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Old 09-28-2007, 04:44 PM   #1
Joannie
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Join Date: Oct 2005
Location: Beavercreek, Ohio
Posts: 67
Aching Feet from Tykerb

I've been on the TEACH trial since the middle of May. Pretty sure I received Tykerb vs. the placebo. Within the last 4-6 weeks, my feet (top and side) have begun to hurt so bad it's difficult to walk at times. The bones almost feel like they are fractured! Has anyone else had such symptoms in their feet while on Tykerb?
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Joannie

Diagnosed April 2003
3.3 cm tumor left breast
HER2 positive 3++
ER/PR negative
Masectomy April 2003
4 Rounds of AC - dose dense
4 Rounds of Taxol - dose dense
Removed right breast prophalactically
Full reconstruction with implants/nipples
No Late Herceptin Received
Started Tykerb TEACH Trial in May 2007
Completed Tykerb TEACH Trial in May 2008
5 year NED August 27, 2008!!!
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Old 10-01-2007, 09:37 AM   #2
doh2pa
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Join Date: Oct 2005
Location: Chadds Ford, Pa
Posts: 206
Hi Joannie,

I do have aching feet but not exactly like yours. Mine bother me if I overdo it on walking. The bottoms will ache like I walked for days rather than just for an hour. Two of my toes actually blistered. So I have sought out incredibly comfortable shoes (from a walking store) and bought them a size larger than I normally take (so as not to crowd my toes). I also find that accupuncture helps a bit, so you might want to try that.

On the positive side, this combo is working very well for me, so I just try to manage through the side effects and hope it keeps on working.

Donna
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Donna
Diagnosed 2/04 - Invasive ductal - no clean margins
node negative - er+pr+, her2++
Mastectomy 4/04 - 4 rounds AC
9/05 - mets to liver treated with carbo/ixabipelone/herceptin
3/06 - complete remission
9/06 - new liver mets, starting Taxotere/Herceptin
1/07 -Liver mets stable, staying on Herceptin
5/07 - Liver, lung progression - starting T/X
12/07 - Liver, lung progression - starting weekly Navilbene/Herceptin
4/08 - Liver progression - started Abraxane, Carbo, Tykerb and Herceptin
7/08 - Liver Progression - started Gemzar, Avastin and Tykerb
10/08 - Liver progression - starting Doxil
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Old 10-01-2007, 03:05 PM   #3
dhealey
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Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
I am not on tykerb, but am on herceptin and aromasin and my feet some days feel exactly as you describe, legs feel that way alot too. Feels like the life has been sucked out of my bones. I think my pain is coming from the aromasin.
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Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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