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Old 12-25-2012, 07:15 PM   #1
Jkosmas
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Join Date: Nov 2012
Posts: 6
Question Side Effect Question

Hi!
I am new to the community. I was diagnosed with ER-/PR-/HER2++++ Invasive Ductal Carcinoma Breast Cancer two months ago. I had my first TCH Chemo treatment 12 days ago. All in all I would say that I handled most of the side effects pretty well and am finally on an upswing in terms of how I am feeling. However, i have a new side effect that is literally making me a crazy person. My face has begun to breakout in clusters of bumps similar to acne, I have developed red burning patches on my face, and have insanely dry skin and chapped lips. I feel like it just came on suddenly. I have done some reading and have found out that this is not uncommon, my question is what to do about it? I am desperate for some type of cream to give me relief. My face just feels so tight, sore and dry. Has anyone found a product or products they feel work best for this type of thing? Any advice would be GREATLY appreciated.
__________________
11/1/12- Biopsy results confirm Breast cancer
11/2/12- Diagnosed with ER-/PR-/HER2++++ Invasive Ductal carcinoma Stage 2A
12/5/12- Port Surgery and Sentinal Lymph Node Biopsy
12/13/12- Lymph Nodes Biopsy is Negative!! First Chemo Treatment TCH
03/27/13-Last Chemo!
04/02/13-PET/CT Scans, Breast MRI
04/09/13-Test results show complete resolution of tumor
04/17/13-Begin Just Herceptin
05/10/13-Right Breast Mastectomy Scheduled
5/15/13- Right Mastectomy with expander
8/2013- Implant surgery
9/2013- Implant revision surgery
1/2014- Implant Revision Surgery
5/2015- DX Stage IV MBC to Sternum ER-/PR-/HER2+
5/015- Begin 6 months Taxol/Herceptin/Pertjeta
11/2015- Last Chemo!
1/2016- Begin 12 rounds radiation
5/2016- NED!!!
ONGOING- Herceptin/Perjeta Infusion every three weeks indefinitely
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Old 12-26-2012, 10:56 AM   #2
'lizbeth
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Location: Sunny San Diego
Posts: 2,214
Re: Side Effect Question

Hello,

I didn't have side effects like this, but welcome to the board. Sorry that you have something that is driving you crazy.

Have you spoken to your medical team about it?

I hope it is resolved very soon.
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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Old 12-26-2012, 11:13 AM   #3
starwishn2
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Posts: 124
Re: Side Effect Question

Hi - so sorry you are having miserable side effects. I did have the bumps on my face. They went away after about 2 weeks. The burning and tightness I have had were mostly on my hands. I found that any pain relieving gel with Aloe Vera and lidocaine took away the pain (this is usually purchased for sunburns). I found it at Walgreens but have seen it in grocery stores. Make sure you let your doctor know about this side effect.

I hope you are able to find relief!!
Jeri
__________________
Diagnosed 16Dec1993 ITP (auto immune disease - low platelets)
Splenectomy 11Nov2009
Rituxen May2011
ITP playing nice
Diagnosed 3Jul2012 BC

2 cm - Grade 2 - Stage IIB
HER2+++

ER+/PR+
bilateral mastectomy 20Jul2012
Metastasized cancer found 1 lymph node
expanders placed during surgery
TCH chemo "cocktail" started 24Aug2012
every 3 weeks - 6 treatments
Herceptin - 18 treatments
LAST treatment Taxotere & Carboplatin 7Dec2012 -yay!
Continue with Herceptin 26Dec2012

Started Arimidex 01Jan2013 (for 5 years)
Surgery to remove expanders/reconstruction 18Jan2013
Infection in left breast from reconstruction/infection in most nails - SO many meds! 22Feb2013
Left implant not playing nice.... might need to remove and try again - blah! 04Apr2013
3Jul2013 - one year since diagnosis - booo cancer!

15Aug2013 LAST chemo infusion!! YIPPPEEE!!!
13Sep2013 2nd reconstructive surgery.. the FOOBs are looking good!



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Old 12-26-2012, 02:54 PM   #4
Paty
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Re: Side Effect Question

I cannot give you any advice on this, as I had not similar effects of chemo. Try talking to your doctor or oncology nurse about this, i am sure there is some cream or lotion out there that will help you deal with it. Drinking a lot of natural juices helped me keep a nice skin during treatment.

Hugs,

Paty
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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Old 12-26-2012, 03:23 PM   #5
europa
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Posts: 362
Re: Side Effect Question

I had the EXACT same thing. I put Neosporin in the mornings and Aquafore or Argan Oil on my face to help soothe at night. I had it during my whole treatment. It definitely flared up two days after the infusion and settled a bit before the next go. You should tell your Oncologist though. They need to know, especially if your skin starts to crack/get scaly from being so dry. Good news is that it does go away bit by bit when you finish chemo. Also, sunlight somehow made mine better. I went through treatment during the spring and when it was warm enough I sat outside and let the sun hit my face for 10 minutes.
__________________
DX 10/2011
PET Scan + MRI 10/2011
Lumpectomy 11/11/11
Stage 2B +++ ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node)
AC started 12/2011 ended 1/2012
Taxol + Herceptin weekly for 12 weeks ended 4/2012
30 zaps of radiation done 6/2012
Tamoxifen 6/2012
every 3 weeks of Herceptin for another year.
Metformin Trial 8/12
10/12 MRI- CLEAR
01/13 BRAIN MRI- CLEAR!
01/13 Neck MRI- CLEAR!
FINISHED HERCEPTIN 1/9/2013...Woot Woot
Starting Walter Reed Vaccine Trial 2/13
CT Scans + ultrasound of abdomen CLEAR-5/13
02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging
12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner
12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system
1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy.
4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life.
7/27/2018 hysterectomy and oopherectomy
01/07/2019 Mastectomy and expanders put in
3/22/2019 Vtach, almost died. Cause unknown.
7/22/2019 New perky boobs put in
7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018.


www.mychemobag.org
www.facebook.com/mychemobag

8 YEARS NED
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Old 12-26-2012, 10:10 PM   #6
Pray
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Re: Side Effect Question

Welcome to the board. I'm so sorry you are having these side effects. Please know that you are in my prayers. Gods blessings to you and your family. Peace my friend, Nancy
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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