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04-06-2013, 11:24 AM
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#41
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: update I hate to give (with a little more positive spin)
Thinking of you Chrisy......
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04-06-2013, 11:51 AM
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#42
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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update I hate to give (with a little more positive spin)
Don't write the ending...
Wow Flori, I am writing that one down and posted it around my house.
Chris, gotta say, acute has new meaning for me. Hope it does for you too.
Take the love, lots of supplements (to de-toxify and boost your much beleaguered immune system, fight off free radicals, blah, blah, de blah...) and the erube.
I will add intense prayers in your name, my love as always and healing energy -- to help you reboot your liver.
Talk to it. In Eat Pray Love the medicine man talked about being happy in your liver.
Tell your liver to get it together. It hears everything you think, say or whisper. And -- it knows exactly what to do, even if you can't be specific! Honest!!
This is my positive spin coming at you from Boca...
Big, long, tight hug,
Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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04-06-2013, 07:30 PM
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#43
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Re: update I hate to give (with a little more positive spin)
I've known you since I joined in 2005, too. Couldn't let this post go bye without me saying......I'm sorry for all you've been struggling with. It's hard when we see our loved ones hurting. That's the worst part I think. Only God knows when the "ding" will be "dung!" And you are right, "it will all make sense from the "other side," HOWEVER, only He knows when it's time for you to meet Him their....until that time.....prayers for you, my friend. He's got this....He's working in your life.....may His peace be what brings you joy as you journey on. Love to you my sweet "sister!"
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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04-06-2013, 09:38 PM
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#44
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Senior Member
Join Date: Oct 2006
Location: Southern California
Posts: 900
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Re: update I hate to give (with a little more positive spin)
Oh Chris, this is not the news I wanted to hear.
Like Mary Jo, I joined the board many years ago and always looked forward to reading your posts. Throughout the years, you have graced us with your wit, wisdom and warmth. You are one of the HER2 elite who will leave your imprint forever in the hearts of all who were so fortunate to have you touch our lives. I remember back to the silly fun we had with PinkGirl, Shelia, Brenda, Bill, Lee, and many others. I found an old thread last night (the one with "spray cheese") and read through it - it had me laughing all over again.
I am sending you much love and my most fervent prayers that this new treatment will keep you on the right side of the grass where you belong.
Thank you Chris. I am filled with love and graditude for all you have given us.
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault
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04-07-2013, 01:20 AM
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#45
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Senior Member
Join Date: Jul 2011
Location: Melbourne, Australia
Posts: 432
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Re: update I hate to give (with a little more positive spin)
Chrisy I don't know what to say. You are a beacon of hope for so many of us. I hate that you are going through this right now. I am in awe of your fearlessness.
You are loved by so many even way down here.
Be well.
A x
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04-07-2013, 10:19 AM
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#46
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Re: update I hate to give (with a little more positive spin)
Well, crap on a crapstick! Which I learned to say right here and find myself saying way too often. Might have heard it from you. Anyway, I go away for a few days and come back to this miserable turn of events. But, as always, you express yourself with such grace and insight and hope. Lets stifle the fat singing lady. And, you know, we probably should all have our papers in order anyway in the event we get hit by the proverbial bus.
I don't know what else to say except I love you and to keep the faith, no matter what
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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04-07-2013, 11:28 AM
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#47
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Re: update I hate to give (with a little more positive spin)
Hi Chris,
I have been checking in everyday to hear how you were doing, and like others have said so eloquently, this is also not the news that I wanted to hear. You have been such a kind and sincere caring role model in handling what life with this disease has dealt you, as well as the encouragement that you have provided others on this site. I sincerely feel for you and what you are facing, and admire your tenacity to try another difficult treatment.
I know that you have already had Tykerb, but you did not have it with Herceptin. That is the combination that worked for me after I had to go off TDM-1 due to lung inflammation. Perhaps since we both had a long run with TDM-1, our cancers may have some similarities. There may be minimal possibility that the combination would work well enough for enough weeks to allow you to allow you to apply for another trial. As you know, Tykerb also adds the additional protection to the brain.
By offering this suggestion, I am by no means negating the precarious and current situation in your life. My heart goes out to both you and to your family. I will never forget you and your wisdom and your concern for me and the others on this site.
You will continue to be in my thoughts.
Kind regards,
Barbara H.
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04-07-2013, 11:44 AM
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#48
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Senior Member
Join Date: Jun 2012
Location: San Diego
Posts: 33
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Re: update I hate to give (with a little more positive spin)
I just wanted to add my hugs. I really hope Halaven works for you. I am thinking of you and your family.
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04-07-2013, 01:31 PM
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#49
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Re: update I hate to give (with a little more positive spin)
How are you doing today? Thinking of you with love...birthday twin July 11...you 'n me
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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04-07-2013, 02:01 PM
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#50
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Senior Member
Join Date: Dec 2009
Posts: 562
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Re: update I hate to give (with a little more positive spin)
FWIW: I was on eribulin and it was an easy chemo. Easy given that I was not in liver failure, of course. I hope that gives you some comfort: that even if it doesn't work, it shouldn't cause horrible side effects. The only one I really had was sleeping a lot and if you are having liver problems you are probably doing that anyway.
How about staying on top of the grass for a bit. It's warm and sunny and it tickles.
__________________
 http://butdoctorihatepink.com
08/17/09 Dx'd.
Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS
HER2+ ER+/PR- Grade 3, Node Negative
10/20/2009: Right mastectomy, reconstruction with TE
12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy
03/31/2010: Finished chemo
05/01/2010: Began tamoxifen, the worst drug ever
11/18/2010: Reconstruction completed
12/02/2010: Finished herceptin
05/21/2011: Liver Mets. Quit Tamoxifen
06/22/2011: Navelbine/Zometa/Herceptin
10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure!
11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years"
03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa
10/10/2012: Progression continues, started Halaven, along with herceptin and zometa.
01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa
03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta.
04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success!
05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo.
06/07/2013: Fiducial placement for SBRT
07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone
07/25/2013: SBRT (gamma knife) begins
08/01/2013: SBRT completed
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa
06/18/2014: ***** NED!!!!***** continuing with Perjeta, Herceptin, Zometa
01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly.
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.
5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean.
I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.
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04-07-2013, 04:33 PM
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#51
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: update I hate to give (with a little more positive spin)
I am sad after reading your news. I hope the new drug helps you to keep putting one foot in front of the other for a long time.
I am keeping my fingers crossed for you and I will remember you in my prayers.
Hugs to you and those you love
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04-07-2013, 07:26 PM
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#52
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: update I hate to give (with a little more positive spin)
Chris,
I have been worrying and holding my breath like Steph. You know I love and admire you so much. You have blessed me and touched us all here on Her2Support. So listen, Kiddo, you go ahead and get those papers in order and tidy up any loose ends, but I am not placing you down for the count just yet. Still praying and believing!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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04-07-2013, 08:18 PM
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#53
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Re: update I hate to give (with a little more positive spin)
Chrisy,
So not what I hoped to find after being away a couple of days.
Just praying, praying, praying.
I have faith and I have faith in you.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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04-07-2013, 09:15 PM
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#54
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Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
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Re: update I hate to give (with a little more positive spin)
Dear Sweet Angel,
I am so touched by your difficult, honest, salty, and brave words. Thank you for not "sparing us". You are at the door step that we are all walking toward. You are speaking the words that we all have felt or will eventually feel in our hearts. It is hard to face this doorway. It is harder to say goodbye to the ones we love and who love us. I can only hope for a reunion someday. I dream about having the rowdiest, glass clinking, girl talking, girls-night-out every time a Her2 girl passes through that door.
I pray that you stay with your family - and selfishly with us- for a longer time. I pray that you feel good and feel peace while you are with us.
But honey, when you do pass through that door; you kick up your heels, you fly and you can bet that when it is our turn to follow you through, we will be stomping our feet and calling out your name. You are not alone on this side and if we can help it; you will NOT be alone on the other. God speed to you; beautiful soul..... You are such a beautiful soul. How much love you have nurtured here and just see how it ripples forward.
Love and hugs and hope and prayers holding you and holding you,
Kim (from CT)
__________________
2001 - Stage 0, lumpectomy, radiation, tamoxifen
2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.
2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle
2011 - Still Herceptin only and NED
2011, June - STOPPED Herceptin and kicked up my heels!
2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.
2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine
2022 On Herceptin and NED continues - WOOT WOOT!
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04-08-2013, 08:27 AM
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#55
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Senior Member
Join Date: May 2011
Location: Denver, CO
Posts: 1,427
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Re: update I hate to give (with a little more positive spin)
What Kim (Mamacze) said.
You'll always be a part of us. We will always be together.
__________________
Amy
_____________________________
4/19/11 Diagnosed invasive ductal carcinoma in left breast; 2.3 cm tumor, 1 axillary lymph node, weakly ER+, HER2+++
4/29/11 CT scan shows suspicious lesions on liver and lungs
5/17/11 liver biopsy
5/24/11 liver met confirmed--Stage IV at diagnosis
5/27/11 Begin weekly Taxol & Herceptin for 3 months (standard of care at the time of my DX)
7/18/11 Switch to weekly Abraxane & Herceptin due to Taxol allergy
8/29/11 CT scan shows no new lesions & old lesions shrinking
9/27/11 Finish Abraxane. Start Herceptin every 3 weeks. Begin taking Arimidex
10/17/11--Brain MRI--No Brain mets
12/5/11 PET scan--Almost NED
5/15/12 PET scan shows progression-breast/chest/spine (one vertebra)
5/22/12 Stop taking Arimidex; stay on Herceptin
6/11/12 Started Tykerb and Herceptin on clinical trial (w/no chemo)
9/24/12 CT scan--No new mets. Everything stable.
3/11/13 CT Scan--two small new possible mets and odd looking area in left lung getting larger.
4/2/13--Biopsy of suspicious area in lower left lung. Mets to lung confirmed.
4/30/13 Begin Kadcyla/TDM-1
8/16/13 PET scan "mixed," with some areas of increased uptake, but also some definite improvement, so I'll stay on TDM-1/Kadcyla.
11/11/13 Finally get hormone receptor results from lung biopsy of 4/2/13. My cancer is no longer ER positive.
11/13/13 PET scan mixed results again. We're calling it "stable." Problems breathing on exertion.
2/18/14 PET scan shows a new lesion and newly active lymph node in chest, other progression. Bye bye TDM-1.
2/28/14 Begin Herceptin/Perjeta every 3 weeks.
6/8/14 PET "mixed," with no new lesions, and everything but lower lungs improving. My breathing is better.
8/18/14 PET "mixed" again. Upper lungs & one spine met stable, lower lungs less FDG avid, original tumor more avid, one lymph node in mediastinum more avid.
9/1/14 Begin taking Xeloda one week on, one week off. Will also stay on Herceptin and Perjeta every three weeks.
12/11/14 PET Scan--no new lesions, and everything looks better than it did.
3/20/15 PET Scan--no new lesions, but lower lung lesions larger and a bit more avid.
4/13/15 Increasing Xeloda dose to 10 days on, one week off.
7/1/15 Scan "mixed" again, but suggests continuing progression. Stop Xeloda. Substitute Abraxane every 3 weeks starting 7/13.
10/28/15 PET scan shows dramatic improvement everywhere. All lesions except lower lungs have resolved; lower lungs noticeably improved.
12/18/15 Last Abraxane. Continue on Herceptin and Perjeta alone beginning 1/8/16.
1/27/16 PET scan shows cancer is stable.
5/11/16 PET scan shows uptake in some areas that were resolved on the last two scans.
6/3/16 Begin Kadcyla and Tykerb combination
6/5 - 6/23 Horrible diarrhea from K&T together. Got pneumonia.
7/15/16 Begin Kadcyla only every 3 weeks.
9/6/16 Begin radiation therapy on right lung lesion that caused the pneumonia.
10/3/16 Last of 12 radiation treatments to right lung.
11/4/16 Huffing and puffing, low O2, high heart rate, on tiniest bit of exertion. Diagnosed as radiation pneumonitis. Treated with Prednisone.
11/11/16 PET scan shows significant improvement to radiated part of right lung BUT a bunch of new lung lesions, and the bone met is getting worse.
11/22/16 Begin Eribulin and Herceptin. H every 3 weeks. E two weeks on, one week off.
3/6/17 Scan shows progression in lungs. Bone met a little better.
3/23/17 Lung biopsy. Tumor sampled is ER-, PR+ (5%), HER2+++. Getting Herceptin and Perjeta as a maintenance treatment.
5/31/17 Port placement
6/1/17 Start Navelbine & Tykerb
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04-08-2013, 04:05 PM
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#56
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Senior Member
Join Date: Apr 2011
Posts: 403
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Re: update I hate to give (with a little more positive spin)
Thinking of you and praying for you Chrisy...
__________________
1/11 age 36 DX
ER/PR-, Her2 +
TCH*6, Herceptin
BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes
9/11 Radiation
3/12 Local recurrence to skin stage IV
Whole body scan CLEAR
4/12 Tykerb & Xeolda Skin mets slowly regressing
8/12 PET & Brain CT Clear
5/13 Skin mets progressing
6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes
6/13 kadcyla
10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence
11/13 to 02/14 tykerb & herceptin
02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose
05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo
05/14 navelbine perjeta herceptin
07/14 skin mets progressing red rash worse
08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks
09/01/14 resection- clear margins
3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer
Radiation 11/2014 with xeloda then weekly cisplatin
11/14 brain MRI clean
12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week
12/14 t current Herceptin and perjeta only
02/15 rash on upper back right side skin mets radiation planned
02/15 staring electron radiation *35
Stopped at 30 due to severe skin burn, resumed 10 days later
05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska.
05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line
07/15 multiple skin and lung recurrence begin halaven
11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious
11/15 heading to China for immune therapy
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04-08-2013, 04:51 PM
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#57
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Re: update I hate to give (with a little more positive spin)
Aw Chrisy. I am late to the response on this one. Sometimes there are no words to say. You paved the way for many who come after you with all the trials you bravely participated in. I do not believe there still is not an answer for you. But you have my love and thoughts and prayers.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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04-08-2013, 07:52 PM
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#58
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Senior Member
Join Date: Aug 2011
Posts: 271
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Re: update I hate to give (with a little more positive spin)
thinking of you and praying for you Chrisy. Please be assured you have lots of love, prayers and support from all of us.
__________________
DX November 2010
Brain MRI, CT of lung, liver, bone, all clear
Double Mastectomy w/expanders December 1, 2010
ER- PR- Her2+++, grade 3, 12 positive nodes out of 15
Stage IIIc
Started TCH/Chemo December 31, 2010
6 rounds TCH
Herceptin every 3 weeks for a year
33 rounds of TomoTube radiation, to chest wall, neck, skin and lymph area
September, 2011, MRI to lower spine, hips, DX bulging disk, L4 & L5, pain not from cancer
Expanders removed, implants in Dec 1, 2011
Finished Herceptin, December 21, 2011
August 2012, CT of chest and abdomen, all ok
Enrolled in MC1136 Phase I Peptide Vaccine Trial at Mayo Clinic, Rochester, Minnesota
March 2013, First Vaccine
April 2013, 2nd Vaccine
May 2013, 3rd Vaccine
June 2013, 4th Vaccine
July 2013, 5th Vaccine
August 2013, 6th Vaccine Done!
September 2013, Mayo visit, Echo results 68, vaccine did not effect my heart! Blood work normal.
January 31, 2013, Mayo visit, Echo normal
February 23, 2014, Numb lips on right side, Brain MRI, normal!
June, 2015, Finished the trial at Mayo Clinic. Feels good!
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04-09-2013, 04:13 AM
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#59
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Re: update I hate to give (with a little more positive spin)
I'm really sorry to hear this latest news. You hang in there, Young Lady. You're always in my thoughts and prayers. I hope you're having a good day. You have helped us all through so much. Love you, Bill
__________________
For Nicola
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04-09-2013, 05:16 AM
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#60
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
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Re: update I hate to give (with a little more positive spin)
Chrisy,Thank you for letting everyone know with your honest and thoughtful words. You always made me smile with your wit and loving personality. I come back and visit this website to check on you and some other loving caring women that I first "met" so long ago. You are truly so very special and have helped hundreds of people to have hope, knowledge and laughter in some dark days. I hope more than anything that you don't suffer from pain and can spend loving time with your family. We all are headed to that other side and I sure hope I get to meet you there. I pray your liver can heal itself to give you some more time. We all love you very much.
Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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