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05-06-2008, 01:00 PM
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#21
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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Thanks Marie,
I am totally crushed right now for Michell,Kate and Carol. My heart goes out to their familys and to our family also. If I didn't have this site I truely believe I would not be here as long as I have been, I love you all!
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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05-06-2008, 03:23 PM
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#22
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Senior Member
Join Date: Sep 2006
Location: East Central Illinois
Posts: 89
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Now Michelle. Such sadness at the loss of 3 dear sisters. May God comfort their families and friends.
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05-06-2008, 03:35 PM
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#23
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Marie,
Please let Michelle's family know that she and they are in my prayers.
Thank you for being such a good friend to Michelle. I'm sure it gave her a lot of comfort in her struggle.
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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05-06-2008, 04:33 PM
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#24
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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I am truly sorry we have lost so many this week. My sympathies to the families and friends.
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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05-06-2008, 04:51 PM
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#25
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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More sad news!!!
My thoughts are with Michelle's family. I send them my deepest sympathy. This is such a sad day and a sad week. The flowers and trees are blooming in this area of New England. When I see them I will think of Michelle.
Barbara H.
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05-06-2008, 05:34 PM
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#26
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Marie,
Once again I have no words, only tears. Yet in the face of all the sorrow of the past week, I am humbled and heartened by the strength of the love you shared with Kate and Michelle, and with us all. It is no accident that when everything else is falling away all that matters is the love that we hold within us forever.
May God wrap Carol, Kate, and Michelle's families in that love.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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05-06-2008, 06:22 PM
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#27
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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My thoughts and prayers go out to Michelle's family. Marie, thanks for keeping us informed. I'm so sorry to hear this news, too. What a miserable week. Stay strong.
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05-06-2008, 07:01 PM
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#28
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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My most heartfelt condolences to Michelle's family. Such a devastating week it's been for us warriors who continue on this journey.
I always say as we pray for God's healing. He will heal whether it be in this world or the next. It's hard for us when the Lord chooses to heal in Heaven because we miss those who we love here on earth. But, for our sisters who are now experiencing the ultimate healing, peace and joy my heart rejoices for them. There struggles are now over - forever.
Marie, thank you for keeping us posted and for being one of God's special angels here on earth.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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05-06-2008, 07:41 PM
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#29
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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I don't know what to say - 3 amazing women to leave us - Carol and Michelle leaving young children, and Kate the Great, with all her spirit - gone? Really a rough week here. I pray for their families.
speechless, tears in my eyes.
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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05-06-2008, 07:59 PM
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#30
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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My heart is with Michelle's loving husband and her young children. I hope they find peace here on earth as Michelle has in heaven. I am sure God took Kate first so she could be there for Michelle when she arrived.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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05-06-2008, 08:13 PM
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#31
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Speechless and devastated by the news. God bless you all and let's hold together. My condolences to the family of Michelle.
All my love,
Paty
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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05-06-2008, 11:31 PM
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#32
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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This is just what I did not want to hear. Talk about a heavy heart this is just too much. I am really at a loss for words. I want to extend my deep and heartfelt sympathy to Michelle's family and friends at this very difficult time. My deepest condolences.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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05-07-2008, 05:52 AM
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#33
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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It's not right and it's not fair. It reminds us all that there are no guarantees and that every minute is precious. I hope that the families of these three lovely women will be comforted in time.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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05-07-2008, 06:12 AM
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#34
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Senior Member
Join Date: Aug 2006
Location: Poland Ohio just a little south of Youngstown.
Posts: 473
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Thank you, Marie, for keeping us informed. What a devastating week for so many people. It's so hard to comprehend that not so long ago, our angels were posting to us and sharing their love with us and cheering the rest of us on, now they are gone. The only way to get thru this is to picture them together, holding hands and watching over the rest of us. They will be missed so much. My sincerest sympathies and love to their loving families.
hugs
__________________
Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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05-07-2008, 08:10 AM
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#35
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Senior Member
Join Date: Sep 2005
Posts: 556
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I am very saddened with the news. My heartfelt condolences to her Michelle's family.
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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05-07-2008, 01:55 PM
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#36
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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I have been changing homes and have not been on since May 3 and when I opened the site, so many gone.
It is so sad for us and their families. God bless them
all. Sometime I wonder why I volunteer at Gildas club,
why I belong to survivor groups, why I go to Her2, Why?
Sometime it is so sad, but I could not have made it
this far with the knowledge I have without the support
of others. This is why we support each other even
though there are sad times.
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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05-07-2008, 04:28 PM
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#37
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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Marie...
Everyone is so right in what they have said about you. You are our angel here on Earth. I am just sick, sick, sick to see the loss of Michelle. Another young mother taken by this vile disease. this has been an awful week and I can only pray that our sisters are up there somewhere having coffee and getting to know each other in a beautiful garden. that is what I would like to think anyway. Please share more thoughts and prayers from me with Michelle's family. And much love to you and Ed.
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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05-07-2008, 05:13 PM
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#38
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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I am also overwhelmed (I don't know why my print is so big) over the loss of our 3 sisters, I don't know what to say. I read about it late yesterday afternoon and felt so sad that I just laid down and slept. I feel so much sadness for their families and friends. We needed a cure for this disease yesterday. I pray that God will hold them in his arms and comfort them. This just seems to be too much to bear.
I think I have not been replying a lot on this side, because of the sadness I have been feeling. On March 5th my dr. put me on leave from work and told me not to drive right now. It has been hard on my family to transport me everywhere, but losing some of my independence has made me feel so helpless. I know that must be how many on this site feel. I kept hoping there would be a time when I got better, but I guess that is not true. I am still praying for all of my sisters everynight.
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05-07-2008, 05:37 PM
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#39
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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What a sad week. My deepest sympathies to the families of these three beautiful ladies. They are at peace now with smiles on their faces looking down and watching over us. May we all find some peace in our hearts.
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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05-08-2008, 06:09 AM
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#40
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Senior Member
Join Date: Apr 2007
Posts: 292
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Having a young child, my heart just breaks for Michelle and her family. I hope that they will stay strong, in love and prayer to get through this (immensely) difficult time.
Hugs,
__________________
Krista
Diagnosed 3/29/2007 @ age 34
Stage 1, Node Neg. (SNB), Grade 2, 1.4 cm. IDC
ER/PR 90%+ HER2 +
6 TCH started 5/25/2007, ended after #5 due to steroid "reactions" and neuropathy in feet and hands
BUT--#6 CH w/o Taxotere
Begin Herceptin alone 9/28/2007
30 rads completed 12/19/2007
Finish Herceptin 5/9/2008
Stopped Tamoxifen early--HATED it.
Married 17 years
13-year old son
3 embies on ice (from 1999)
GA, USA
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