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Old 09-12-2006, 08:15 AM   #1
madubois63
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conference at Sloane for mets

This was posted on another board I post on. Thought some of you might be interested...

Hi All--

I don't post much--not much at all--but I wanted to let you all know that there will be a conference on metastatic breast cancer at Memorial Sloan Kettering in New York on November 18. Dr. Larry Norton is the keynote speaker. There will be opportunities for women with mets to meet, connect and discuss things while hearing about the latest research and treatments for us. This is the first conference I know of geared to mets women and I really hope people will come. It is free. To register contact the Metastatic Breast Cancer Network at mbcnet@gmail.com.

I think this really could be a great day.
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Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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Old 09-12-2006, 08:47 AM   #2
Cathya
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Maryann;

Thank you for posting this. I'll have to see about coming....I LOVE NY!! I'm sure you're exhausted but you sound good online. Love to read your updates. Take care. God bless.

Cathy
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Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18


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Old 09-12-2006, 04:23 PM   #3
Joe
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I received this flyer today!

http://www.her2support.org/final.jpg

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Joe
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