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07-09-2009, 07:49 AM
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#21
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Eric,
My heart is breaking for you and the children. You can be very proud of the way that you and Caryn fought this.
I pray that God comforts you during this difficult time.
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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07-09-2009, 07:53 AM
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#22
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Eric
My heart goes out to you and your children. I echo Joe and Christine that this damn disease has robbed too many families of their wives, partners and mothers.
You both fought so hard and with tremendous courage and grace.
You and your children are in my prayers and your lovely wife at peace.
Love Ellie
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07-09-2009, 07:53 AM
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#23
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Senior Member
Join Date: Aug 2006
Posts: 492
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I am so sorry Eric. You are such a wonderful husband. Heartbreaking. Wishing you and the kids peace and stength.
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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07-09-2009, 07:58 AM
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#24
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Senior Member
Join Date: Jul 2008
Posts: 96
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Dear Eric,
Caryn is in a place where there is no more pain and suffering. She was a brave and courageous lady and with such a loving family, i am sure she was really blessed,
We must celebrate her life and i am sure she would like to see you all happy. So please take courage and thank God for all the wonderful things she brought into your life.
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07-09-2009, 08:03 AM
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#25
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Dear Eric,
I am so sorry. Please know that Caryn was inspirational to all of us. What a terrific husband and friend you were to her. I pray that you and your children will somehow be able to find comfort during this very sad time.
Hugs and Prayers,
Lexi
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07-09-2009, 08:36 AM
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#26
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Eric...
I am so sorry to hear of your loss. My thoughts and prayers and with you and your family. Take care and God bless.
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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07-09-2009, 08:43 AM
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#27
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Senior Member
Join Date: Mar 2009
Posts: 508
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I send my deepest sympathy.
Barb A.
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07-09-2009, 09:02 AM
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#28
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Senior Member
Join Date: Jul 2006
Posts: 869
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Dear Eric, I have tears in my eyes and an ache in my heart as I tell you how sorry I am. May God hold you, your children, and family and friends close. Sincerely, Ceesun
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07-09-2009, 09:11 AM
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#29
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Senior Member
Join Date: Apr 2008
Location: me & my three HANDSOME grandsons!!Jacksonville, Arkansas
Posts: 354
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Eric,
I cannot pretend to know your anguish right now. You both fought so hard. Hugs for those beautiful children that you and Caryn so lovingly created. She lives on through them.
__________________
Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
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07-09-2009, 09:21 AM
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#30
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Senior Member
Join Date: Sep 2005
Location: OH
Posts: 385
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My sincere sympathy
to you, your children, and Caryn's family. I know how it feels to lose a spouse and it's indescribable. It is the most intimate relationship you can have with another person and it feels very raw. There's a vulnerability component to it because no one knows you quite like Caryn did. The blessing of your marriage to Caryn is the children you have. It's hard to see your children mourn, when you're hurting too. You could not have done more for Caryn than you did. You were amazing!
__________________
Diagnosed 4/03/03, age 50
3.5 cm, 0/19 positive nodes
Stage IIA
Her2++, ER & PR++
RB Mastectomy, 4 AC,
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07-09-2009, 09:28 AM
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#31
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Senior Member
Join Date: Jun 2007
Location: Bergenfield, NJ
Posts: 121
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My heart goes out to you and your children. Please know that you are in our thoughts and prayers. Caryn is at peace now with our Creator. God Bless you and your children.
Love,
Gemma
__________________
My love to you all
Gemma
____________________________________
Dx July03 at 35
Rt,breast lump.,1 node+
ER+(98%)ER-, grade3
A/C 4rounds,Rad for 38 days
Tamoxifen 2004-05
Recurrence Feb.2006, radi double mastectomy canceled bec. of mets, StageIV lungs mets
Her2+++, BRCA negative
Taxol/Herceptin six rounds of Taxol from April06.then Herceptin alone til May07. Started Tykerb/Xeloda in Jun07-Sept.07 bec of progression of the lympnodes. Navalbine/Herceptin Sept.07 to April 08 due to progression . Gemzar/Hercptin Apr08.June08 Brain MRI showed Brain Mets.CraniectomyAug.1,08, tumor removed completely
completed 20 wbrt!
Started Doxil 10/31/08 (monthly) and weekly Herceptin
Ixempra on 2/13/09
due to multiple hepatic mets
will have Herceptin as well.
Radical rt.breast Mastectomy June2009.
Ixempra/Herceptin 11/06/09--increasing right axillary lymphanenopathy and enlarging left upper lobe nodule :-(
Taxotere/Herceptin 3/5/10,more liver mets, lungs, lymphnodes. 2 weeks on, one week off...
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07-09-2009, 09:32 AM
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#32
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Senior Member
Join Date: Jan 2009
Location: Colorado Springs, CO
Posts: 430
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For Eric:
Praying God will comfort you as you grieve the loss of your special angel, Caryn. At a time when words fall short, may God answer each prayer spoken for you with strength of heart, peace of mind, and comfort in the midst of your sorrow.
For your children:
You were such a special part of your mom's life, and she was so proud of you. Remember always that you brought much joy to her life. May God help you when you are feeling sad, and remind you of just how much you will always be loved.
My sympathy and prayers to all of you, and to your extended family.
Alice
__________________
9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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07-09-2009, 09:52 AM
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#33
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Senior Member
Join Date: Oct 2005
Location: Boise, Idaho
Posts: 758
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Eric,
Someday God will see fit to help us understand why these tragedies must occur. In the meantime you and the children are in my prayers.
Love & hugs,
Marlys
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07-09-2009, 10:19 AM
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#34
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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I am so sorry, for her, for you and for your children, that she didn't get more time to wait for the "wonder drug".
I hope you will be supporting your children the way you have Caryn. And that you will find the support you need to get through this terrible loss.
My heart goes out to all of you. And to all of us, for we will miss Caryn too. She is one of us. She allways will be.
Hugs
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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07-09-2009, 10:47 AM
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#35
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Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
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Honor
You and your family seem to have faced your challenges with honor. You were always positive, and were very admirable with your ability to avoid the natural responses of anger and resentment, and you helped her make the journey to the other side with love and confidence, hope and generosity on her side. Her spirit must be at peace knowing there is so much love for her. We will all miss her, and we're all here for you to share any feelings you want to share. The doctors and scientists who are searching for those new discoveries are learning from people like her. She made a big impact on the world in many ways.
Today I wear black and my HER2support pin for her.
Bless you and your children Eric, Love Celeste
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
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07-09-2009, 11:08 AM
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#36
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Dear Eric -
You know how we rally our energy around those in need on this board. In the past you have been one of those sending sympathy and love. Now receive our heartfelt support for strength in the coming days and weeks.
We know you did everything humanly possible to keep Caryn in the fight. Thank you for the expression of appreciation for Joe, Chris and this site.
The ache in my heart is a mix of feelings - all of which have been expressed above.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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07-09-2009, 11:21 AM
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#37
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Eric,
You are an amazing spouse. I am sorry for Caryn's passing and I hope and pray that you and the children will be consoled by the beautiful memory she had left with you.
Joe and Christine had expressed what we really felt at heart. I am glad to know that you will continue to help us out on the board.
Our deepest sympathy to you and your family.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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07-09-2009, 11:26 AM
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#38
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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Oh Eric, my heart is broken in pieces for you and your children. I am so sorry. We love you and Caryn deeply. Thank you for sharing her with us. You both fought so valiantly and courageously. She was lucky (and very proud I suspect) to have you fighting for her and looking out for her. God has a beautiful new angel who will be looking out for you and your children now. Deepest love and prayers to you at this time.
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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07-09-2009, 11:34 AM
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#39
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Senior Member
Join Date: Aug 2006
Location: Poland Ohio just a little south of Youngstown.
Posts: 473
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Eric, I am so heartbroken to hear this news. We have all had Caryn on our minds and have been praying constantly.
You were so fantastic, she was blessed to have you at her side.
May God bless you and your children.
__________________
Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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07-09-2009, 11:39 AM
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#40
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Eric,
I'm not even going to read anyone's response here, I expect I will say much the same thing.
I am so saddened by this news, and wrap you and your family in loving prayers.
I think Caryn was always an angel, she has just moved on - whole and complete in God's embrace.
You are also an angel. I've learned and gained so much strength from you and Caryn's example. Caryn fought so hard, with you beside her. I can't imagine what you are going through - although I do imagine it all the time just with different faces (my family's faces).
What I would hope for myself and my family (aside from, as you called, radical changes in the fight) is that they would stand with me, fight for me and love me with even half the grace and passion that you have held in your fight.
I would hope to be as courageous and determined as Caryn was. I would hope that my husband, sister and niece would never feel they failed, would never let themselves be without love, and would find sunshine and joy again soon. And that they would know I would never leave them, I would always be as close as a memory and if they ever needed my advice, they could just ask "what would aunt chris say?" then listen to their hearts.
With much sorrow and love,
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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