| Herceptin / Tykerb Share your experiences or ask questions about Herceptin or Tykerb |
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09-08-2011, 06:41 AM
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#1
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Member
Join Date: Oct 2010
Location: Paxton,IL
Posts: 11
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cancer, maybe diabetes too? terrified?
Lately, I've lost balance to everything! IDK what to think Im seeing the ONC this afternoon thankfully.
None of my meds have changed other than Im taking more diphen/atrop (diarea control med) to keep balance. Im in the bthrm multiple times beyond belief
My hubby tested my sugar and its been hanging around four hunded. I took some over the counter incillin, and it finally dropped after two hrs. Im so tired.
Yesturday I ate healthy as could be for breakfast cereal. At lunch a healthy subway sandwich, and dinner was eggs, ham and one bisquit. My sugar at 390 for that is scary. My hubby a diabetic and every woman in their thirties in my family also is.
Im terrified Im going to be fighting cancer and diabetes. Im still so swollen in my feet that I have no fitting shoes. I was told it sounds like my body is holding water.
ANY ADVICE PLEASE????? If Im going to be fighting both I will, but Im terrified I know nothing
PLEASE any advice? anything
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09-08-2011, 06:45 AM
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#2
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Member
Join Date: Oct 2010
Location: Paxton,IL
Posts: 11
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Re: cancer, maybe diabetes too? terrified?
the incillin was OTC, thankfully it took sugar down
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09-08-2011, 05:12 PM
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#3
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: cancer, maybe diabetes too? terrified?
Hezzy,
Insulin is not sold over-the-counter so not sure what you took. A blood sugar of 390 is high, very high and you need to call your doctor immediately. No more self medicating, no more fear and denial. Look, if you have become a diabetic, then you have. Now is the time to get moving and address it, deal with it, and manage it. You can do that, Hezzy.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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09-09-2011, 11:35 AM
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#4
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Senior Member
Join Date: May 2011
Location: El Paso ,Tx
Posts: 436
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Re: cancer, maybe diabetes too? terrified?
Just like Laurel said, Incullin is not sold over the counter, the dosage has to be prescribed and can be adjusted if it is not bringing down your sugar levels enough or if it is taking them too low. The side effects of high sugar are fatigue, among others. Getting a Dr who specializes in this is important due to the long term degenerative effects of the disease. Getting control of it is doable and will make you feel better. Good Luck.
__________________
 dx: DCIS 6/8/10, HER 2+ 7/26/10; Stage I Age 41
Double mast w reconstruction
6 TCH w 1yr herceptin
Tamox.
25 radiation tx
Removal of expander on L due to infection. Tried to save it had 3 bouts of antibiotics and went to see plastic surgeon 2-3x wk to get drained. Saving it was my idea not his. But lost it anyway.
Reconstruction set for December 21st,2011
Finished chemo 12/2010
Finished Herceptin 8/26/11
Reconstruction 12/21/11
Expanders exchanged for silicon 3/19/12
Nipple reconstruction 5/18/12
Nipple tatooing- 7/9/12- All done yay!
11/22/12-Went back to get scar tissue stretched to even the outside of breast, didn't work due to it being radiated skin.
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09-10-2011, 07:47 AM
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#5
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Re: cancer, maybe diabetes too? terrified?
Hezzy...where do you go for treatment...there has to be good Dr's in Champaign, which is close. Insulin must be by prescription and calculated to your blood sugar readings...also there are long acting and short acting types. The feet swelling can be from meds, heart issues or kidney issues related to the diabetic diagnosis...get to a Dr
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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09-10-2011, 09:07 PM
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#6
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: cancer, maybe diabetes too? terrified?
I think you need to see a doctor now. Take good care of yourself.
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09-11-2011, 01:04 AM
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#7
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Senior Member
Join Date: May 2010
Location: Melbourne, Australia
Posts: 434
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Re: cancer, maybe diabetes too? terrified?
Hezzy as the others have said it is important to get diabetes well treated. It is thought some diabetes medications can help with tumour control (eg Metformin) so facing the diabetes issue may help the cancer. All the very best
Trish
__________________
5/2004 (R) 30mm bre gr3 infiltrating ductal ca 16/18nodes er (2+) pr (3+) HER2 (3+)
6/2004 6 cycles(FEC), Oct 40 rads, Tamoxifen
5/2006 oopherectomy, Arimedex
12/2006 liver mets largest 9cm
1/2007 Herceptin,
3/2007 Taxol + Herc
1/2008 Herc alone
4/2008 Multiple bone mets,Zometa
7/2008 Herc + Gemcitabine
8/2008 Herc+Navelbine/vinoralbine
10/2008 Herc+Carboplatin+Taxol
12/2008 Tykerb+Xeloda
2/2010 Herceptin + trial drug
5/2010 Herceptin+Tykerb
8/2010 Tykerb+Abraxane
9/2010 Abraxane
12/2010 Abraxane+Tyk+Herc
4/2011 Tyk+Herc+Femara
6/2011 Liver and bone mets prog.Abraxane continue Herceptin,Tykerb,Femara and Zometa
8/2011 Probable liver progression and increased neuropathy. Xeloda with Tyk+Herc. Zometa 6 weekly.
9/2011 Liver progression,TM +++. Cyclophosphamide and Methotrexate metro Herc Zometa
10/2011 liver mets prog.Herc, 3 Tykerb +2mg decodron daily,Zometa
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10-10-2011, 07:33 AM
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#8
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Member
Join Date: Oct 2011
Location: New jersey
Posts: 24
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Re: cancer, maybe diabetes too? terrified?
Hezzy, you definitely need to see a doctor ASAP for this. Uncontrolled diabetes can add problems to cancer. You need a good doctor who will work with you, and give you good medical and nutritional advice. Good luck, and I will keep you in my prayers.
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