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Old 09-20-2009, 08:08 AM   #1
Char
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Join Date: Aug 2009
Posts: 14
Question What does (NED) stand for?

What does (NED) stand for?
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Aug 07: 2 tumors 5cm and 2cm in R Breast. Hormone+/Her2+. R Mastectomy and 17 of 21 Lymph nodes positive.
TX: chemo, A/C and Taxotere
Mar08: Radiation 33 days. Herceptin 1yr.
Arimedex Daily for life.
R arm Lymphadema. July 09: Pet scan. finds tumor in L shoulder blade (scapula)
Treatment: Zometa IV Monthly, Monitor growth markers and Bone scans.
The Dr.'s will check markers to Oncologist: Dr. Muss @UNC & Dr. Cho CCHC New Bern NC.
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Old 09-20-2009, 09:10 AM   #2
suzan w
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Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
Re: What does (NED) stand for?

No Evidence of Disease! XO Suzan
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Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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Old 09-20-2009, 09:29 AM   #3
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Re: What does (NED) stand for?

Than you for your reply
what Does is cancerversary"

Char
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Old 09-20-2009, 05:45 PM   #4
Paty
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Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
Re: What does (NED) stand for?

Cancerversary: Anniversary on date you were diagnosed.
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Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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Old 09-21-2009, 04:31 AM   #5
Char
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Join Date: Aug 2009
Posts: 14
Re: What does (NED) stand for?

Thank you very much
My 25yr old daughter thanks you too
__________________
Aug 07: 2 tumors 5cm and 2cm in R Breast. Hormone+/Her2+. R Mastectomy and 17 of 21 Lymph nodes positive.
TX: chemo, A/C and Taxotere
Mar08: Radiation 33 days. Herceptin 1yr.
Arimedex Daily for life.
R arm Lymphadema. July 09: Pet scan. finds tumor in L shoulder blade (scapula)
Treatment: Zometa IV Monthly, Monitor growth markers and Bone scans.
The Dr.'s will check markers to Oncologist: Dr. Muss @UNC & Dr. Cho CCHC New Bern NC.
Char is offline   Reply With Quote
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