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12-26-2012, 07:54 AM
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#1
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Senior Member
Join Date: Jul 2011
Posts: 954
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Note for Lani
Good morning Lani,
I hope 2012 finishes off well for you: there's less than a week til 2013 .
You told me to post again on 12/23 if I still needed help with my breast density paper and so I did. I have written my paper but am hoping to improve it. I did not expect your help over Christmas of course but want to verify that you saw my message to you in that thread and are still able to give me a hand. Here it is: http://her2support.org/vbulletin/sho...highlight=Lani
Can you please PM or email me after you look at my note in that thread? If you have changed your mind, no pressure or problem but it would be very helpful for me to know either way.
Thanks a bunch,
Paula
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12-26-2012, 07:05 PM
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#2
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Note for Lani
Well, Paula, I hope you do not mind my taking the opportunity to hijack your thread to wish you and our friend, Lani, a happy new year full of wonderful break-throughs and blessings. Lani, a special thank you for all you do for us here on Her2Support. You rock!
Good luck with your paper, Paula.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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12-27-2012, 08:32 AM
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#3
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Senior Member
Join Date: May 2008
Location: Oregon
Posts: 110
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Re: Note for Lani
Hi Paula,
Have you seen the TED talk by Deborah Rhodes from January 2011? She talks about dense breasts and molecular breast imaging, an alternative/additional way to look at dense breasts.
She's from the Mayo Clinic where they're doing a lot of research on breast imaging
__________________
Henny
Dx 3/07 IDC and DCIS Her2+ ER- PR-
Stage IIb 1/15 nodes
A/C, Taxol, Herceptin
Bilateral mastectomies with recon
Zometa 2/yr for 3 yrs- finished 8/2011
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12-27-2012, 10:46 AM
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#4
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Senior Member
Join Date: Mar 2006
Posts: 4,778
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Re: Note for Lani
Have been a bit overwhelmed with things needing my attention and under the weather (nothing serious) so I think I need to bail on this one.
I am sure the Alamo breast organization knows not everyone can review talks as well as those who speak at the meetings and your level of concern shows you are working hard at this.
If I recover soon, I'll get back in touch. In the meantime, I want to let you know I am truly sorry to have drop the ball!
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12-28-2012, 07:23 AM
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#5
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Senior Member
Join Date: Jul 2011
Posts: 954
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Re: Note for Lani
Thank you for letting me know, Lani. I'm sorry you aren't feeling well and hope you get to feeling tip-top and get all caught up real soon.
As far as my paper goes, I've worked hard on it and I think I am all done unless I hear back soon from one of the Dr's who volunteered to be mentors to the breast cancer advocates for the Hot Topic assignment. Two emails bounced back and I didn't get a reply back from the other two doctor mentors that I wrote individually to see if they could read over my paper and give any input/help me sum up the science I didn't understand better. I know people are busy. Oh well, no worries. I think the paper is probably fine as is without more tweaking. I've learned a lot and given it my best which I can feel good about.
Laurel, Thanks for the New Years greeting (mine are right backatcha) and well wishes on the paper. My daughter's middle name is Laurel. I think it's a beautiful name and reminds me of the lovely Mountain Laurel flowering bushes we had in Connecticut, (their State Flower).
Henny, I hadn't heard that TED talk before and just listened to it. Wow, that's research/technology to get excited about! I appreciate you telling me about Deborah Rhodes and I discovered some info i didn't know which were nice additions for my paper. Thank you. Perhaps others would be interested too. I found her on Youtube:
Deborah Rhodes: "A tool that finds 3x more breast tumors, and why it's not available"
http://www.youtube.com/watch?v=DqbM1ZrpTQg Jan 6, 2011
Have a great day!
Paula
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12-31-2012, 07:25 AM
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#6
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Senior Member
Join Date: Jan 2012
Location: Boulder Colorado as of January 2013
Posts: 389
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Re: Note for Lani
Lani,
I hope you are feeling better. I agree with your request. Please let me know when it is okay.
Rolepaul
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01-01-2013, 02:00 AM
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#7
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Senior Member
Join Date: May 2006
Location: Mesa, Az
Posts: 219
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Re: Note for Lani
I hope you get felling better, and are resting. You have been such a blessing to us all. I appreciated your posting a while back about yourself to encourage some one else.
My prayers and gratitude go out to you and your passion to help others in this battle.
Darita
__________________
dx 1/06 IDC 2cm 38 at dx
2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis
3/06-9/06Taxol/Carbo/zometa/Herceptin
3/07 6 brain mets WBR down to c-2
4/07 osteonecrosis jaw
1/08 mri new 9mm lesion right lower side
2/08 gamma knife 1 lesion 11/08 regamma
10/09 latent rad necrosis to brain met,
1/20/10 crani: lesion necrosis w active cells continue her add tykerb
1/11 NED just Ingrown toenail! YEAH GOD
8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans
oct -march 11 new neuro deficits lower legs
3/12 2 spinal metsTykerb, Herceptin
04/12 4050cGY rads T 2-4 & T7-9
5/12 Brain,cervical lumbar clear/thoracic slight decrease
10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly.
9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec.
last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative.
10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney!
12/13 Mri brain no new lesions, cervical and lumbar arthritis.
Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain
1/29/14 HIHO HIHO its off to Neuro surgery I go
Life is Good when you wake up in the morning and take a breath and know that God has given me another day.
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01-02-2013, 12:06 PM
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#8
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Senior Member
Join Date: Jan 2012
Location: Boulder Colorado as of January 2013
Posts: 389
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Re: Note for Lani
Lani,
PM me when you are ready. I change jobs on Friday (1/4) to Monday (1/7) but another option is chemengmba@aol.com.
Rolepaul |
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01-02-2013, 09:30 PM
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#9
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Senior Member
Join Date: Aug 2007
Location: Detroit Metropolitan Area, Michigan
Posts: 592
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Re: Note for Lani
Deborah Rhodes: "A tool that finds 3x more breast tumors, and why it's not available"
http://www.youtube.com/watch?v=DqbM1ZrpTQg
Henny and Paula, Just wanted to say Thank you for sharing the link. I also watched several other TED videos. Thank you!
__________________
Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+
Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4
Dec06-Nov07...Herceptin
Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders
Mar07-Jun07...Saline Exp
Jun07...Start Tamoxifen
Jun07-Aug07...Rad x 25
Jun07-Oct07...Persistent fevers-unknown origin
Jun07-Nov07...PT for Severe PMPS & Capsular Contracture
Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly.
Feb08...NED 1st CANCERVERSARY!!!!!
Feb08...2 months post surgery Caps Cont again :(
Mar08...Stop Tamoxifen. Start Arimidex.
Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks
Feb11...NED 5th CANCERVERSARY!!!!!
Feb12...NED 6th CANCERVERSARY!!!!!
Aug12...Spotting. Surg=D&C
Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+).
Sep12...Stop Arimidex. Start Afinitor & Aromasin.
Jan13...MRI = no progression no reduction
Apr13...Progression. Stop Afinitor & Aromasin.
Apr13...Start Chemo: Taxol & Carboplatin.
Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston.
Jan14...PET scan = no progression stable.
May14...Pelvic > Bleeding & cramps. TMs up.
May14...PET scan = uterine progression :(
May14...Stop Fareston. Start Chemo: Xeloda.
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01-03-2013, 12:15 AM
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#10
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Senior Member
Join Date: Mar 2006
Posts: 4,778
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Re: Note for Lani
Got your message. Will try to be in touch with the man with the kits before getting back with you. Hope I didn't jump the gun...ie that he still has them and will think it worth my checking to find out who might be the best investigator to utilize them in this way.
Good luck with your job change.
Will try to PM tomorrow
Lani
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01-10-2013, 02:05 PM
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#11
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Senior Member
Join Date: Jan 2012
Location: Boulder Colorado as of January 2013
Posts: 389
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Re: Note for Lani
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