hot off the press--new markers found for IBC giving new targets!

Sandy H · 05-08-2007, 07:06 PM

Sorry, I don't understand what you want here. Sandy

Jean · 05-09-2007, 11:16 AM

I remember reading somewhere....or seeing it on the news that IBC can only be dx via a biopsey...is that correct? A mammogram will not pick up the IBC, is that correct?

Thank you.
Jean

ElaineM · 05-12-2007, 03:24 PM

Hi,
I heard that hand and foot (and maybe ankles) problems (burning etc.) can result from different kinds of chemo. It could be the burning ankles are from an unrelated problem. It might be good to check it out with the doc.
Take care !!
ElaineM

Sandy H · 05-12-2007, 03:46 PM

I asked my oncologist last week about IBC. I told him there were some out there that said they are 14 or 15 years out with no reoccurence. He said, "yes" once in a while you will see one but its rare. He says, he always looks at the path report and if it is lymphatic invasion involving surounding tissues than it most usually will be IBC. He said many think IDC is the same as IBC and he said, it isn't. He also said some think that if there is a red spot, on the skin than it is IBC and he said that is not true either. Mine was determined by biopsies, nothing showed on cat scan and they said it was no sense in doing a mammo because it wouldn't show on that either. I was told by another oncologist that IBC is always, stage 111b and if it has spread to organs or/and bones than it is stage IV. Anyway, that is what I was told and I am sure other oncologist will have a different spin on things. hugs, Sandy

ElaineM · 05-13-2007, 11:31 AM

Hi Sandy (and everyone else)
IBC can show up on a mammogram if the area is large enough. It can look like the edge of the breast is glowing on a mammogram, but the most reliable test is a biopsy. I wonder if lymphatic involvement can be other things besides IBC? It makes sense that invasive ductal carcinoma can spread across the lymph glands in the breast but not actually inside of them. I guess the only way to determine whether or not it is IBC after surgery is the pathology report. Let's keep asking the docs questions and sharing our concerns with them. Part of a doc's job is to teach us what is going on and how to take care of ourselves !!
Peace,
ElaineM

lexigirl · 05-14-2007, 03:38 PM

It is pretty confusing. My original path report was IDC. Then after having a spot biopsied, I was restaged IBC. However, I have been told, not by my onc., that I had skin involvement and that is not the same as IBC. All I know is that I had aggresive tx and I have done what I could to kill the beast. I am very hopeful for IBC recurrence rates to drop with the uses of herceptin and tykerb.

Hugs to all my sisters,
Lexi