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11-25-2012, 07:44 PM
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#21
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: New Battle
Barb,
Man. I am not happy at all to hear your news. I hate Melanoma and I hate that it has darkened your door. Lani's informative post regarding the two forms, Class 1 or 2, leads me to pray yours is Class 1.
I have not been able to get up north in quite sometime. My mother's care has grown considerably and she is loath to leave her chair let alone her home so I cannot bring her along to the cabin. As soon as I am able we'll get together to celebrate the forthcoming good news that I am believing you will hear from Wills. Until then hang strong even though I know that is monumentally tough at the moment.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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11-26-2012, 10:55 AM
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#22
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Senior Member
Join Date: Sep 2011
Location: Mt. Prospect, IL
Posts: 177
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Re: New Battle
Prayers going up!
__________________
10/01/10 - Dx at age 44. Found lump after miscarrying & was told it was "probably a clogged milk duct" not so much:
stage II - invasive ductal carcinoma ER/PR+ HER2+
10/01/10 - BRCA test - Negative
11/3/10 -2.5cm tumor removed via lumpectomy, clear margins. sentinal node biopsy - nodes clear!
12/2/10 - port placement
12/2/10 to 3/17/11 - 6 rounds of taxotere, carboplatin & herceptin every 3rd week.
04/20/11 - 6/6/11 - 33 rounds of radiation
4/6/11 to 11/2/11 - 11 additional rounds of herceptin every 3rd week
7/15/11 - port removal
7/5/11 started my 5 year journey on Tamoxifen
9/4/11 -1 yr Chest MRI - CLEAN!!!!
9/5/12 -2 yr Chest MRI - CLEAN!!!!
8/29/12 - Started spotting after being in chemopause 1.5 years. Ultra sound detected 6cm ovary mass & very thick lining. YIKES! Taken off Tamoxifen
9/6/12 - Full abdominal hysterectomy. Pathology report came back clean... thank you baby Jesus!!
9/28/12 - Started Anastrozole
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11-26-2012, 05:46 PM
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#23
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: New Battle
Thinking of you today, Barb.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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11-26-2012, 06:49 PM
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#24
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Re: New Battle
Hi Barb, I happened to be seeing my eye doctor/surgeon today and I mentioned your situation to him. He said what a top hospital Wills is. He also commented about all the advances in recent years to treat this sort of melanoma. It sounded like the sort of message we have had about how Herceptin changed the playing field for us. So I hope for only good news. Keep the faith. And keep the Ativan handy, too!
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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11-27-2012, 10:06 AM
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#25
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: New Battle
Hello ladies. Well, we spent eight hours at Wills yesterday, and just heard that U am on their surgery schedule for Thursday. The docs will place a radioactive placque implant that will remain for about seven days, while hubby and I , sis and brother in law hang out in the center city Philadelphia hotel. I'm confined to my room for that time. Released to home the day they remove the plaque. Having genetic testing done that gives info about liklihood if spread......mixed feelings. Then going back to my old oncologist for follow up. Also have a retinal specialist in my area who will put shots of avastin in my eye. There is als an oncilogist at Jefferson whose speciality is ocular melanoma metastasis....hope I don't need hum! Thanks for listening, my her2 friends. All prayers gratefully accepted.
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11-27-2012, 02:30 PM
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#26
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Member
Join Date: Nov 2012
Posts: 19
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Re: New Battle
Dear Barb,
I am praying hard that all will go well with you at Wills and that there will be no mets, and that recovery will be thorough and as soon as possible. Bonnie, please know that I am praying for you, too. I am praying for all to have the peace of God in their hearts, and praying this for myself also. May God bless you and I hope with my whole heart that all goes well.
__________________
[SIGPIC]
12/1/11 found lump in right breast
12/4/11 needle biopsy
12/14/11 core biopsy
came back positive for HER2 +, grade 3
1/4/12 lumpectomy, no metric stats at hand; lump was > 2 inches, + borders. 19 nodes removed, 17 positive
staph infection 2X
second opinion, www.carolinabreast.com.
March 12th - Adriamycin & Cytoxan every three weeks 4 cycles.
July 2 through October 8th - taxol and Herceptin every week with two cycles every other week.
October 22nd - 50 mgs. Benedryl & 600 mgs. Herceptin, was going to be every three weeks, but 600 mgs kicked my butt so now I get 200 mgs every week, through August 2013.
November 16, 2012, succesful simple bilateral mastectomy
December 26, 2012, began radiation. Side effects there, too. Sheesh. :-)
February 1, 2013, radiation ended.
August 1, 2013, last day of Herceptin
September 6, 2013, CT, found 2 cysts in lower abdomen. Nuclear bone scan clear!
September 13, 2013, sonogram checking those cysts -
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11-27-2012, 04:27 PM
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#27
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: New Battle
Barb,
I am believing you are Class 1 and so lots less worry about mets! We'll get together and you can show me the Hillsgrove covered bridge (haven't found that one yet). My son is up your way hunting (hanging at the cabin and drinking beer more then hunting is my bet!) and will bring down a Christmas tree from the 42 Market. Theirs are cheap and they have some small enough to fit on a table which I prefer these days (less to put up and take down!).
Will you have much discomfort associated with the implant in your eye? I surely hope not! When you get bored of the hotel room's 4 walls, type us an update. What did you think of Wills? Impressed?
Blessings to you, my friend. I am praying.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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11-27-2012, 06:16 PM
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#28
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Senior Member
Join Date: Apr 2011
Location: Michigan
Posts: 1,173
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Re: New Battle
Barb, I'm in your corner hoping and praying all will go well. Gods blessings to you and your family. Looks like you have some great support!
Peace my friend,
Nancy
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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11-28-2012, 05:50 PM
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#29
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: New Battle
Good luck tomorrow, Barb! Prayers for an easy breezy procedure. You have not been far from my thoughts. Praying for good news.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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11-29-2012, 02:42 AM
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#30
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: New Battle
Adding my prayers. Remember to take deep breaths...
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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12-02-2012, 05:17 AM
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#31
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: New Battle
Checking in, Barb, to see how you are faring. Hoping that you are not in pain. Praying for good results!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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12-02-2012, 07:09 AM
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#32
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: New Battle
Hello ladies. I am doing ok physically, since my implant. Afraid to take the vicodin, cause I am so allergic to pain meds. Using tylenol and advil, and some atavan. Implant done Thursday and comes out Thursday. Even possibilities of radiation damage to the eye doesn't bother me as much as fear of mets. I can know that one can only live in the now, but keeping a reign on a racing mind is so, so hard. I would appreciate your continued prayers, both for healing and for peace.
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12-02-2012, 07:15 AM
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#33
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Senior Member
Join Date: Apr 2011
Location: Michigan
Posts: 1,173
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Re: New Battle
You are in my prayers. Gods blessings to you.
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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12-02-2012, 04:35 PM
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#34
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: New Battle
Praying. Glad to hear it is not too painful. How long do you have to hang in limbo as far as pathology and scan results? I do not blame you one bit for the nerves. This roller coaster is so hard. Hang in there.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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12-03-2012, 04:16 AM
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#35
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: New Battle
Hi Laurel.The genetic testing takes three months to come back. They are saying to arrange liver scan and blood draw within a few weeks. Back to my old oncologist, if he'll see me. Appointment with retinal specialist in two months and back to Wills in four. As I undersrand it, the worst genetic profile means a 50% chance for metastasis. Best profile means 20%. Gotta just pray and not borrow trouble....much easier to say than do.
Thank you to all you dear ladies who have sent words of kindness and support. I reread them at 3:00 this morning.
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12-06-2012, 01:48 AM
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#36
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: New Battle
Plaque removal in a few hours. Trying hard to concentrate on getting through what is immediate. I'm very grateful for your kind messages and especially your prayers.
Barb A
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12-06-2012, 08:29 AM
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#37
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Re: New Battle
Ameebarb,just want to send gentle hugs and let you I'm thinking about you. I'm originally from the S Jersey area and have had family members treated at Wills.. Outstanding facility!
I'm just wondering if your Onc has discussed genetic testing for the BRCA genes? Their is a link between BRCA 2 and ocular melanomas. This might give you additional options for your treatment arsenal. Forgive me if bringing this up brings you more angst.. but I felt it important to bring up.
If you like, I would be willing to post articles relevant to BRCA and OM.
Praying for good result
Gentle hugs,
Marcia
Last edited by Soccermom; 12-06-2012 at 08:37 AM..
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12-06-2012, 04:11 PM
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#38
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: New Battle
Hi Marcia. I agreed to genetics testing, but the counselor didn't go into huge detail regarding which genes were being tested. I'll find out more when the results are in, and we talk. Being done at Thomas Jefferson.
Barb A.
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12-06-2012, 11:56 PM
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#39
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Re: New Battle
Barb I love how you asked for prayers for healing and PEACE! What a wonderful concept. We all so need plain old peace
Keep the faith
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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12-07-2012, 02:55 PM
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#40
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Re: New Battle
Barb, Thinking of you today and hoping youre not in too much pain and that procedure went smoothly yesterday,
Jefferson is an outstanding facility! If BRCA testing is done will be sent out to Myriad Genetics (they hold the patent on the test)and should take a couple of weeks.
Gentle hugs,
Marcia
Last edited by Soccermom; 12-07-2012 at 02:57 PM..
Reason: more info
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