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05-24-2006, 06:28 PM
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#41
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Senior Member
Join Date: Oct 2005
Posts: 476
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maryanne,
My heart goes out to you and I will pray for your recovery. I am at a loss on what treatment you can undergo to get rid of the leukemia. Since leukemia is a system wide lesion, the treatment must be for the whole body, I suppose. Keep up with your fighting spirit and be brave.
Ann
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05-24-2006, 07:02 PM
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#42
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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You are stronger than this,
Dear MaryAnne,
You are in my thoughts and prayer. We all love you and know with your strong will and courage you will win this battle again.
Love and hugs,
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05-24-2006, 07:20 PM
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#43
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Keeping you in my thoughts and prayers, Maryanne. "Be of good courage for He is your guide."
Sassy
________
Property For Sale Pattaya Thailand
Last edited by sassy; 08-22-2011 at 08:47 AM..
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05-24-2006, 07:34 PM
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#44
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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Maryann,
This is just the worst news. I am truly sorry you have this on top of everything else you have been through. Just know I'm thinking of you and will keep you in my prayers. Do try to keep us posted.
Love, Kim in CA
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05-25-2006, 01:43 AM
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#45
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Senior Member
Join Date: Sep 2005
Location: .
Posts: 211
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Dear maryAnne
you have our prayers, support and anything else you need. I am so sorry you have to go through this - you have been so supportive to others in our time of need.We are all here for you now.
love
linda
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05-25-2006, 03:10 AM
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#46
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Member
Join Date: Feb 2006
Location: Melbourne Australia
Posts: 13
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Dear Maryann
Stay strong and positive in the knowledge that all your friends on this site will always be here to listen and support you through the good and the bad times. My thoughts and prayers are with you and your loved ones.
Kindest regards
Helen
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05-25-2006, 04:53 AM
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#47
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Maryanne
Your news is overwhelming, but not overpowering....put on the gloves for another round...you have come to far with so many other obtacles to let this stand in your way...you are young and have the spirit in you...fight hard, we need you and you children need you....you will be in my prayers daily that this will setback will be dealt with promptlt and effeciently...keep strong Maryanne, and if you feel down or overwhelmed, remember the love and energy on this board surrounding you. Sending love and a big hug.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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05-25-2006, 05:41 AM
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#48
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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THANK YOU everyone for the OVERWHELMING love and support. I am passed the shock and in to AMAZON mode. I will be reading EVERYTHING and seeing my new leukemia specialist doctor (I don't know if there is a name for it yet - new lingo to learn - sigh) on Tuesday loaded with questions, concerns and attitude...I will keep you posted and will have a friend post when I can't. Thank you again!!!!
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05-25-2006, 06:25 AM
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#49
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Maryann;
Here are some sites I found....hope they help. God bless.
For other organizations that offer information and resources, see Organizations That Can Help: A Searchable Directory.
Cathy |
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05-25-2006, 06:28 AM
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#50
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Senior Member
Join Date: Nov 2005
Posts: 943
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OH, I am so........sorry to hear of your new diagnosis. I am glad you posted so we can all join in to encourage you. Keeping you in prayers...
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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05-25-2006, 06:33 AM
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#51
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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I am sending you prayers and strong wishes for recovery. Two of my cousins had childhood leukemia (they are fine now) , so I wasn't happy to read that leuk could be side effect of chemo. I am amazed at the fighting spirit of women on this board and in my weekly support group. We are all soldiers here. MJo
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05-25-2006, 07:08 AM
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#52
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Member
Join Date: Nov 2005
Location: Baltimore
Posts: 20
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Spoke with my friend
Spoke with my friend who went through the exact same thing - she said she'd be happy to talk to you. Let me know.
Olivia
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05-25-2006, 12:50 PM
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#53
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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Maryann-
I was so sorry to read your initial post, and please know you are in our thoughts and prayers - and I can't wait to hear of some good news for you, so you'll have that signature with the swirls around it, which always brings me a smile when I see your posts...
hang in there...
shell
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05-25-2006, 02:09 PM
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#54
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Dear Maryann
My girlfriend (who helped me through the beginning process as she got bc 2.5 yrs before me) got AML just after I was diagnosed. At the time (since I was just having my surgery and really didn't know anything yet) she told me it was that lightning struck twice but later admitted it was because of chemo (and that the cytoxan is the likely culprit). She is 18 months from her last treatment for AML and is doing wonderfully. She is also doing well on the bc front as well (she was only ER/PR+ ).
I am sure she would talk to you and if you would like, privately email me and I will get her your phone number so she can call you. She got treatment from Dr. Fazi Bari at Morristown General (Carol Simon Cancer Center) in Morristown, NJ.
My thoughts and prayers are with you.
Kindest regards,
Becky
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05-25-2006, 05:24 PM
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#55
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Senior Member
Join Date: Sep 2005
Posts: 589
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Marriane, I'm sooo sorry that you have to face this new challenge. It never seems fear. As you can see from all these posts, the one thing that you will not have to worry about is the love, support and prayers that will be heading your way. I hope your new road to recovery is as quick and easy as possible.
Eric
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05-25-2006, 05:38 PM
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#56
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Senior Member
Join Date: Nov 2004
Location: Indiana
Posts: 123
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I know that I have had that concern too. I have been on chemo 8 times and I have had radiation 4 times now.I'm so sorry to hear your news. You are in my thoughts and prayers. Please keep us updated. Patty H
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05-25-2006, 05:45 PM
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#57
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Senior Member
Join Date: Sep 2005
Posts: 95
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Maryann,
I join all of the rest of our friends in wishing you strength and confidence as you battle back against this latest blow. Please know that we are all here rooting you on.
Hugs,
Cynthia
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05-25-2006, 07:37 PM
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#58
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Senior Member
Join Date: Mar 2006
Location: Chicago, IL
Posts: 42
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Maryann - I am so sorry you have to go through yet another treatment. You are in my thoughts and prayers. This too will pass. Keep fighting. Hugs.
Lisa
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05-25-2006, 07:55 PM
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#59
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Senior Member
Join Date: Jan 2006
Location: Clutier, Iowa
Posts: 61
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sending hugs and prayers
Maryann,
I've been away from the computer and now have just read your post. Extremely sorry to hear of this new and scarey news that you have to endure. Just go into it with the NY attitude and don't let it get you down. Us NY'rs are really good fighters, esp. when we give attitude! You'll make it through, esp. with all of us pulling for you through our prayers, thoughts and hugs being sent.
Thinking and praying for you. Keep your chin up.
Sue
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05-25-2006, 08:04 PM
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#60
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Hang in there Maryann. If we can outlast this thing a few more years, I think Science will come to the rescue. Will pray for you. BB
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