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12-31-2008, 09:07 AM
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#1
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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~Our Radiologist Oncologist Is Moving Away~Really Sad~Whaaa!
I know there are so many other things that can make a person sad through a cancer journey that may seem worse than this. We got the news last night and believed me I just cried.
This intelligent doctor has been through this journey right along with us. She was the one whom performed the WBR & Pelvis radiation. She has been on the team of six who consult for Ed, especially with the Gamma Knife procedures. She has been in a sense, our savior.
We are lucky enough to have her map him out for the ever-so-delicate back radiation. Now I know that we have other doctors that work there but I am lost without a primary RadPerson. We are fortunate enough to have 'chosen' all of our healthcare thus far. I feel lost and empty without her sharing our recovery to NED.
Part of me was relieved that it was not the GammaMan! Whew. There was another gentleman who showed up before our appointment with our leaving doctor. I did not know what to make of him, he seemed to question our entire journey. Maybe he was learning about us, maybe he was a doubting Thomas. One question that made me wonder was "How many facilities do you utilize?" The answer was 3 and I let him know that we are lucky enough to be able to hand pick who we wanted on our journey. I cannot say I do not want him to be our doctor, I am saying that I did not get good vibes from him, I felt uneasy and turned off for a few reasons. I am unsure if I even want him on the consult team. I am saying this with truth and not looking for perfection, just a decent doctor.
So, here we are, a little lost but blessed to have her help before she leaves us for bigger and better endeavors. Right now we do not know who will be our next Radiologist Oncologist so it is more research and appointments before we need them. I am going to think positive and say it is not pressing since after this set of rads we will be on chemo again and will not need radiation for a long time.
So as sad as we are this too shall pass. Shock factor is over and time to move on. Here we go again. Uggh. Thanks for listening to me ramble, seems like that is all I can do about it now!>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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12-31-2008, 10:06 PM
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#2
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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You hang in there, Marie. I know right now this seems like a real bummer, but I bet looking back on this moment, you will realize that this will have turned out to be a good thing. Trust me, these things have a way of working themselves out. My prayers and thoughts are with you and Ed, sweetie. Love, Bill
__________________
For Nicola
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12-31-2008, 11:13 PM
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#3
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Senior Member
Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
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Hopefully the new year will bring you another doctor you can grow to like as much and will be as good at treatments.
I lost a great one when he retired a few years back and I still miss him...so I kind of understand how tough it is.
May the new year bring you both many blessings.
__________________
Barb
10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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01-02-2009, 05:50 PM
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#4
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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i really hope you find the doc who's the perfect fit for you. i'll send positive thoughts your way!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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01-05-2009, 07:12 AM
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#5
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Marie and the Mighty Oak,
I hope you both are doing well. Is there a lot of snow there? I am sorry to hear about your oncologist radiologist leaving. I will pray that God sends another that you will have the same confidence in.
Please tell the Mighty Oak I am praying for him, and I hope he is feeling better.
Amelia
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01-15-2009, 01:28 PM
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#6
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Are we lucky or what??
This gigantic loss for us is Dana Farber's gain and she will be leaving tomorrow for Boston. Anyone needing a recommendation for a Radiologist Oncologist in the Boston area, beckon me.
You will never believe who she left us with...The Radiologist-in-Chief of the hospital. Yeehaa!! More proof that with some bad comes good! This man is running the department and does not have too many patients, mostly troubled ones like Ed.
That makes us the lucky contestants of an Oncologist that runs our Cancer Center AND a the Radiologist that runs the radiology department at the second facility.
What a relief!>>Believe51
One more time we are blessed along the way!!
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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01-15-2009, 01:40 PM
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#7
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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I am glad you turned a lose into a gain and a blessing. Tell the Mighty Oak I have been praying for him. I prayed this morning specifically for him.
Amelia
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01-15-2009, 01:55 PM
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#8
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
|
Amelia, our blessings come in many forms through all of this journey. With friends like you I count these blessings daily. Thanks for making me shed some more 'good tears', I always feel so cleansed when I do. You have cradled us through this journey and my thanks could never be payment enough. So Sweetness, continued prayers right back at 'cha. I love you bunches, more than you could ever know!!>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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