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Old 04-17-2012, 01:42 PM   #1
Delaney
Senior Member
 
Join Date: May 2010
Location: Ireland
Posts: 271
Lightbulb myocet/lapatinib trial

Has anyone had this drug? If (big if) my heart echo is ok, I will start on myocet/labatinib trial next week. has anyone done this? Am dreading scans etc, really have the feeling that bad things will be found. Doesnt help that I am undergoing radiotherapy to my back at the moment. I find it so painful on the bench and even worse getting up off it. Thank goodness for oxycontin! Also have to have gamma knife to brain met. Far too much going on, hard to stay positive but will persevere for another while. NED must be somewhere!!!!!!!!!!
__________________
Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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Old 04-18-2012, 09:34 AM   #2
Delaney
Senior Member
 
Join Date: May 2010
Location: Ireland
Posts: 271
Unhappy Re: myocet/lapatinib trial

Cannot take part in this trial as ejection faction (echo) only 50%, needs to be at least 55% for the trial. So will be on other chemo (dont know name - something beginning with V). Ah well, sod it!!!!!!!!!!
__________________
Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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Old 04-19-2012, 02:26 PM   #3
Ellie F
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Join Date: Feb 2009
Posts: 1,526
Re: myocet/lapatinib trial

Hi Delaney
Sorry about this trial. Hopefully the new strategy will be effective and on a positive note it looks like T-DM1 may be winging its way soon to europe for approval for all.In the meantime wondered if there were any T-DM1 trial available in Ireland? If not could you travel to the north or England? Just a thought.
Ellie
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