainly hope your treatment will started soon.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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07-17-2008, 08:07 PM
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#13
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Hi Goops! Me too! I wish your results were better, but I know that you will investigate and find a promising course of treatment and fight like crazy! Well wishes and many prayers from the Texas coast. ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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07-17-2008, 11:16 PM
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#14
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Goops, Darn it all! I am so sorry you have to deal with this. But I agree with PinkGirl, Bill and others that you should get a 2nd and even 3rd opinion. You need to hear all your options...plus its important to have peace of mind when battling this diease. I will be keeping you in my thoughts and prayers. You hang in there and keep us updated when you can.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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07-18-2008, 08:14 AM
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#15
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Goops,
You will be in my prayers.
Amelia
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07-18-2008, 08:58 AM
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#16
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Hey Goops
I'm sorry I jumped right in there and started telling you what you do.
It just didn't sound right to me. I always think of getting aggressive
with treatments and the idea of you getting a placebo frightened me.
I hope everything works out for you and that you are comfortable with your
onc and your decisions. Good luck with all of this and I will be sending
you lots of good vibes!!!
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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07-18-2008, 09:07 AM
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#17
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Senior Member
Join Date: Sep 2005
Location: OH
Posts: 385
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Hi Goops
I'm sorry your results weren't better but am glad to see the others responding with their insightful comments and questions. I wish I had some advice, but I don't except that you should get well, be well, and stay well. Good luck, and best wishes in your journey.
__________________
Diagnosed 4/03/03, age 50
3.5 cm, 0/19 positive nodes
Stage IIA
Her2++, ER & PR++
RB Mastectomy, 4 AC,
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07-20-2008, 02:06 PM
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#18
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Senior Member
Join Date: Jan 2008
Posts: 305
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I appreciate everyone's input and good wishes. Thanks
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07-20-2008, 02:17 PM
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#19
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Guess you and I can chat under this thread. 
So glad to hear from you. I remember reading postings from several members who have had tumors in the liver - they either have got rid of it or have been having it under control. Let's hear from them.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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07-20-2008, 04:05 PM
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#20
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Senior Member
Join Date: Jan 2008
Posts: 305
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Yes - I would love to hear some positive liver stories.
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