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Diet and Nutrition By popular demand our nutritional message board. This board will be monitored by a Registered RD who is certified in oncology by the American Dietetic Association

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Old 09-02-2009, 05:19 AM   #1
TanyaRD
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Introduction

My name is Tanya. I am a Registered Dietitian and a Board Certified Specialist in Oncology Nutrition. I have a true passion for cancer survivors and I am thrilled to be a part of this group. I look forward to answering your nutrition questions.
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Old 09-02-2009, 08:21 AM   #2
freyja
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Re: Introduction

Welcome Tanya! Thank you so much for being here. We've been waiting for this, so be prepared to be swamped in messages!
Love and gratitude, Celeste
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"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.

"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)

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Old 09-02-2009, 10:45 AM   #3
Mary Jo
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Re: Introduction

Welcome Tanya. It is so good to have you among us to answer our many questions. I'm sure you will be bombarded.

I am a 4 year survivor and have changed my diet somewhat and added some supplements. I TRY to eat way less sugar than I did before breast cancer but don't always succeed in that department. I do however, eat very healthy foods as a rule - fruits, veggies, whole grains, nuts, berries. I just wish I could eliminate the "crap" for always. Oh well, it's a goal I constantly strive for and have improved greatly. Also, I am an avid exerciser and I was that before breast cancer as well. So, I guess, it's always a "work in progress" as they say. When you learn better you can do better. So, try I will.

Again, welcome.

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

14Years NED

<>< Romans 8:28
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Old 09-02-2009, 10:50 AM   #4
StephN
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Re: Introduction

Welcome Tanya -
I would like to see Sandra's question and your answer on a thread of its own as the "fats" issue is one much discessed on this site. The Q & A is buried here.

There is an article in the latest AARP Bulletin called "Feasting on Protein." It says the recommendation is for 46 grams of protein per day for women and 56 grams for men. There is a chart showing various foods, their grams of protein per serving and approx. cost. The web site given is:
http://bit.ly/usdanutrients

(This link is to a much more complete listing than in the article.)

This chart shows the best foods to attain that protein level. So a person could alter their diet and not miss the protein they need. Especially people on chemo who need to rebuild tissue.

QUESTION.
Do you know of a similar chart that can correlate these grams of protein with grams of fat??
The protein chart includes non-fat dairy items, tofu plus vegan foods. I am more concerned about the fats in the animal protein items.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.

Last edited by StephN; 09-02-2009 at 10:52 AM.. Reason: added info
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Old 09-02-2009, 11:05 AM   #5
ElaineM
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Wink Re: Introduction

Welcome Aboard Tanya. I am one of the vegetarians in the group. Thanks for the info about how much good fat we should eat. I just did my own calculations, so now I know how much I am supposed to eat as far as fats are concerned. I will probably ask you questions in the future, because I am always trying to improve my diet.
Thanks for the AARP info Steph. I am going to look that up too.
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12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
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Old 09-02-2009, 11:43 AM   #6
TanyaRD
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Re: Introduction

Mary Jo, it sounds like you have made some wonderful changes. Remember, you don't have to be "perfect". It is what we do on most days that either makes or breaks us. If you make healthy lifestyle choices on most days you are doing a good job.
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Old 09-03-2009, 07:11 AM   #7
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Smile Re: Introduction

Hi Tanya, my hame is Rhonda. I TOO am a resident of BEAUTIFUL West Michigan (EGR area) and am a patient of Dr. Mark Campbell at Lemmen Holton. When I was dx 2/1/05 a family member sent me a copy of Diana Dyers diet and I have been on it ever since. The more I read, the more I am convinced that nutrition and exercise are KEY in preventing as well as slowing down MANY (but not all) types of cancer. At my last appointment with my surgeon Dr. John Reinstra, he told me he wanted me to eat 2 handfuls of walnuts a day as he has been reading a great deal about them...thoughts? I have been eating a handful of filberts 3 times a week as I read there were traces of the taxanes in them as well as put slivered almonds on my salad daily...OTHER thoughts? Any other food supplements you would recommend for ER-PR-HER2+ breast cancer? Thank you SO much for joining us...this is a great bunch who I am SURE you will love Take care and God bless.
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Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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Old 09-03-2009, 09:59 AM   #8
TanyaRD
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Re: Introduction

Thanks, Rhonda. I am just north of you in Ludington. Your doctor has offered some good advice. Walnuts offer a good source of omega-3 fats. In general, nuts offer a healthy source of fat as well as protein and vitamin E, Selenium and much more. My only caution is to watch portion size because calories add up fast when it comes to nuts. Adding them to salad, cereals or having them as a snack with fruit is an excellent way to include them in the diet without going overboard on portion.
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Old 09-03-2009, 01:06 PM   #9
TanyaRD
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Re: Introduction

Jackie,
I am familiar with the study and feel flax is a good addition for both its omega 3 properties and fiber. It is also easy to add to recipes and many everyday foods. Thanks for the welcome message.
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Old 09-07-2009, 03:41 PM   #10
Leslie304
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Re: Introduction

...........and green tea! I'm forbidden green tea! I really want to do some of these things they say I shouldn't but I worry about their warnings of counteracting the chemo! Is that really even possible? I find it so hard to believe.
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2009
3-15 Age 48 -found lump
Dx 4/15/09: IBC Stage III w/extensive lymph node involvement HER2+++
5/1/09: Adria/Cytoxan for x 3-no response
6/12/09: Taxol/Herceptin for 1 tx -no response
6/24/09: added Carboplatin to T/H x 3 - no response
7/09 -added F5U -no response
7/29/09: Herceptin/Xeloda/Tykerb no response
8-18-09: 2nd opinion at MDA - IDC not IBC! First Onc disagrees,
BRCA 1/2 Neg
8-19-09: continue on Herceptin/Xeloda/Tykerb-slight response
9-24-09 MRM right breast 10x10 cm tumor! (Huge!) no necrosis - Got clear margins! A miracle!
13 of 18 nodes positive
11-2-09 -12/10 started radiation
12-10-2009 - Finished with radiation!!
2010
1/13/2010-Back on Xeloda x six cycles (have been on Tykerb/Herceptin all along)
4/4/14 - stopped Xeloda/Tykerb one cycle early. Liver enzymes high!
4/20/2010 Clear PET Scan!! NED
6/10/2010 - Finished Herceptin11/8 - Brain METS! CRAP! WBRT only option given. Four mets, separate locations in brain, no SRS
12/10 - Herceptin/Tykerb/Xeloda
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Old 09-07-2009, 04:09 PM   #11
Jackie07
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Re: Introduction

Found this link - was dated 2006, but looks pretty good:

http://www.tugmcgraw.org/Lancet_Onco.pdf
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundless(granules?) nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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Old 09-08-2009, 04:50 AM   #12
schoolteacher
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Re: Introduction

Tanya,

Thanks for joining our group. I look forward to the information about nutrition.

Amelia
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Old 09-08-2009, 06:09 AM   #13
RobinP
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Re: Introduction

Howdy, and thanks for joining our group. I have a feeling that you're going to learn that many of our members are nutritional experts themselves, concerning foods and supplemental elements that best block the her2 pathway and er, pr pathway in breast cancer. As a registered nurse, I am frequently impressed by the medical insights our members have. I hope you are impressed, as well, learn much, share much, and enjoy our group. Welcome!

RobinP
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Last edited by RobinP; 09-08-2009 at 06:21 AM..
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Old 09-08-2009, 06:36 AM   #14
TanyaRD
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Re: Introduction

Thanks Robin. I am already impressed as I knew I would be. This is obviously a wonderful group of amazing, strong women. I am grateful to be a part of this. I always tell my groups that I learn as much from them as they do from me. I appreciate the warm welcome from everyone.
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Old 09-10-2009, 04:00 PM   #15
R.B.
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Re: Introduction

Tanya,

Could we have please have stickies for common dietary subjects like flax, green tea, Omega 3 and 6, vitamin, etc.

I agree it is easy for material to get lost like the flax threads have.

Many thanks
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Old 09-12-2009, 08:27 AM   #16
TanyaRD
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Re: Introduction

Good idea. We will get that done.
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Old 12-10-2009, 05:01 PM   #17
Jackie07
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Re: Introduction

Someone (Tololos) has sent a virus into this Board. Please avoid replying to any thread started by this guy. Usually Joe will clean it up and protect us from this 'home invasion'.

If you don't see a member's posting, click on the heading on the main Board. It will give you a list of all the postings in reverse chronological order. Click on the one you'd like to reply or post a new thread. Just don't continue any thread started by this 'man behave badly'.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundless(granules?) nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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Old 03-22-2010, 06:09 PM   #18
BMW2
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Melatonin

Hi: My background is B/C in 2000. ER+ cancer in left breast. Bi-lateral masectomy and A/C, Taxol, radiation. DIEP reconstruction in 2002.

In 2009 recurrence in left reconstructed breast (ER+ and Hers2). Surgery again then chemo ACH/Herceptin till November 2009. Herceptin alone until April 2010 or maybe longer.

I've been reading your posts on nutrition. This is a great site. Does anyone have any experience with using melatonin? I'm having a terrible time sleeping since my breast cancer returned. Don't want to resort to sleeping pills. But, I've been taking Simply Sleep by Tylenol (it's benedryl). Any thoughts?
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Old 03-23-2010, 06:50 AM   #19
TanyaRD
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Re: Introduction

I work with an internist who likes to use Melatonin but more for cancer prevention/treatment (not in place of chemo/xrt). She often refers to an article published by Life Extension in 2004 (http://www.lef.org/magazine/mag2004/...latonin_01.htm). Melatonin has traditionally not done very well as a sleeping aid but may produce better sleep once a person falls asleep. It does not make most people feel sleepy therefore if falling asleep is your problem it is probably not the best bet. We usually recommend benedryl for that but also look at whether a person is having trouble "turning their mind off" too. Our social worker provides great techniques for helping quiet the mind.

If you read the article linked here please do so with the mindset that this is early research with limited application to humans (in research). There are more examples of research with melatonin and cancer (see pubmed) but it is not widely used due to limited research. Life Extension does sell supplements therefore I do not use them as a sole source for information because of the conflict of interest they have with product sales.
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Old 03-23-2010, 08:08 AM   #20
BMW2
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Re: Introduction

TanyaRD: Thanks for the info. I also found some other info on the site concerning sleep and melatonin from some of the other ladies. I think I posted my question in the wrong spot. I'm learning. Thx
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