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New Plan, New Chapter for progression
Today begins another new journey for me in the cancer connection. The PET/CT and MRI showed tumor involvement with the brachial plexus nerve, causing the pain and numbness in the shoulder, neck and chest. I am fortunate that at this time, the 2 masses are pressing and not entwined. Gemzar was stopped today, and I will have mapping for radiation tomorrow. I will remain on Herceptin through rads, and will go back to the 3 week dose. Since I am not showing active systemic disease at this time, only local disease, it seems like perfect timing to try to blast the nodes and masses.
I am NOT looking forward to the 7 weeks of 150 mile a day trips to Chicago, but in the cancer world we do what we must.
After radiation, the oncologist said I will resume chemo.
When my journey began almost 10 years ago, I had 2 goals, to live 10 years, and to reach 60....well both will occur in the next 2 months, time for me to reset my goals and plan for 10 more years and 70! I refuse to go out without a fight!
Any tips on neck radiation are welcome, or radiation in general.....hoping I dont get too tired as I will be driving myself.....
I would appreciate prayers and positive thoughts for a successful journey ...I dont know how I would have gotten this far without all the love & support from those on this site!
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"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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