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04-02-2007, 08:44 PM
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#21
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Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
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Be Gone Mets!
Yeah, Sandy! I'm sending you constant prayers. I start Tykerb/Xeloda and now wonder if it will do anything for me. I have been off treatment for 6 weeks and the mets are growing..... Let me know how you are doing. I'm imagining those nasty mets disappearing as I send this to you. I pray the Doxil is doing a good job of getting rid of those nasty creatures....Much love, Vickie
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04-02-2007, 09:04 PM
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#22
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Sandy, I had no idea that you were having these treatments. Your smiling face fooled me. I thot you were out of treatment. I find it difficult to keep up with everone's story. Anyway....glad you are giving the nodules the heave ho. Now what are nodules? How embarrassing to be so dumb. All the very best to and the rest of our pals.
Catherine
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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04-03-2007, 06:31 AM
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#23
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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Sandy-
It's amazing to hear how quickly things can start working... I hope doxil does the trick for you.
Regards,
__________________
Shell
init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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04-03-2007, 12:30 PM
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#24
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Member
Join Date: Apr 2006
Location: UK
Posts: 20
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My prayers are with you, Sandy. I hope this Doxil continues to kick hell out of those skin cancer cells and that they'll never dare to bother you again. If anyone deserves good fortune, you do.
God bless you.
Taffy.
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04-03-2007, 02:44 PM
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#25
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Thanks Tricia but I wish the Lord would not depend on me so much!!!! I don't like to have my plate running over all the time. It would be nice to see my feet! hugs to you all. Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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04-03-2007, 04:23 PM
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#26
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Dear Sandy, Its so wonderful seeing the "smile" in your post! Praying you can keep the good news coming..
Hugs,Marcia
Sandy..I didnt see the second posting of yours...I am so sorry that you've been made to feel so ill. I am hoping things "level out" for you and the Doxil xontinues to attack the skin mets!
Big hug,marcia
Last edited by Soccermom; 04-05-2007 at 09:19 AM..
Reason: my misunderstanding
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04-04-2007, 02:17 PM
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#27
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Senior Member
Join Date: Apr 2006
Posts: 63
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Sandy - toxic from Tykerb?
Sandy,
Would you mind expanding on what you mean by Tykerb becoming "toxic" for you?
With hope for continued healing.
Amy
__________________
Amy age 37 at dx
Feb 2008 Multifocal DCIS
Apr 2008 Bilateral Mastectomies
Sister to Laura age 37 at dx
April 2006
9 cm ER-/PR- Her2 +++/bone mets
neoadjuvant TCH plus Zometa
November 2006
bilateral mastectomy - Change to ER+/PR- Her2 +++
January 2007
innumerable tiny brain mets - WBR
March 2007
good response to WBR - some gone, all smaller
currently on Lapatinib and Xeloda
Feb 2008
Brain MRI: brain mets went from innumerable (jan '07) to 5 (june '07) to 3 (oct '07) to 1 that is getting less conspicuous(feb '08) PET/CT: Slight uptake in some sclerotic bone mets
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04-05-2007, 08:19 AM
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#28
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Senior Member
Join Date: Mar 2007
Location: SW Virginia
Posts: 50
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Sorry that the Doxil is making you feel badly, but hoping its got all the cancer cells on the run! I enjoy your posts and your positive attitude. God is in control and you can lean and depend on Him.
Easter blessings and hugs!
__________________
Susan in VA
Determined to be a VICTOR not VICTIM - by the grace of God!
DX 2/8/07 at 48
1.75 cm IDC in left breast, Stage 1
Grade 3, ER-/PR-/HER 3+
Lumpectomy 3/7/07, 5/5 nodes clear, clear margins
Starting TCH on 4/9/07, every 3 weeks X 4 treatments - Completed on 6/12/2007
33 rads to began 7/2/07 and completed on 8/22/07
Herceptin every 3 weeks until April '08
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04-07-2007, 05:26 PM
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#29
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Senior Member
Join Date: Sep 2005
Location: .
Posts: 211
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Dear Sandy
i am so happy the doxil is working for you. I did not know you were suffering with pleural effusioon. How was the Tykerb toxic?
I have started the Imiquimod treatement and the skin mets are getting red and other s are bleeding. this is ok as it means the T cell thing is being activated - apparently. Not sure what to expect next - in unchartered territory.
love
Linda
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04-11-2007, 01:28 AM
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#30
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Senior Member
Join Date: Nov 2004
Location: Streetsboro, Ohio
Posts: 365
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Hi Sandy,
How do you like Doxil? I have been on it since December. It has been easy for me to tolerate. I have some mouth soars for a few days and dry hands and feet.
I had my pleural effusion drained in December. It feels so much better not having all that pressure around my lungs. It isn't very painful. It was just hard not to breathe when they inserted and removed the tube. I had almost a full litre removed and they didn't remove all of it. There is a slim chance your lung will collapse if they take all the fluid.
Take care. Lu Ann
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04-11-2007, 05:49 AM
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#31
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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I am not having any problems with the Doxil-just lots of pain with the skin mets which is very new for me. I e-mailed my oncologist and he said it is slow acting and it will take 2 to 3 doses before we will know if it is working. I am use to the Taxol working fast with visual changes. The Doxil works from the inside out and so it would make sense that if it is killing those skin mets they would be painful. He did make me feel better as I was concern it wasn't working and we still are not sure it is. Its wait and see as usual. One day at a time. As for the effusion its small and not enough to drain off. Plus, I think I pick up a small bug from my husband so that has made things worse with a dry throat and cough. So its drink lots, lots of fluid, eat well and rest. For those that want to know about the Tykerb I was feeling ill about an hour after taking it and gradually feeling worse as the day went on. Felt like I wanted to roll up and die. Once I stopped it I was fine. Nothing, that should stop anyone from trying it. My body has a way of telling me when it has had enough! hugs, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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