| Herceptin / Tykerb Share your experiences or ask questions about Herceptin or Tykerb |
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10-10-2010, 06:54 AM
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#1
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Senior Member
Join Date: Jul 2010
Posts: 120
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Tykerb Diet
Would like to know which foods/drinks work well for those of us on Tykerb. I'm starving but afraid to eat anything because of the stomach cramps and diarrhea. Let's share our learnings here.
__________________
6/14/2010 - Self discovered Lump; Age 39
6/24/2010 - Biopsy results confirm breast cancer
Right breast, invasive ductal adenocarcinoma
HER2neu positive, BRAC I & II negative
7/8/2010 - Lumpectomy right breast, sentinel lymph node biopsy, & port-a-cath installed on left
Stage II, Size 3.2cm, Clear Nodes, Clear Margins
8/19/2010 - Chemo begins - Taxotere, Carboplatin, Herceptin & Tykerb all simulanteously; ALTTO trial arm 4
9/9/2010 - Chemo dose #2
9/30/2010 - Chemo dose#3
10/21/2010 - Chemo dose#4
11/11/2010 - Chemo dose#5
12/02/1010 - Chemo dose #6 - WooHoo, it is complete!
12/14/2010 - Simulation & Planning session for radiation
02/18/2011 - Completed radiation treatment (33 rounds)
08/04/2011 - Completed Herceptin & Tykerb
09/30/2013 - ultrasound guided biopsy (following annual MRI)
10/1/2013 - new cancer in left breast. 6mm discovered via MRI
10/28/2013 - bilateral mastectomy - no reconstruction
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10-10-2010, 08:11 AM
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#2
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Senior Member
Join Date: May 2010
Location: Ireland
Posts: 271
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Re: Tykerb Diet
I'm on tyverb and xeloda and have learned to avoid eating too much cream and cheese. Otherwise I can eat what I like.
__________________
Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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10-10-2010, 10:24 AM
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#3
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Tykerb Diet
I would ask our dietician Tanya about that.I did read that it is not good to eat grapefruit when taking Tykerb though. There are alot of ladies on this board who took Tykerb, so they might have some ideas.
I would imagine that any food that helps to slow down diarrhea would be good. You could do a search on foods to prevent diarrhea and see what comes up. How about low fiber carbs like white rice with a small portion of cooked low carb veggies and a low fat protein source? A low fat diet might be good too. Dry toast and a banana with a cup of tea might be a good breakfast.
A good quality Yoghurt with lots of probiotics is usually good for over all digestive and intestinal health.
Good luck. Healthy eating.
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10-10-2010, 10:54 AM
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#4
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Senior Member
Join Date: Jul 2010
Posts: 120
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Re: Tykerb Diet
That is correct - we can not have grapefruit. I'm looking for real life lessons from those who are currently on the drug or have previously taken it. Here is what I have learned so far: Avoid dairy, fancy coffees, whole grains. I'm able to eat white toast, meat, canned fruit, jello, apple sauce.
__________________
6/14/2010 - Self discovered Lump; Age 39
6/24/2010 - Biopsy results confirm breast cancer
Right breast, invasive ductal adenocarcinoma
HER2neu positive, BRAC I & II negative
7/8/2010 - Lumpectomy right breast, sentinel lymph node biopsy, & port-a-cath installed on left
Stage II, Size 3.2cm, Clear Nodes, Clear Margins
8/19/2010 - Chemo begins - Taxotere, Carboplatin, Herceptin & Tykerb all simulanteously; ALTTO trial arm 4
9/9/2010 - Chemo dose #2
9/30/2010 - Chemo dose#3
10/21/2010 - Chemo dose#4
11/11/2010 - Chemo dose#5
12/02/1010 - Chemo dose #6 - WooHoo, it is complete!
12/14/2010 - Simulation & Planning session for radiation
02/18/2011 - Completed radiation treatment (33 rounds)
08/04/2011 - Completed Herceptin & Tykerb
09/30/2013 - ultrasound guided biopsy (following annual MRI)
10/1/2013 - new cancer in left breast. 6mm discovered via MRI
10/28/2013 - bilateral mastectomy - no reconstruction
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10-10-2010, 07:25 PM
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#5
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Member
Join Date: Dec 2008
Posts: 16
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Re: Tykerb Diet
Hi Msleslie,
I am currently on herceptin and tykerb. I find that dairy seems to bring on diarrhea right away, so I stay away from dairy.
I would recommend bagels. It sounds silly, but they work great. I put a very little bit of butter with jelly on a bagel and it sits great with me. I can also eat apples, bananas, spaghetti and tomato sauce (not too much) and white rice without reaction. No problem with meat, chicken or fish, just make sure they are well cooked. I stay away from ice cream or anything too cold to drink, but I don't seem to have a problem with coffee or tea in the mornings.
Just the other day, my doctor told me to try and add small portions of salad back into my diet a little at a time because she thinks that over time I will be able to eat a normal diet. I have been trying small servings of raw carrots and lettuce/tomato for a few days now....unfortunately I had a reaction each time I did, but if I take an immodium right away, it seems to stop it. I will continue as my doctor suggested because I would like to think that I can enjoy fresh fruits and veggies again real soon.
I hope this helps.
Good luck.
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10-11-2010, 11:15 AM
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#6
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Senior Member
Join Date: Jul 2010
Posts: 120
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Re: Tykerb Diet
my2boys - I too miss my salads and fresh fruit but I'm afraid to go anywhere near them right now. Living off of bread(pastries), meat, jello,canned fruit is getting to be pretty boring for me. How is your energy level? I'm planning to take a Caribbean vacation in July while still on Herceptin/Tykerb combo - I'm praying that this will not be a mistake.
__________________
6/14/2010 - Self discovered Lump; Age 39
6/24/2010 - Biopsy results confirm breast cancer
Right breast, invasive ductal adenocarcinoma
HER2neu positive, BRAC I & II negative
7/8/2010 - Lumpectomy right breast, sentinel lymph node biopsy, & port-a-cath installed on left
Stage II, Size 3.2cm, Clear Nodes, Clear Margins
8/19/2010 - Chemo begins - Taxotere, Carboplatin, Herceptin & Tykerb all simulanteously; ALTTO trial arm 4
9/9/2010 - Chemo dose #2
9/30/2010 - Chemo dose#3
10/21/2010 - Chemo dose#4
11/11/2010 - Chemo dose#5
12/02/1010 - Chemo dose #6 - WooHoo, it is complete!
12/14/2010 - Simulation & Planning session for radiation
02/18/2011 - Completed radiation treatment (33 rounds)
08/04/2011 - Completed Herceptin & Tykerb
09/30/2013 - ultrasound guided biopsy (following annual MRI)
10/1/2013 - new cancer in left breast. 6mm discovered via MRI
10/28/2013 - bilateral mastectomy - no reconstruction
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10-11-2010, 11:29 AM
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#7
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Re: Tykerb Diet
You have to be careful at first until you adjust to Tykerb. After that I found that I can eat anything. If I start to notice an issue then I cut back. It doesn't happen often, and I feel it is essential to eat healthy. As a teacher there I times when I just can't run to the bathroom, and that can be a problem.
Good luck,
Barbara H.
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10-11-2010, 11:42 AM
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#8
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Senior Member
Join Date: Jul 2010
Posts: 120
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Re: Tykerb Diet
@Barbara - The weird thing is that I've been on Tykerb since August but this was the first time I experienced the severe issues. I will slowly try to introduce fruits/veggies back into my system next week. Thanks for the tips!
__________________
6/14/2010 - Self discovered Lump; Age 39
6/24/2010 - Biopsy results confirm breast cancer
Right breast, invasive ductal adenocarcinoma
HER2neu positive, BRAC I & II negative
7/8/2010 - Lumpectomy right breast, sentinel lymph node biopsy, & port-a-cath installed on left
Stage II, Size 3.2cm, Clear Nodes, Clear Margins
8/19/2010 - Chemo begins - Taxotere, Carboplatin, Herceptin & Tykerb all simulanteously; ALTTO trial arm 4
9/9/2010 - Chemo dose #2
9/30/2010 - Chemo dose#3
10/21/2010 - Chemo dose#4
11/11/2010 - Chemo dose#5
12/02/1010 - Chemo dose #6 - WooHoo, it is complete!
12/14/2010 - Simulation & Planning session for radiation
02/18/2011 - Completed radiation treatment (33 rounds)
08/04/2011 - Completed Herceptin & Tykerb
09/30/2013 - ultrasound guided biopsy (following annual MRI)
10/1/2013 - new cancer in left breast. 6mm discovered via MRI
10/28/2013 - bilateral mastectomy - no reconstruction
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10-11-2010, 02:13 PM
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#9
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Member
Join Date: Dec 2008
Posts: 16
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Re: Tykerb Diet
msleslie, My energy level has been just great. I was on different chemo than you. I was on AC/TH. Fatigue isn't too bad. I did the TCH last year and I was a bit more fatigued than this time around, but not too bad.
They started me on Tykerb in June at 750mg per day and I was fine until late July and they had to stop it for a few weeks. I started up again after few weeks at 500mg per day and once I was okay with this dose, they doubled it to 1000mg per day. I did take two vacations over the summer, once while on Tykerb/Taxol/Herceptin and once while I was taking a break from Tykerb, but I was on Taxol/Herceptin. I was fine for both of them. No alcohol consumption though. This is a no, no.
Just remember to take the immodium at the FIRST SIGN of trouble and you should be fine.
I think that my trouble started when I waited too long to take immodium or lomotil. I learned my lesson and don't wait anymore.
Trying salad again tonight.....wish me luck?
Stay strong ladies,
Anne
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10-11-2010, 03:25 PM
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#10
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Senior Member
Join Date: Sep 2010
Location: Northern California
Posts: 64
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Re: Tykerb Diet
Thanks for posting this question, MsLeslie! I am on the same therapy and since my first infusion I have been living on tea, water, and as much chicken soup as I can keep down. Good to hear that my body may soon start recovering!
__________________
41 Years Old
Dx w/IDC in August '10
No family history
ER+/PR-/HER2+
2.2cm tumor/Stage 2A
No node involvement
Tested negative for BRCA 1/2
Participated in a UCLA clinical trial testing TCH and/or Lapatinib in stage 1/2/3 bc patients that can be removed by surgery.
Underwent neo-adjuvant therapy to shrink tumor prior to surgery.
1st Surgery date: 2/16/11
Pathology report indicated ADH/DCIS in margin.
2nd Surgery: 3/21/11
Clean margins!
Started radiation: 4/11/11
Completed radiation: 7/8/11
1st post-surgical mammogram: 8/16/11 - CLEAR!
6 Weeks of Tamoxifen - Failure to Respond
Started Lupron/Arimidex: 8/29/11
Herceptin until September '11
Recurrence - August 2018
Same profile - ER+/PR-/HER2+
Undergoing neo-adjuvant therapy prior to surgery;
Gemzar, Carboplatin, Herceptin & Perjeta
Chemo through the end of 2018...
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10-14-2010, 04:39 PM
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#11
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Senior Member
Join Date: Apr 2007
Location: LA LA Land
Posts: 1,607
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Re: Tykerb Diet
I've had pretty good luck with a couple of things...gluten free and dairy free diet for 3 1/2 years seems to be easy on my system. Tykerb plus all the chemo add-in's plays havoc on your gastro system. Some avoid wheat and dairy - others have added a nightly dose of immodium as a preventative. I recently met with a gastro doc who is also a friend. He said that many people can tolerate foods at a reduced dose. In other words, when I told him I missed eating a big crunchy salad, he said try a very small salad and it will probably be fine. He also said that unless my lifestyle was suffering, there was no reason to worry about non-formed stools a couple of times a day. I found that no two days were alike, no two reactions were the same and it was just a one day at a time approach to getting thru the day. Ms Leslie - I did not have cramps or pain, just the poopariahs all the time. There are many women who have been on tykerb with good and great results for a long time! One last tidbit of advise, to avoid dehydration drink not just water with electrolytes but you'll need to consider replenishing sodium, too. Trader Joe's has an instant MISO SOUP in a packet with a big sodium load that would help me stay out of the critical low ranges. PM me if you want any other info!!
__________________
1996 cancer WTF?! 1.3 cm lumpectomy Er/Pr neg. Her2+ (20nodes NEGATIVE) did CMF + rads. NED.
2002 recurrence. Bilateral mastectomy w/TFL autologous recon. Then ACx2. Skin lymphatic rash. Taxotere w/Herceptin x4. Herceptin/Xeloda. Finally stops spreading.
2003 - Back to surgery, remove skin mets, and will have surgery one week later when pathology can confirm margins.
‘03 latisimus dorsi flap to remove skin mets. CLEAN MARGINS. Continue single agent Herceptin thru 4/04. NED.
‘04 '05 & 06 tiny recurrences - scar line. surgery to cut out. NED each time.
1/2006 Rads again, to scar line. NED.
3/07 Heartbreaking news - mets! lungs.sternum. Try Tykerb/Xeloda. Tykerb/Carbo/Gemzar. Switch Oncs.
12/07 Herceptin.Tykerb. Markers go stable.
2/8/08 gamma knife 13mm stupid brain met.
3/08 Herceptin/tykerb/avastin/zometa.
3/09 brain NED. Lungs STABLE.
4/09 attack sternum (10 daysPHOTONS.5 days ELECTRONS)
9/09 MARKERS normal!
3/10 PET/CT=manubrium intensely metabolically active but stable. NEDhead.
Wash out 5/10 for tdm1 but 6/10 CT STABLE, PET improving. Markers normal. Brain NED. Resume just Herceptin plus ZOMETA
Dec 2010 Brain NED, lungs/sternum stable. markers normal.
MAR 2011 stop Herceptin/allergy! Go back on Tykerb and switch to Xgeva.
May-Aug 2011 Tykerb Herceptin Xgeva.
Sept 2011 Tykerb, Herceptin, Zometa, Avastin.
April 2012 sketchy drug trial in NYC. 6 weeks later I’m NED!
OCT 2012 PET/CT shows a bunch of freakin’ progression. Back to LA and Herceptin.avastin.zometa.
12/20/12 add in PERJETA!
March 2013 – 5 YEARS POST continue HAPZ
APRIL 2013 - 6 yrs stage 4. "FAILED" PETscan on 4/2/13
May 2013: rePetted - improvement in lungs, left adrenal stable, right 6th rib inactive, (must be PERJETA avastin) sternum and L1 fruckin'worsen. Drop zometa. ADD Xgeva. Doc says get rads consultant for L1 and possible biopsy of L1. I say, no thanks, doc. Lets see what xgeva brings to the table first. It's summer.
June-August 2013HAPX Herceptin Avastin Perjeta xgeva.
Sept - now - on chemo hold for calming tummy we hope. Markers stable for 2 months.
Nov 2013 - Herceptin-Perjeta-Avastin-Xgeva (collageneous colitis, which explains tummy probs, added Entocort)
December '13 BRAIN MRI ned in da head.
Jan 2014: CONTINUING on HAPX…
FEB 2014 PetCT clinical “impression”: 1. newbie nodule - SUV 1.5 right apical nodule, mildly hypermetabolic “suggestive” of worsening neoplastic lesion. 2. moderate worsening of the sternum – SUV 5.6 from 3.8
3. increasing sclerosis & decreasing activity of L1 met “suggests” mild healing. (SUV 9.4 v 12.1 in May ‘13)
4. scattered lung nodules, up to 5mm in size = stable, no increased activity
5. other small scattered sclerotic lesions, one in right iliac and one in thoracic vertebral body similar in appearance to L1 without PET activity and not clearly pathologic
APRIL 2014 - 6 YRS POST GAMMA ZAP, 7 YRS MBC & 18 YEARS FROM ORIGINAL DX!
October 2014: hold avastin, continue HPX
Feb 2015 Cancer you lost. NEDHEAD 7 years post gamma zap miracle, 8 years ST4, +19 yrs original diagnosis.
Continue HPX. Adding back Avastin
Nov 2015 pet/ct is mixed result. L1 SUV is worse. Continue Herceptin/avastin/xgeva. Might revisit Perjeta for L1. Meantime going for rads consult for L1
December 2015 - brain stable. Continue Herceptin, Perjeta, Avastin and xgeva.
Jan 2016: 5 days, 20 grays, Rads to L1 and continue on HAPX. I’m trying to "save" TDM1 for next line. Hope the rads work to quiet L1. Sciatic pain extraordinaire :((
Markers drop post rads.
2/24/16 HAP plus X - markers are down
SCIATIC PAIN DEAL BREAKER.
3/23/16 Laminectomy w/coflex implant L4/5. NO MORE SCIATIC PAIN!!! Healing.
APRIL 2016 - 9 YRS MBC
July 2016 - continue HAP plus Xgeva.
DEC 2016 - PETCT: mets to sternum, lungs, L1 still about the same in size and PET activity. Markers not bad. Not making changes if I don't need to. Herceptin/Perjeta/Avastin/Xgeva
APRIL 2017 10 YEARS MBC
December 2017 - Progression - gonna switch it up
FEB 2018 - Kadcyla 3 cycles ---->progression :(
MAY30th - bronchoscopy, w/foundation1 - her2 enriched
Aug 27, 2018 - start clinical trial ZW25
JAN 2019 - ZW25 seems to be keeping me stable
APRIL 2019 - ONE DOZEN YEARS LIVING METASTATIC
MAY 2019 - progression back on herceptin add xeloda
JUNE 2019 - "6 mos average survival" LMD & CNS new single brain met - one zap during 5 days true beam SBRT to cord met
10/30/19 - stable brain and cord. progression lungs and bones. washing out. applying for ds8201a w nivolumab. hope they take me.
12/27/19 - begin ds8401a w nivolumab. after 2nd cycle nodes melt away. after 3rd cycle chest scan shows Improvement, brain MRI shows improvement, resolved areas & nothing new. switch to plain ENHERTU. after 4th cycle, PETscan shows mostly resolved or improved results. Markers near normal. I'm stunned but grateful.
10/26/20 - June 2021 Tucatinib/xeloda/herceptin - stable ish.
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10-14-2010, 05:21 PM
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#12
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Senior Member
Join Date: Jun 2009
Posts: 343
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Re: Tykerb Diet
Just wanted to share that I had no stomach problems while on Tykerb/Herceptin--had an issue one time but avoided salads and the usual stuff I knew would upset my stomach.
Msleslie, I had really bad stomach cramps while on TCH and it seems I remember they got worse around the 3rd one. I was not on Tykerb at the time like you are but wanted to share that. Could is be possible it's the TCH and not the Tykerb? Just wanted to throw that out since you mentioned you had not had the problems before.
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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10-14-2010, 05:22 PM
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#13
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Senior Member
Join Date: Jul 2010
Posts: 120
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Re: Tykerb Diet
@SoCalGal - I plan to take a field trip to Trader's Joe tomorrow. I will look for the soup since my nurse also indicated the importance of sodium. I was told to stop the Tykerb for one week to give my body a rest. My medical team was concerned about the severe issues I had earlier in the week while taking imodium around the clock. Next week, we will reintroduce the Tykerb into my system. I will also be looking for drinks that help with electrolytes.
@my2boys - Where you able to handle the salad go?
__________________
6/14/2010 - Self discovered Lump; Age 39
6/24/2010 - Biopsy results confirm breast cancer
Right breast, invasive ductal adenocarcinoma
HER2neu positive, BRAC I & II negative
7/8/2010 - Lumpectomy right breast, sentinel lymph node biopsy, & port-a-cath installed on left
Stage II, Size 3.2cm, Clear Nodes, Clear Margins
8/19/2010 - Chemo begins - Taxotere, Carboplatin, Herceptin & Tykerb all simulanteously; ALTTO trial arm 4
9/9/2010 - Chemo dose #2
9/30/2010 - Chemo dose#3
10/21/2010 - Chemo dose#4
11/11/2010 - Chemo dose#5
12/02/1010 - Chemo dose #6 - WooHoo, it is complete!
12/14/2010 - Simulation & Planning session for radiation
02/18/2011 - Completed radiation treatment (33 rounds)
08/04/2011 - Completed Herceptin & Tykerb
09/30/2013 - ultrasound guided biopsy (following annual MRI)
10/1/2013 - new cancer in left breast. 6mm discovered via MRI
10/28/2013 - bilateral mastectomy - no reconstruction
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10-14-2010, 05:25 PM
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#14
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Senior Member
Join Date: Jul 2010
Posts: 120
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Re: Tykerb Diet
@vlcarr - thanks for the info - it is very possible that it was Chemo#3 but of course it is difficult to tell which drug is causing a symptom since I'm on so many meds at one time.
__________________
6/14/2010 - Self discovered Lump; Age 39
6/24/2010 - Biopsy results confirm breast cancer
Right breast, invasive ductal adenocarcinoma
HER2neu positive, BRAC I & II negative
7/8/2010 - Lumpectomy right breast, sentinel lymph node biopsy, & port-a-cath installed on left
Stage II, Size 3.2cm, Clear Nodes, Clear Margins
8/19/2010 - Chemo begins - Taxotere, Carboplatin, Herceptin & Tykerb all simulanteously; ALTTO trial arm 4
9/9/2010 - Chemo dose #2
9/30/2010 - Chemo dose#3
10/21/2010 - Chemo dose#4
11/11/2010 - Chemo dose#5
12/02/1010 - Chemo dose #6 - WooHoo, it is complete!
12/14/2010 - Simulation & Planning session for radiation
02/18/2011 - Completed radiation treatment (33 rounds)
08/04/2011 - Completed Herceptin & Tykerb
09/30/2013 - ultrasound guided biopsy (following annual MRI)
10/1/2013 - new cancer in left breast. 6mm discovered via MRI
10/28/2013 - bilateral mastectomy - no reconstruction
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10-15-2010, 09:35 AM
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#15
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Tykerb Diet
Don't forget potassium if you have diarrhea. Potassium is just as important as salt in the diet. People loose potassium when they have diarrhea. Potassium helps heart function and it helps keep blood pressure under control. Healthy heart function is important when taking Herceptin and Tykerb. Eat some potassium rich foods like bananas, which by the way are also good when a person has diarrhea. Drink alot of water. Alot of regular markets have miso soup now. Miso is made from agged fermented soy and is a little salty. There are two kinds, red and white. I like the milder white miso.
Last edited by ElaineM; 10-15-2010 at 09:38 AM..
Reason: addition
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10-15-2010, 11:31 AM
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#16
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Senior Member
Join Date: Jul 2010
Posts: 120
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Re: Tykerb Diet
Yes, I've been eating the bananas & drinking coconut water which is suppose to have more potassium than bananas. Thanks!
__________________
6/14/2010 - Self discovered Lump; Age 39
6/24/2010 - Biopsy results confirm breast cancer
Right breast, invasive ductal adenocarcinoma
HER2neu positive, BRAC I & II negative
7/8/2010 - Lumpectomy right breast, sentinel lymph node biopsy, & port-a-cath installed on left
Stage II, Size 3.2cm, Clear Nodes, Clear Margins
8/19/2010 - Chemo begins - Taxotere, Carboplatin, Herceptin & Tykerb all simulanteously; ALTTO trial arm 4
9/9/2010 - Chemo dose #2
9/30/2010 - Chemo dose#3
10/21/2010 - Chemo dose#4
11/11/2010 - Chemo dose#5
12/02/1010 - Chemo dose #6 - WooHoo, it is complete!
12/14/2010 - Simulation & Planning session for radiation
02/18/2011 - Completed radiation treatment (33 rounds)
08/04/2011 - Completed Herceptin & Tykerb
09/30/2013 - ultrasound guided biopsy (following annual MRI)
10/1/2013 - new cancer in left breast. 6mm discovered via MRI
10/28/2013 - bilateral mastectomy - no reconstruction
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10-16-2010, 06:21 AM
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#17
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Member
Join Date: Dec 2008
Posts: 16
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Re: Tykerb Diet
Small salad was just fine....hooray!! I even ate a pear yesterday. Now I will wait a day and try again.
I think that the Tykerb is better tolerated when the chemo is out of the mix. No way I could have done this when I was on Taxol with Herceptin and Tykerb.
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10-19-2010, 02:33 PM
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#18
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Member
Join Date: Oct 2010
Location: Paxton,IL
Posts: 11
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Re: Tykerb Diet
When I started Tykerb I couldn't find anything to balance eating and freg.bathroom breaks. I started diphen/atrop and take one the first five min. Im awake, than take one five min. after taking Tykerb. IF off on time than, well no balance with the digestive system. Other than that balance is great I love the med
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10-25-2010, 12:05 AM
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#19
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Senior Member
Join Date: May 2010
Posts: 432
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Re: Tykerb Diet
My wife is on seperated buttermilk, applejuice and btrads and rice.Seem to work
__________________
PBK
huband of Hema
Metstatic Breast Cancer Stage 4
Left breast cauliflower 25x20cm
ossousmetstatis in vertbrae secondaries L4=L5secondary
nodules in both liver lobes secondary
Diagnosed 10th March 2010
ER/PR-ve
Her 2 neu +++
Taxotrne Zylotec started 16th March
Herceptin added 5th April.9th Herceptin over on 20th Sep '10.Started on Tykerb and Xeloda on 22nd Oct2010TYKERB 4 TAB A DAY XELODA 4 TAB A DAY ONE WEEK ON ONE WEEK OFFZoletrust infusion every 4 months.Lesion in Brain 3D CRT Radiation started on 1st Feb'12 for 20 days ,5 days a week for 4 weeks.Devloped a small lump in breast.Xeloda stopped from 11th April '12.On Taxol.After 3 cycles of Taxol Taxol stopped.Back to Xeloda regime from 3rd July
Herceptin started again on 27th Dec 2012.Xeloda stopped Navelbin added on 7th February 2013.Now on Tykerb Herceptin and Navelbin
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