HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 01-23-2014, 10:07 AM   #21
linn65
Senior Member
 
linn65's Avatar
 
Join Date: Dec 2012
Location: Attica, IN
Posts: 371
Re: New Oncologoist needed - Final Straw

I made a decision on what I am going to do after a good nights rest. I called the office of a highly recommended Dr. Kathy Miller at IU last night after work to see about setting up an appointment with her. They called back today, and I have an appt scheduled February 5th in the afternoon to see her.

A couple of things; I liked the idea that she is a woman, and my PS is with IU (he is awesome), it is a teaching hospital with trials too. However, I will not make a decision to change ONC'S until I meet with her. If she looks through all my records which she is getting and validates my treatment now maybe I will stay where I am. If she validates, communicates, and I feel comfortable with her then I will make the switch. I do not want to switch just because my ONC does not seem to communicate as well as I like but if he is a good doctor that is most important. The only way I will know is getting a 2nd opinion, and I do need validation with all of this. Now, I feel better today because a Doctor highly recommended from a person on this board whom I really respect her opinion, so I think I am getting the best 2nd opinion available.

Bonnie, heck no the center does not have a therapist but if they would have I would have seen her plenty by now. My therapist's are the people on this forum with a wide variety of thoughts helping me work through a decision, helping with my meltdowns, and everyone has been there, done that, and still doing it and the highest educated person could never give me what this forum does.

Continued thanks to all the Peeps on the board!!
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
linn65 is offline   Reply With Quote
Old 01-23-2014, 11:14 AM   #22
BonnieR
Senior Member
 
BonnieR's Avatar
 
Join Date: Jun 2007
Posts: 2,210
Re: New Oncologoist needed - Final Straw

Linn, what a difference a day makes! You sound like a new person. One with a plan. That is such a burden lifted. And i always feel better when i make a decision and take back control of the situation. You will have so much more clarity after this second opinion consultation
I'm happy for you
Keep the faith
__________________
Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
BonnieR is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 12:16 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter