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04-16-2013, 09:58 AM
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#1
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Senior Member
Join Date: Feb 2013
Location: Lincoln, NE
Posts: 265
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Great Insight...Found in "PracticeUpdate"
Hello Gals...
I've been online researching...as usual...came upon this medical sight..."PracticeUpdate"...
I'm not the "guru" to link, BUT, I'm thinking Janis?? could pull this up...I KNOW there are plenty of you "technies" here!! 
Anyhow, here is what I found as I really felt it summed up what I go through alot where I get my infusions and also experience with my medical oncologists, etc...
My Approach
"Passport to Personality" Who's Difficult?"
Betsy Bates Freed, PsyD (IMNG Medical Media)
"What particularly helps me is to remember (and remind my colleagues) that our shared enemy is cancer, not the patient. By seeing the patient as our ally in that fight, we are motivated to compassionately demysitify our traditions and find creative bridges to connection with all types of people who need our care."
Have a great day!!
Susan
__________________
10/18/12 Found pea size lump right breast
11/7/12 Biopsy
12/14/12 Lumpectomy
1/4/13 Rexcision, NO CLEAR MARGINS!! :(
2/11/13 Mastectomy with Expander Placed
2/15/13 INFECTION at Mastectomy site...emergency Surgery!!! Expander removed :(
DX: DCIS, IDC, Stage 2a, 2.7cm, 1/5 nodes positive
ER/PR-, HER2+++
3/28/13 Port placed
4/1/13 Begin 6 Cycles TCH Therapy
4/1/14 Finished Herceptin!!
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04-16-2013, 11:47 AM
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#2
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Senior Member
Join Date: Oct 2012
Posts: 645
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Re: Great Insight...Found in "PracticeUpdate"
Here you go - you need to register (or at least it prompted me to register). I didn't, but here is the link Susan referenced
http://www.practiceupdate.com/Explor...pinion/?id=318
The title does remind me of the times I would call my oncology nurse assistance line when I was having severe bouts of diarrhea from chemo and was really insistent on stronger meds than imodium. My onc later told me that the nurses were scared of me. Better to have them scared than to make light of my health concerns (and I told her that). The BRAT diet gets old really fast ;-).
We are our own strongest advocates and need to do everything and learn everything we can to fight this stinking disease.
Best,
(opinionated) Janis
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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04-16-2013, 12:19 PM
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#3
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Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
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Re: Great Insight...Found in "PracticeUpdate"
I like that. Many times I felt that I was the enemy in cancer treatment, not the cancer. I had not had much experience with the medical industry before my diagnosis.
I felt more hurt and devastated from the attitudes of my doctors than from the actual diagnosis of breast cancer. I would ask for more information and would be accused of wanting to be my own doctor instead of being an informed and proactive patient.
It did motivate me to want to change cancer treatment. I can not fathom how acceptable chemotherapy is, and the horrible after affects. It also made me realize that I cannot wait for the medical industry to rapidly progress cancer treatments. This change can only come from advancements in science and patients who are willing to voice a demand for change, to volunteer in clinical trials, and to vote with our dollars for the services and treatments that we desire.
It is unfortunate, but I think we have handed our power as patients to our physicians. We should be equal partners in our healing and recovery.
okay . . . stepping off my soap box now . . .
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes
Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"
Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla
Reconstruction: TRAM flap, partial loss, Revision
The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
Last edited by 'lizbeth; 04-16-2013 at 12:20 PM..
Reason: typo
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04-16-2013, 12:55 PM
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#4
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Senior Member
Join Date: Feb 2013
Location: Lincoln, NE
Posts: 265
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Re: Great Insight...Found in "PracticeUpdate"
AWWWWW, I am RIGHT HERE with you GIRLS!!! WE ARE OUR OWN VERY BEST ADVOCATES!!!
After I started asking questions, as I'd been on the internet, etc...I'd get responses as to "Stay off off the internet, listen to your doctor, don't believe all your hear...
That is when I KNEW to "GET ONLINE, DO MY OWN RESEARCH...carry a notebook with me of questions/answers to ask my doctors as soon as I figured out I NEEDED to start "doing my own job!!"
Glad we are in this TOGETHER...I could really get going...but, I have to go pick up my son...!!! How I THANK GOD FOR MY FAMILY!!!
Hugs!!
__________________
10/18/12 Found pea size lump right breast
11/7/12 Biopsy
12/14/12 Lumpectomy
1/4/13 Rexcision, NO CLEAR MARGINS!! :(
2/11/13 Mastectomy with Expander Placed
2/15/13 INFECTION at Mastectomy site...emergency Surgery!!! Expander removed :(
DX: DCIS, IDC, Stage 2a, 2.7cm, 1/5 nodes positive
ER/PR-, HER2+++
3/28/13 Port placed
4/1/13 Begin 6 Cycles TCH Therapy
4/1/14 Finished Herceptin!!
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