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01-02-2008, 09:40 AM
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#1
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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Hi Everyone
Happy New Year!!! I have been following everyone everyday, just not posting lately. Not much to say I guess. But I continue to hold all of you in my thoughts and prayers through the good and the bad.
I thought I would update you on my very recent scans. I've been on T/X since May and the last scans showed pretty much no cancer activity anywhere. Meaning stable bone spots, lung nodules that haven't changed in 7 years-who knows- and the liver shows no real tumor activity. It just looks beat up, but is functioning well. She made the analogy of having had acne in one's life that leaves scarring and even after the acne is gone it is apparent that it was there-that is my liver. But my chemistries are still normal. So that was great New Year's news.
Also during my visit she discussed what she took away from San Antonio. She was surprisingly excited about the vaccine work and the immunofield-which is a little bit of a switch from comments she made in the past. So that was encouraging.
The other big news, ladies and gents, I MET SOMEONE really special and we have been dating for just a couple of weeks. During Christmas my girls went with their dad to Illinois. That is always sad, but being with this man over the holidays made up for it. It has been like one long week and a half date. I'm very smitten ; as is he.
I met him on-line as I was cancelling my subscription and ready to give up and he was too. He is not at all what I envisioned as the type of guy I'd end up with-looks-wise, but he is so funny, smiley, social, smart and hard working and tough given what he has been through in his icky divorce (WORD-never marry a Nevada judge and get divorced in Vegas where you have lived for 20 years).
He has a healthy attitude on life and it has been great. I never thought this could happen.
Soooo, I'm having a great start to 2008 and wish than for everyone here. I'm so thankful for Joe and Christine and Lani and all of you on this site. It is still the very best place for research and suppport on the net!!! Thank you to all of you and I just love you so much.
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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01-02-2008, 09:49 AM
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#2
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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So happy for you.......
Happy New Year to you too Joy.............
Such a wonderful, uplifting post!!! I couldn't be happier for ALL your wonderful news - starting with the "stable" scan report to the new "beau" in your life. Oh happy day!!!!!!!!!!!!!!!!!!!!!
I could feel your "Joy" jumping off the page and my heart is joyful for you.
May 2008 be blessed with all that matters! May His Peace reign supreme in your heart.
Love you,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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01-02-2008, 09:54 AM
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#3
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Hello Joy
Thanks for that upbeat post, I have been thinking of you so much lately. Glad 2008 seems to be starting off great for you, lots to be thankful for. I say you should celebrate with a latte!! LOL>>Your Latte Friend Forever>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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01-02-2008, 10:12 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Joy;
I'm so happy for you!! I too divorced a lawyer....financially not a good idea...lol...so I truly do empathize with your friend. Now that he's away from that he will appreciate you all the more. Enjoy the new year and all the best.
Cathy
__________________
Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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01-02-2008, 10:12 AM
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#5
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Senior Member
Join Date: Oct 2006
Location: Southern California
Posts: 900
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Hi Joy,
Even though I don't post much I visit this site everyday. Believe it or not, I was just thinking about you yesterday and wondering how you are doing. Great news about your scans! I hope that 2008 brings you nothing but GOOD news.
I have to comment about the new man in your life and how you said you did not envision him as your type. I was talking to a friend recently about 'types' and we came to the conclusion that perception and reality can be very different. No matter what you envision, your 'type' is the person that makes you laugh and lifts you up. It sounds like you struck gold.
Best wishes for a fantastic 2008!
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault
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01-02-2008, 11:14 AM
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#6
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Senior Member
Join Date: Sep 2005
Location: OH
Posts: 385
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Oh Joy
life is good...enjoy the moment, and the new relationship. I'm very happy for you, you deserve good things. Take care and be well.
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01-02-2008, 11:26 AM
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#7
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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I am overJOYED for you
So good to hear from you again and with such good & happy news. I have been thinking about you since we have not heard from you for awhile.
I am so happy it is with "good" news . Have fun my friend. You deserve it.
Happy New Year - and it truly is for you.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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01-02-2008, 11:42 AM
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#8
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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It is good to "see" you Joy!!! Have missed your posts! Glad to hear things are going well, and your "date" sounds like a great way to start 2008!!
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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01-02-2008, 11:58 AM
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#9
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Senior Member
Join Date: Aug 2006
Posts: 3,380
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Joy,
Way to go! Best wishes for a fantastic 2008, that appears to be starting out on the right foot.
Hopeful
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01-02-2008, 12:11 PM
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#10
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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Best wishes
Joy, I too have been thinking about you and am glad to hear all the good news. Sounds like he might be worth "training"... (even the best of them seem to need it, so don't skimp in the beginning!)
Happy New Year,
AlaskaAngel
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01-02-2008, 12:21 PM
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#11
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Joy...
I am SO happy for you and I hope that the happiness continues. Great news on the cancer front too. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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01-02-2008, 02:46 PM
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#12
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Senior Member
Join Date: Apr 2006
Posts: 131
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This post made me smile... I am happy for you and hope you continue to have a great new year, and lots more to celebrate.. You have been so upbeat all through out your battle with this beast.. congratulatioins....
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01-02-2008, 03:19 PM
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#13
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Senior Member
Join Date: Sep 2005
Posts: 556
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Joy,
Congratulations!! Your life gives lot of hope to others in a simlilar situation.
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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01-02-2008, 03:58 PM
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#14
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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Joy, Happy New year! It sounds like you are starting 2008 in grand style. Good for you! Wishing you luck with the new man.
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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01-02-2008, 04:09 PM
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#15
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Senior Member
Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
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Wonderful news to hear! I hope the rest of the year goes your way.
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01-02-2008, 05:44 PM
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#16
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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What a "JOY" to hear from you and with such "JOYFUL" news. You deserve all the good things!
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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01-02-2008, 06:09 PM
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#17
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Happy New Year, Joy! It's good to hear such all around good news. You keep on rollin'! Take care, Bill
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01-02-2008, 06:14 PM
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#18
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Joy - I am so happy for you - romance and great scans - who could ask for anything more?
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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01-02-2008, 06:20 PM
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#19
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Dear Joy
What an amazing post! New love is soooo great and even though the girls were not with you this holiday, new love was - how fun and exciting.
I am glad the tx is working for you well too - both together makes the syngergy X1000. No wonder you are doing so well.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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01-02-2008, 09:15 PM
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#20
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Senior Member
Join Date: Sep 2006
Location: Nebraska
Posts: 154
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Joy,. I am sooo happy for you. you are such a great looking gal, it's about time the other sex noticed!! I wish you all the best for 2008!!
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