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Old 07-19-2007, 07:21 PM   #1
michele u
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Location: Henderson, NE
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Tykerb going right through!!

does anyone else have trouble with their Tykerb not absorbing? I take 4 instead of 5 at a time and 2 hours later one comes right through. Does anyone else have that trouble? I know that's gross but need to know ya know
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Michele Ulmer

dx: August 2003 stage 3b 35 pos nodes ER/PR neg Her+
4 AC 12 weekly taxol
one year Herceptin in trial
35 rad tx
vaccine trial Seattle
NED
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Old 07-19-2007, 07:28 PM   #2
Carolyns
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Not me. No problem like that at all.

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Old 07-20-2007, 09:35 AM   #3
Shell
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Michele-

I stopped the tykerb due to the diarhhea - never thought to examine for your issue, but it was probably so...I'm so glad I stopped it, but know for me that I had progressed while on it previously, so it's not like it was my 1st time on it...

I hope yours gets resolved...
Kind regards,
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init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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Old 07-20-2007, 02:55 PM   #4
IRENE FROM TAMPA
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Smile Your post made me laugh Michele

I am sorry as I know this is a big issue but you made me laugh.

I know that when I get the diarhhea bad, my stomach sounds like a water hose has been turned on itside and the same coming out. Gross I know and I am sorry but a fact, but I have never noticed one coming out whole.

You are taking the Tykerb on an empty stomach right?

Hope this gets resolved for you. I am interested to hear what your onc. has to say about this.

Take care
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Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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