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Events and Social Calendar Post events which will be of interest to our members no matter how large or small. You may also add them to our calendar as an additional reminder.

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Old 07-10-2006, 05:24 AM   #1
Joe
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Washington, DC - Local Volunteers Needed
The HER2 Support Group has been invited to be an exhibitor at the Washington, DC Cure Magazine Patient and Survivor Forums to be held on September 16th and 17th.

The event will take place at the Hilton McLean Tysons Corner Hotel.

We are seeking 2 local members to staff our exhibit. All promotional materials will be provided and we will pay all expenses incurred.

Email: Joe@her2support.org if interested.

Warmest Regards
Joe
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Old 07-11-2006, 05:01 PM   #2
Olivia
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Hi Joe,

I live in Baltimore and would be happy to help. Let me know.

Olivia
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Old 07-16-2006, 07:03 PM   #3
anne
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Joe,

I live v. close to McLean, VA. I will be able to help on Sat or Sun. Please let me know if you need help.
Thanks,
Anne
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Old 08-05-2006, 08:13 AM   #4
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Metastatic Brain Tumor Forum-Chicago-Sept. 16th
I recived this notice from the CINN Foundation:

http://her2support.org/mets.pdf

Regards
Joe
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Old 08-05-2006, 12:07 PM   #5
Sheila
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Joe
I am going to sign up to go to this...Thanks!
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 08-08-2006, 06:55 PM   #6
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Sheila,
I am so glad that you will be there...would you be kind enough to post your notes? I would be interested to hear what they recommend; re; how often to do brain MRI's for a stage 4 Her2+++.....Thank you!
love kim from CT
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