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Old 02-18-2013, 04:33 AM   #1
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Having chocolate for birthday...

Been sleeping odd hours because the thalamus (in charge of the sleep-wake cycle) has been affected by one of the Central Neurocytomas in my brain. So I woke up at 2:30 am and ate a big bowl of oatmeal (with milk, strawberries, orange, black berries, yogurt, raisins, walnuts, and banana) Did make an extra bowl for hubby who happened to wake up from the recliner in Father-in-law's living room.

Then I noticed it's actually my birthday! So I opened the small heart-shaped box from Valentine and gobbled down one of the five pieces... Happy birthday to me!

Did remember to take the last of the 10 antibiotic capsules prescribed by the PA five days ago...

My In-laws birthdays are also in February - my late MIL's birthday is actually a day ahead of mine (though 33 years apart), so we used to always celebrate together. Sister-in-law has arranged a 90th Birthday Celebration for FIL Saturday in the Community Center just around the corner of his house. We are expecting 100 family/relatives/neighbors/friends ...

Since mine won't be part of that celebration, guess hubby and I will have some Chinese take out today when we get back to town ...

Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
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1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.

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Last edited by Jackie07; 02-18-2013 at 05:00 AM..
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Old 02-18-2013, 09:53 AM   #2
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Re: Having chocolate for birthday...

Happy Birthday, Jackie.
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Old 03-29-2013, 04:37 AM   #3
Paula O
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Re: Having chocolate for birthday...

Dear Jackie,

I haven't been around the forum as much and am sorry I missed this when you posted this in February. I hope you had a stupendous birthday and that this year ahead is one of joy and lovely surprises for you.

Thanks for all the effort you make in posting research and your kindness in being there and supporting others.

Is your sleep better these days?

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Old 03-29-2013, 04:59 AM   #4
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Re: Having chocolate for birthday...

Jackie, I'm sorry too, that I missed your birthday. I echo the thoughts that you are so helpful researching, and reaching out to others. So I hope you had a good birthday (I love the sound of the breakfast you made, I think I will try to emulate that tomorrow, yum!). And I hope you have a great day TODAY!
Dawn xxx
Dx May 27 2011, age 43
Stage 1V 3.6cm breast lump, spot on lung nodes chest + neck
Abraxane weekly - 16 weeks
Herceptin every third week
September 26 2011 N.E.D!
Herceptin ongoing
8th Dec 2011 Brain MRI - clear
20th Dec 2011 bone/cat scan clear still NED
April 2012 scans show axillary node lump - ? what to do...
June 2012 Axillary node dissection 1/11 nodes affected, a wide local excision shows DCIS. Now what to do again? Watch and scan 3 monthly
April 2013, two spots in nodes to chest wall, start TDM1 as part of clinical trial
July 2013 stable
Oct 2013 progression off TDM-1
Nov 2013 radiation to lymph nodes in sternum
Dec 2013. Mastectomy right side, pathology shows tumour was HER-2 negative, no wonder TDM-1 didn't work!
April 2014 NED. On Herceptin only
August 2014 NED. On Herceptin only
March 2015. NED. On Herceptin only
September 2015 NED on Herceptin only
March 2016. Pulmonary embolism, Clexane injections daily forever. Still NED On Herceptin only
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